As we near the end of 2017 and enter into a new year, I want to wish everyone a happy and healthy 2018.
I guess I should say, "healthier" 2018. Us chronic illness sufferers will never be "healthy" unless a cure is found.
Having said that, I want to thank everyone that has read, contributed and/or commented on my blog. We're all here to help one another get through whatever we are suffering from.
So, if you are suffering from Crohn's, UC, IBD or any chronic or invisible illness, my hope for 2018 is that your illness will be less painful or debilitating and that we all stay out of hospital
Happy New Year !!
Sunday, December 31, 2017
Wednesday, December 27, 2017
You Might Be A Crohnie...
If you get to sip clear broth while everyone else stuffs their bellies with Christmas turkey, stuffing, etc.
...you might be a Crohnie
...you might be a Crohnie
Sunday, December 24, 2017
'Twas The Night Before A Crohnie Christmas
Every year for the past 12 years, I read Twas the night before Christmas to my kids on Christmas eve before they go to bed....here's the Crohn's Disease version that I don't read to my kids...
***warning: language***
‘Twas the night before a Crohnie Christmas, quiet as a mouse
Trying to get to the bathroom without disturbing the spouse.
The TP was hung by the toilet with care,
In hopes that I don’t run out whilst I sat there.
The children were nestled all snug in their beds,
I hope I’m not too loud lest I wake their sleepy heads.
And mamma in her ‘kerchief, and I in my cap,
But I had to get up, I needed to crap.
When out on the lawn there arose such a clatter,
I sprang from my throne to see what was the matter.
Away to the window I flew like a flash,
Still pulling up my underwear to cover my ass.
I live on the coast so there wasn’t any snow
Just dreary wet grass that I can see below.
When, what to my very tired eyes should appear,
But a miniature sleigh, and eight tiny reindeer.
A decrepit old driver, not lively or quick,
I knew in a moment it must be St Nick.
He didn’t look well, he must be inflamed,
But he whistled, and shouted, and called his reindeer by name!
"Now Crohns! Now, Colitis! Now, Pain and Grouch!
On, Abscess! On, Fistula! On, Ostomy and J-Pouch!
To the top of the porch! To the top of the wall!
Now dash away! Dash away! Dash away all!"
And then, in an instant, I heard on the roof,
The scratching and farting of that big, silly aof.
As I drew in my head, and was turning around,
Down the chimney St Nicholas came with a bound.
He was dressed all in fur, from his head to his toe,
He looked very fatigued, he moved really slow.
A bundle of toys he had flung on my chair,
He looked in pain, it must be a flare.
His eyes, how they squinted! His face quite scary!
He let out a fart, not pleasant or airey!
His droll little mouth was drawn up like a bow,
I was getting prepared, he was gonna let another one go.
The bags under his eyes, I saw his fatigue
That comes from living with this dam Crohn's Disease.
He had a broad face, (must be the Prednisone),
If he didn’t hurry, he would soon need the throne.
He was chubby and plump, a right smelly old elf,
And I laughed when I saw him, in spite of myself!
The moon face, mood swings and twitch of the head,
Soon gave me to know it was for sure the Pred.
***warning: language***
‘Twas the night before a Crohnie Christmas, quiet as a mouse
Trying to get to the bathroom without disturbing the spouse.
The TP was hung by the toilet with care,
In hopes that I don’t run out whilst I sat there.
The children were nestled all snug in their beds,
I hope I’m not too loud lest I wake their sleepy heads.
And mamma in her ‘kerchief, and I in my cap,
But I had to get up, I needed to crap.
When out on the lawn there arose such a clatter,
I sprang from my throne to see what was the matter.
Away to the window I flew like a flash,
Still pulling up my underwear to cover my ass.
I live on the coast so there wasn’t any snow
Just dreary wet grass that I can see below.
When, what to my very tired eyes should appear,
But a miniature sleigh, and eight tiny reindeer.
A decrepit old driver, not lively or quick,
I knew in a moment it must be St Nick.
He didn’t look well, he must be inflamed,
But he whistled, and shouted, and called his reindeer by name!
"Now Crohns! Now, Colitis! Now, Pain and Grouch!
On, Abscess! On, Fistula! On, Ostomy and J-Pouch!
To the top of the porch! To the top of the wall!
Now dash away! Dash away! Dash away all!"
And then, in an instant, I heard on the roof,
The scratching and farting of that big, silly aof.
As I drew in my head, and was turning around,
Down the chimney St Nicholas came with a bound.
He was dressed all in fur, from his head to his toe,
He looked very fatigued, he moved really slow.
A bundle of toys he had flung on my chair,
He looked in pain, it must be a flare.
