Tuesday, August 28, 2012

Yesterday....All My Troubles Seem So Far Away

Since my diagnoses back in 1988, I have been living with, and dealing with, Crohn's for

24 years, 2 months and 27 days


8,855 days
212,496 hours
12,749,760 minutes
764,985,600 seconds....601.....602....603....604....

Of course, I had Crohn's for months before the "official" diagnoses, but,

well, you get the idea.

Sunday, August 26, 2012

Wednesday, August 15, 2012

A Day at the Fair

Went down over the line to the US yesterday and took the family to the Northwest Washington Fair (after stopping at Target to do some shopping of course).
We go down every year for a few reasons, mainly because the kids like all the animals and the wide variety of rides and it's fairly reasonably priced....$60 for parking, 2 adults and 2 kids to get in and 2 ride passes....awesome value.
I am usually wary of going, though I do cuz its fun, because of the fact....well....I have Crohn's and the thought of using the washroom there just give me the willy's!  So, to combat that, I don't eat.  I have breakfast in the morning and go to the washroom several times BEFORE we leave (long drive) and then don't eat again until either we are just leaving to come home, or wait until we get home.  Strangely enough, I don't feel hungry.

BUT, this time was different.  Was it the Remicade?  The Immuran?  Both?  Who knows, but I ate a sandwich which we brought with us, part of my son's, some potato chips, little bit of Coke, some crackers and some cucumber.  How was it you ask?  Fine.  Didn't have to go to the washroom and more importantly, didn't have the feeling of needing to go.  AND I didn't go to the washroom until we got home...8 hours after we left.

I know, I know, to those of you without Crohn's who are saying, "wow....8 hours without going to the bathroom, big deal".....well to those of us WITH it....

.....it's a HUGE deal.

Sunday, August 12, 2012

Crohn's and the Olympics Don't Mix

For those of us who enjoy watching the Olympics and have Crohn's.....install a TV in the bathroom.
Especially the opening and closing ceremonies!  Thank God for PVR's !!

Great job London and GB, thoroughly enjoyed it, thanks.
And thanks to our Canadian athletes!!

Friday, August 10, 2012

Remicade : Cost

So, I thought I would take a pic and show it to all those who do not believe that this medication can bankrupt you, eventhough we need it and it helps.....thank god for coverage!

Yes.....that says $3,811.45

Wednesday, August 8, 2012

Remicade : Day 14

Second infusion today, no problems.  No weird reaction on the skin this time, so that was a relief.  The nurse just couldn't get the needle in my veins....got it on the third try. 
I find it strange while I'm being infused, because the Remicade is cold, it's cold going in and makes my skin cold around the infusion site and up my arm about 6 inches.....weird.

On the up side, my weight went up 1.4 kg's from the last infusion and I have noticed that the two fistulas I have, have gone wayyyyyyyy down and have stopped draining.  That part, I'm excited about!  Those damn things are very annoying and painful sometimes, but so far so good.

Saturday, August 4, 2012

Crohnie Quote of the Day

Life isn't about waiting for the storm to pass.
 It's about learning how to dance in the rain.