Friday, October 27, 2017

Remicade : Day 1919

Infusion #47, almost 5 and a half years now and still going strong.
Remicade has reduced my symptoms drastically, but hasn't eliminated them totally and I'm OK with that. 
The days sometimes are tough and tiring, but at least I haven't ended up in hospital for them and I can deal with my Crohnie problems from the comfort of my own home instead of the hospital environment.
Don't get me wrong, it's good to know that the hospital is there if I need it, I'm just glad I don't need it.  I still need to make a decision regarding an ostomy or not.  It's a hard decision but I think I'm leaning to the "not right now" side of things.  It's taken me almost 30 years to get use to doing things a certain way and dealing with my Crohn's, I don't know if I want to learn it all over again. 
Right now, I don't "need" the surgery, but when I do, or if I do, I'll deal with it then.

Sunday, October 22, 2017

The Faces of Crohn's

So, have you ever wondered what Crohn's looks like?  And I don't mean the graphic photos of intestines etc, I mean the people.  I personally have become an expert on "looking well" instead of looking sick.

The face of Crohn's/IBD can be your mother, father, brother, sister, child, grandparent, friend, foe, teacher, co worker, boss, neighbor, celebrity, sports star, Olympic athlete, etc.
As an invisible illness, you just never know who's suffering and a daily basis.

You want to know what someone with IBD looks like?

It's me.

Sunday, October 15, 2017

New VIDA Skirts

I have added more wearable art to my VIDA collection
View my whole collection here: Shop VIDA

Friday, October 13, 2017

Crohns Disease Essentials and Emergency Kits

Again, from IBD News Today, a fantastic column by Mary Horsley
I would encourage everyone to follow her blog It Could Be Worse

IBD News Today

Protein Deficiency Research

I came across this study done in the Netherlands regarding the SHIP1 protein.
We're getting closer and closer....

IBD News Today

Wednesday, October 11, 2017

Crohnie Quote of the Day

Healing is not controlling damage within;
It's not allowing damage to your life.

Thursday, October 5, 2017

You Might Be A Crohnie

If you can "extreme-multi-task" (do everything while sitting on a toilet)
... you might be a Crohnie