His eyes, how they squinted! His face quite scary!
He let out a fart, not pleasant or airey!
His droll little mouth was drawn up like a bow,
I was getting prepared, he was gonna let another one go.
The bags under his eyes, I saw his fatigue
That comes from living with this dam Crohn's Disease.
He had a broad face, (must be the Prednisone),
If he didn’t hurry, he would soon need the throne.
He was chubby and plump, a right smelly old elf,
And I laughed when I saw him, in spite of myself!
The moon face, mood swings and twitch of the head,
Soon gave me to know it was for sure the Pred.
He spoke not a word, but went straight to the bathroom,
And filled my toilet with a splat! and a KABOOM!
And laying his fingers, covering his nose,
Giving a nod, up the chimney he rose!
He sprang to his sleigh, he now weighed so much less,
He thanked me and apologized for the big mess.
But when I heard him exclaim, I realized he knew my plight,
“I have Crohn’s Disease too, it’s going to be one HELL of a night!!”
And filled my toilet with a splat! and a KABOOM!
And laying his fingers, covering his nose,
Giving a nod, up the chimney he rose!
He sprang to his sleigh, he now weighed so much less,
He thanked me and apologized for the big mess.
But when I heard him exclaim, I realized he knew my plight,
“I have Crohn’s Disease too, it’s going to be one HELL of a night!!”
Merry Christmas everyone, hopefully it is disease-free. At least for one day
-Vern
Crohnie Advent Calendar
Opening the last bathroom stall door this morning to find...
.... hope.
Merry Christmas and all the best for a happy and healthy 2018!
.... hope.
Merry Christmas and all the best for a happy and healthy 2018!
Saturday, December 23, 2017
12 Days A Crohnie Christmas
Every year I repost my 12 Days....make sure you sing it !!
On the twelfth day of Christmas my Crohn's Disease gave to me...
12 rolls of super luxuriously soft toilet paper
11 pairs of underwear,
10 Remicade infusions,
9 colonoscopies,
8 attentive and caring nurses,
7 types of medications,
6 different doctors and surgeons,
5 kidneyyyyyyy stonnnnnnnnes,
4 visits to the ER,
3 sleepless nights,
2 fistulating peri anal abscesses
and a flexible sigmoidoscopyyyyyyyyyyyyyy !!
Merry Christmas everyone!
Make sure to come back tomorrow for my Twas the night before a Crohnie Christmas!!
On the twelfth day of Christmas my Crohn's Disease gave to me...
12 rolls of super luxuriously soft toilet paper
11 pairs of underwear,
10 Remicade infusions,
9 colonoscopies,
8 attentive and caring nurses,
7 types of medications,
6 different doctors and surgeons,
5 kidneyyyyyyy stonnnnnnnnes,
4 visits to the ER,
3 sleepless nights,
2 fistulating peri anal abscesses
and a flexible sigmoidoscopyyyyyyyyyyyyyy !!
Merry Christmas everyone!
Make sure to come back tomorrow for my Twas the night before a Crohnie Christmas!!
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
raspberry tea !!!!! (for those pesky kidneys)
Email me at crohnsltsd@gmail.com with what you'd like to see
raspberry tea !!!!! (for those pesky kidneys)
Email me at crohnsltsd@gmail.com with what you'd like to see
Friday, December 22, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
water !!!!! (cuz you can never stay hydrated)
Email me at crohnsltsd@gmail.com with what you'd like to see
water !!!!! (cuz you can never stay hydrated)
Email me at crohnsltsd@gmail.com with what you'd like to see
Thursday, December 21, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
sitz bath kit !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
sitz bath kit !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Wednesday, December 20, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
protein drinks !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
protein drinks !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Tuesday, December 19, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
crossword puzzles !!!!! (for hospital days)
Email me at crohnsltsd@gmail.com with what you'd like to see
crossword puzzles !!!!! (for hospital days)
Email me at crohnsltsd@gmail.com with what you'd like to see
Monday, December 18, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
chicken broth !!!!! (for liquid diet days)
Email me at crohnsltsd@gmail.com with what you'd like to see
chicken broth !!!!! (for liquid diet days)
Email me at crohnsltsd@gmail.com with what you'd like to see
Sunday, December 17, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
epsom salts !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
epsom salts !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Saturday, December 16, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
large bottle of 'poo-pourri' spray !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
large bottle of 'poo-pourri' spray !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Friday, December 15, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
ostomy bags !!!!! (for my ostomy friends)
Email me at crohnsltsd@gmail.com with what you'd like to see
ostomy bags !!!!! (for my ostomy friends)
Email me at crohnsltsd@gmail.com with what you'd like to see
Thursday, December 14, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
new pants (with adjustable waist) !!!!! (for weight loss/gain)
Email me at crohnsltsd@gmail.com with what you'd like to see
new pants (with adjustable waist) !!!!! (for weight loss/gain)
Email me at crohnsltsd@gmail.com with what you'd like to see
Wednesday, December 13, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
peanut butter !!!!! (my goto protein)
Email me at crohnsltsd@gmail.com with what you'd like to see
peanut butter !!!!! (my goto protein)
Email me at crohnsltsd@gmail.com with what you'd like to see
