I went to a local farm market here last year and tried a piece of chocolate cake, curious because it was made with beets....yes, beets. Pleasantly surprised, I couldn't tell that it contained beets, or the fact it was wheat-free and had no butter or oil.
My dad, who lives in the area of the market, now gets this for me every few weeks as a 'treat' for me, because I also found that I had no problems, as far as my Crohn's is concerned, eating it. No pain, no getting that hurried feeling of having to go to the bathroom...nothing. It's baked by a nice woman who just bakes small amounts, but I wanted to mention her as a 'thank you' for the wonderful cake as there is not too much someone with Crohn's can eat when it comes to sweets.
She's at this market every week and the chocolate beet cake contains dark chocolate, sorghum, brown rice and tapioca flours, free range eggs, fresh beets, etc. and is topped with a chocolate ganache which is just chocolate and coconut milk.
It's only about the size of half a loaf tin but I make it last by cutting about half and inch piece at a time. It can't be bought in stores, so I make it last and is soooooooo worth it!!
The market is on til October and wondering what I'm going to do when the market season ends!!??
Friday, August 9, 2013
Monday, August 5, 2013
Crohn-fucius Say...
Crohn-fucius say... Crohns is like a duck on a pond, calm and unruffled on the surface, but chaos under the surface.
Saturday, August 3, 2013
Crohn's Disease Blogs
Thanks to Healthline.com, my blog (among some other good ones) was selected one of the Best Crohn's Disease Blogs of 2013 !!
http://www.healthline.com/health-slideshow/best-crohns-blogs
' Crohn’s Leaving the Seat Down is an entertaining, sardonic look at life with Crohn’s that’s sure to get you through the toughest day. Author Vern was diagnosed in 1988 and dived into getting better with the same focus and drive that had made him a competitive figure skater.
Vern offers advice on diet, helpful organizations and reading, and why creating art can be a vital element of healing. His regular postings include the wise and witty “Crohn-fucious say…” and the rollicking “You Might Be a Crohnie.” '
I'm glad that, what started out as a place for me to "vent" about my illness, has not only helped me, but others as well.
Thanks again Healthline.com !!!!
http://www.healthline.com/health-slideshow/best-crohns-blogs
' Crohn’s Leaving the Seat Down is an entertaining, sardonic look at life with Crohn’s that’s sure to get you through the toughest day. Author Vern was diagnosed in 1988 and dived into getting better with the same focus and drive that had made him a competitive figure skater.
Vern offers advice on diet, helpful organizations and reading, and why creating art can be a vital element of healing. His regular postings include the wise and witty “Crohn-fucious say…” and the rollicking “You Might Be a Crohnie.” '
Thanks again Healthline.com !!!!
Thursday, August 1, 2013
Remicade : Day 372
One year and 7 days.....8928 hours.....535,680 minutes.....32,140,800 seconds.....now matter how you want to look at it, it's the Anniversary of my infusion treatment.
Looking back over the year, I can honestly say, for the most part, the Remicade has worked for me. The pain from Crohn's has 98% gone, as I still seem to get gas pain at around the 4-5 week mark after infusion and I still get the abscesses (which I can really do without thank you very much). I am dealing with that right now. The positive is that at least they keep draining, but DAMN they hurt sometimes. Not much you can do if it hurts to stand, walk or sit. And I am not one to "lay around", so, yes, it DOES get to me that I can't really do anything that I want, or need, to do.
All in all, Remicade is working.......for me.
Looking back over the year, I can honestly say, for the most part, the Remicade has worked for me. The pain from Crohn's has 98% gone, as I still seem to get gas pain at around the 4-5 week mark after infusion and I still get the abscesses (which I can really do without thank you very much). I am dealing with that right now. The positive is that at least they keep draining, but DAMN they hurt sometimes. Not much you can do if it hurts to stand, walk or sit. And I am not one to "lay around", so, yes, it DOES get to me that I can't really do anything that I want, or need, to do.
All in all, Remicade is working.......for me.
Tuesday, July 30, 2013
Crohn's Disease Obituary
As I lay on the couch dealing with the three abscesses in a NOT so pleasant area, gas pains and fatigue and while waiting for tomorrow to come as it is my year anniversary for Remicade infusions.....I thought of the day that Crohn's, and bowel diseases in general, will be cured.
So, what would an obituary say about Crohn's........here's my version......
Maybe...?? One day...??
So, what would an obituary say about Crohn's........here's my version......
Crohn’s Disease, prominent bowel disease, died last night from
complications of losing his soul mates Ileitis and Colitis. No one is really
sure of his age, but according to written records, he was over 81 years old.
