Sunday, January 31, 2010

I have such a hot ass

Well, now that you have your mind out of the gutter.....
With this abcess and going to the bathroom all the time (several times an hour.....yes, an hour), my ass is burning, literally!  Stings like a hot damn.  Tylenol 3's help, but doesn't help while you're out shopping with the family.  Because of me, we always have to leave early.  This would be considered another bad day.  Probably something I ate, like the wifes birthday cake, but now I have to grin and bare it I guess.
But, let me tell you.............wait for it...............wait for it.........

........it's a pain in the ass!!

Pills

I'm on Salofalk, so here's some info:

Salofalk is an anti-inflammatory (5-aminosalicylic acid, 5-ASA) or mesalamine, and is used to treat mild to moderate ulcerative colitis and Crohns disease.  There are different brands of 5-ASA used to treat different places in the digestive tract, anywhere from the mouth to the anus.  For this reason, some brands are used to treat only ulcerative colitis and some for Crohns disease and ulcerative colitis.

To me....?  Take whatever works for you.  I've tried others over the years, and found that Salofalk was the only one that works for me.  I also take Prednisone (5mg) on a maintenance dose.

Website

Found this good site about Crohn's disease:

http://www.health.com/health/crohns-disease?pkw=PSHEGLTX011310CNND1967&partner=yes&xid=ha-az-drop-down&gclid=CNybwsacuJ8CFRKiagodlEs_zw

Tuesday, January 26, 2010

Ups and Downs

Comes with the territory I guess.  Having Crohn's I mean.  You have your good days and bad days, like anyone else, but us Crohnny's have it a little more harsh.  My abcess was doing well, still draining, but doing well.  But this morning it started to get bigger once again, so of course, I start to worry, like, "Oh shit, here we go again".  But as the day went on, it drained a little more and seems to be fine, so as the Crohn's disease motto goes, you have your good days and you have your bad days, but any day NOT in the hospital, is a good day!

Monday, January 18, 2010

Man, I feel like a woman

It's not everyday one can say that, especially being a man. But when dealing with Crohn's Disease on a day to day, week by week, year by year basis, you will eventually have to say it... Man! I feel like a woman!
Why? Well for me? It's because of the peri-anal abcesses and the constant drainage from them (which is a good thing). And why does this make me feel like a woman you ask. Because it's not everyday one can say, as a man, I know what it's like to wear pads. Whew! There I said it! Hello,my name is Vern and I where feminine hygiene products. BUT only when I have peri-anal abcesses. They are OBVIOUSLY designed for woman, because let me tell you, they are NOT comfortable to wear, as a man.
Having said all that though, I AM glad they are there and they work, because the last thing I need is buying up thousands of packets of surgical gauze to stick between my legs. So, thankyou women around the world!

Thursday, January 14, 2010

New Trials

I'm intrigued and excited about a new study coming out of the University of Western Ontario

http://communications.uwo.ca/com/western_news/stories/clinical_trial_seeks_to_improve_crohn's_treatment_20100104445511

Thanks!
Vern

Monday, January 11, 2010

Water....

....is your friend. No matter what anyone tells you about what you can and can't drink or eat, water is the only thing you can take that won't affect your Crohn's. If I could drink water all day without eating I would. Coffee, tea, pop are all diahretics and WILL make you run to the bathroom. Don't believe me? Try it

Thursday, January 7, 2010

To bag or not to bag........

....that is becoming the question. In particular, an ileostomy. The last time I was in hospital for an abcess, he recommended that I get the bag. There is so much to think about. The decision is more of an emotional one than a physical one. What to do, what to do.

Wednesday, January 6, 2010

Funny!

My wife said something to me the other day and I just had to laugh.
We were talking back and forth to each other, you know, in that husband and wife funny way, and she said to me, "You're so full of shit" where I replied "I have Crohn's, I haven't been full of shit for 20 years!" We both had a good laugh. Then I had a thought, I actually haven't been 'regular' since 1989! ha ha ha ha

Saturday, January 2, 2010

Sick and Tired........

......of being sick and tired. Everyday it goes through my head. Depending on how I'm feeling depends on how much I feel this. I try not to take my frustrations out on anyone, but I do, and I'm sorry for it. When I first got CD, I had the "why me" syndrome, I had it a long time. I was depressed and at one point said "I'm done". I was in my early 20's, never been sick (and I mean never), I rarely went to the doctor, I was physically fit (soccer and figure skating)and then one day, it comes to a crashing halt. I lost weight at an alarming rate, I lost my girlfriend at the time and I learned very quickly that you cannot be self conscious when it comes to CD. I'm in my 40's now and I still ask myself "why", but this time I have a wife and family that loves me and I know that down that long road, there is a light at the end of the tunnel and I live my life day to day and deal with what comes along with CD.......you have to, or IT wins.