Tuesday, December 12, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
vitamin D !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
vitamin D !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Monday, December 11, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
protein bars !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
protein bars !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Sunday, December 10, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
a T-shirt that says "I know I don't LOOK sick" !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
a T-shirt that says "I know I don't LOOK sick" !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Saturday, December 9, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
a pillow !!!!! (cuz we all have to take some time to just rest)
Email me at crohnsltsd@gmail.com with what you'd like to see
a pillow !!!!! (cuz we all have to take some time to just rest)
Email me at crohnsltsd@gmail.com with what you'd like to see
Friday, December 8, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
Remicade !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Remicade !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Thursday, December 7, 2017
Remicade : Day 1961
Another 6 weeks....another infusion. Wish I didn't need to do it, but, it keeps the Crohn's mostly at bay. These past 5 years have been "easier" than the 25 before I started on remicade. But there are always the things attached to Crohn's the remicade doesn't take care of...fatigue, joints, psoriasis, fissures, abscesses, etc, etc, etc.
On the positive side, the weight is up again, 78 kg (172lbs, 12 stone). It's taken 30 years, but I am finally back to the weight I was before I got sick!! I am definitely NOT the fitness level or muscle tone I once was, but I'll take it......for now.
At the clinic yesterday while getting infused, a lady came in to get her first infusion and OMG, the dramatics! You'd think she was being tortured or something.....just from getting the needle in. Now, don't get me wrong, I've had hundreds of times where my veins are barely visible, but never did I groan after I had it done. Especially when her's was successfully done after the second "poke". For 30 minutes she moaned and groaned while being infused with saline BEFORE the remicade went in and her arm was fine, no swelling or irritation. Thank goodness my infusion is only an hour, I don't think I could take it any longer. I don't hear that much noise when I'm in the hospital!
Wellllllll........
On the positive side, the weight is up again, 78 kg (172lbs, 12 stone). It's taken 30 years, but I am finally back to the weight I was before I got sick!! I am definitely NOT the fitness level or muscle tone I once was, but I'll take it......for now.
At the clinic yesterday while getting infused, a lady came in to get her first infusion and OMG, the dramatics! You'd think she was being tortured or something.....just from getting the needle in. Now, don't get me wrong, I've had hundreds of times where my veins are barely visible, but never did I groan after I had it done. Especially when her's was successfully done after the second "poke". For 30 minutes she moaned and groaned while being infused with saline BEFORE the remicade went in and her arm was fine, no swelling or irritation. Thank goodness my infusion is only an hour, I don't think I could take it any longer. I don't hear that much noise when I'm in the hospital!
Wellllllll........
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
multi vitamins!!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
multi vitamins!!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Wednesday, December 6, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
pre-packed hospital bag !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
pre-packed hospital bag !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Tuesday, December 5, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
B12 !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
B12 !!!!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Monday, December 4, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
underwear !!!
Email me at crohnsltsd@gmail.com with what you'd like to see
underwear !!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Sunday, December 3, 2017
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find...
liquid iron !!!
Email me at crohnsltsd@gmail.com with what you'd like to see
liquid iron !!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Crohnie Advent Calendar
Opening the bathroom stall door this morning to find....
toilet paper !!!
Email me at crohnsltsd@gmail.com with what you'd like to see
toilet paper !!!
Email me at crohnsltsd@gmail.com with what you'd like to see
Crohnie Advent Calendar
That time of year again. The weather starts to get colder, the thicker coats come out, Christmas trees and lights go up and the advent calendars start to be opened.
I bring out my special Crohn's calendar and open a door each day. This year calendar looks like a large shopping mall with 24 public bathroom stall doors.....
Let's get this party started shall we...
Opening the first bathroom stall door to find....
prednisone !!!
Tune in each day to see what's behind each door.
Email me at crohnsltsd@gmail.com with what you'd like to see
I bring out my special Crohn's calendar and open a door each day. This year calendar looks like a large shopping mall with 24 public bathroom stall doors.....
Let's get this party started shall we...
Opening the first bathroom stall door to find....
prednisone !!!
Tune in each day to see what's behind each door.
Email me at crohnsltsd@gmail.com with what you'd like to see
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