Asked about the loss of his dear friend, IBS,
the soon to be obsolete and forgotten disease, described Crohn’s as complicated
and was looked up to by other diseases of the body for his wide range of
symptoms.
In the final days of his life, he revealed an unknown side of
his psyche. This hidden quasi-Freudian persona
surfaced in the super-ego-like pursuit of his desire to be the number one
disease.
Sadly, the protracted search ended early Monday morning in
complete and utter failure. Yet even in
certain defeat, the courageous Crohn’s secretly clung to the belief he was to
live forever.
He is survived by IBS but has also come to
the realization that soon another obituary will be written about him and will
only survive in the pages of old medical journals.
Maybe...?? One day...??
Tuesday, July 23, 2013
Thursday, July 18, 2013
How Are You Today?
I love it when you're not feeling well and people ask "how are you today?" "fine", you say, so not to garner more questions. Well, it's that and the fact that at that moment they ask you, you are right in the middle of an attack. So I came up with what the pain means to me.....
Please rip out
All my
Intestines
Now!
.
Please rip out
All my
Intestines
Now!
.
Monday, July 15, 2013
Saturday, July 13, 2013
Summertime Crohnie.....Fun??
It's that time of year again. Summertime!! Fun in the sun, beaches, bbq's, pools, camping.....everything you could ever want.
Unless you're a Crohnie....
If the heat doesn't get you, the summertime 'treats' will. Isn't it amazing that no matter whomever you talk to that has Crohn's, summertime is the one time of year that activates your Crohn's and then it takes the fall and winter to recover, just in time to do it all over again.
Is it because of the heat alone? or is it because of the sun you spend more time outside and do more? The heat makes anyone dehydrated, but if you are already dehydrated from your illness, double it.
Along with the dehydration comes exhaustion and aches and pains. Like today, for me, I'm done in and its only 5pm. My muscles ache when I get up and when I sit down, when I walk, when I lay down...etc etc etc. Trying to take in salt, but doesn't seem to help. Add to that, trying to keep up with a 6 and 8 year old. whew! Tired just talking about it...
Or... is it from the bbq hot dogs, cold pasta salad, salad, Coke, ice cream sandwiches, freezes?? You know.....all the foods that blow you up like a balloon to the point that it looks as though you're going to give birth to some alien baby. You know you aren't suppose to eat all that, but it's summertime after all.
Then there's the beach. Good luck trying to get some sun. With all the wonderful meds we take, you can get...what?....5 minutes of sun?? Even though you drown yourself in SPF 500 before you go out in it, put one long pants, hoodie and sun glasses, you always come out with some kind of burn that makes you look like some mutant lobster.
Is it worth it...??
hmmmm......
thinkingggggggggggg.......
Can't answer that. For me, it's a yes and no answer. I don't think I'm going to sleep tonight even though I am so so tired and I have to go in to work in the morning for a couple of hours. But it's worth it....a little...for some summertime fun.
Consider it practice for Christmas dinner....
.
Unless you're a Crohnie....
If the heat doesn't get you, the summertime 'treats' will. Isn't it amazing that no matter whomever you talk to that has Crohn's, summertime is the one time of year that activates your Crohn's and then it takes the fall and winter to recover, just in time to do it all over again.
Is it because of the heat alone? or is it because of the sun you spend more time outside and do more? The heat makes anyone dehydrated, but if you are already dehydrated from your illness, double it.
Along with the dehydration comes exhaustion and aches and pains. Like today, for me, I'm done in and its only 5pm. My muscles ache when I get up and when I sit down, when I walk, when I lay down...etc etc etc. Trying to take in salt, but doesn't seem to help. Add to that, trying to keep up with a 6 and 8 year old. whew! Tired just talking about it...
Or... is it from the bbq hot dogs, cold pasta salad, salad, Coke, ice cream sandwiches, freezes?? You know.....all the foods that blow you up like a balloon to the point that it looks as though you're going to give birth to some alien baby. You know you aren't suppose to eat all that, but it's summertime after all.
Then there's the beach. Good luck trying to get some sun. With all the wonderful meds we take, you can get...what?....5 minutes of sun?? Even though you drown yourself in SPF 500 before you go out in it, put one long pants, hoodie and sun glasses, you always come out with some kind of burn that makes you look like some mutant lobster.
Is it worth it...??
hmmmm......
thinkingggggggggggg.......
Can't answer that. For me, it's a yes and no answer. I don't think I'm going to sleep tonight even though I am so so tired and I have to go in to work in the morning for a couple of hours. But it's worth it....a little...for some summertime fun.
Consider it practice for Christmas dinner....
.
Wednesday, July 3, 2013
Crohn-fucius Say...
Crohn-fucius say...if you awaken thinking you are Jesus, it's just the morphine talking.
.
.
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