Thursday, January 18, 2018

Remicade : Day 2003

Quick and easy infusion this time.  The nurse called me at home asking if I wanted to come in early as there was a cancellation, so naturally I took it.  I was the first one in so it was nice and quiet.
Weight up again, to 79.8 kg, which is awesome.  Not only because I look "healthier" but also, if I ever end up in hospital, there's some fat stores the disease can take! LOL

Thursday, January 11, 2018

You Might Be A Crohnie...

If you can look like a slim supermodel in the morning and look pregnant in the evening...
... you might be a Crohnie

Wednesday, January 3, 2018

Sunday, December 31, 2017

Happy Crohnie New Year

As we near the end of 2017 and enter into a new year, I want to wish everyone a happy and healthy 2018.
I guess I should say, "healthier" 2018. Us chronic illness sufferers will never be "healthy" unless a cure is found.
Having said that, I want to thank everyone that has read, contributed and/or commented on my blog.  We're all here to help one another get through whatever we are suffering from.
So, if you are suffering from Crohn's, UC, IBD or any chronic or invisible illness, my hope for 2018 is that your illness will be less painful or debilitating and that we all stay out of hospital

Happy New Year !!

Wednesday, December 27, 2017

You Might Be A Crohnie...

If you get to sip clear broth while everyone else stuffs their bellies with Christmas turkey, stuffing, etc. might be a Crohnie

Sunday, December 24, 2017

'Twas The Night Before A Crohnie Christmas

Every year for the past 12 years, I read Twas the night before Christmas to my kids on Christmas eve before they go to's the Crohn's Disease version that I don't read to my kids...
***warning: language***

‘Twas the night before a Crohnie Christmas, quiet as a mouse
Trying to get to the bathroom without disturbing the spouse.
The TP was hung by the toilet with care,
In hopes that I don’t run out whilst I sat there.

The children were nestled all snug in their beds,
I hope I’m not too loud lest I wake their sleepy heads.
And mamma in her ‘kerchief, and I in my cap,
But I had to get up, I needed to crap.

When out on the lawn there arose such a clatter,
I sprang from my throne to see what was the matter.
Away to the window I flew like a flash,
Still pulling up my underwear to cover my ass.

I live on the coast so there wasn’t any snow
Just dreary wet grass that I can see below.
When, what to my very tired eyes should appear,
But a miniature sleigh, and eight tiny reindeer.

A decrepit old driver, not lively or quick,
I knew in a moment it must be St Nick.
He didn’t look well, he must be inflamed,
But he whistled, and shouted, and called his reindeer by name!

"Now Crohns! Now, Colitis! Now, Pain and Grouch!
On, Abscess! On, Fistula! On, Ostomy and J-Pouch!
To the top of the porch! To the top of the wall!
Now dash away! Dash away! Dash away all!"

And then, in an instant, I heard on the roof,
The scratching and farting of that big, silly aof.
As I drew in my head, and was turning around,
Down the chimney St Nicholas came with a bound.

He was dressed all in fur, from his head to his toe,
He looked very fatigued, he moved really slow.
A bundle of toys he had flung on my chair,
He looked in pain, it must be a flare.

His eyes, how they squinted! His face quite scary!
He let out a fart, not pleasant or airey!
His droll little mouth was drawn up like a bow,
I was getting prepared, he was gonna let another one go.

The bags under his eyes, I saw his fatigue
That comes from living with this dam Crohn's Disease.
He had a broad face, (must be the Prednisone),
If he didn’t hurry, he would soon need the throne.

He was chubby and plump, a right smelly old elf,
And I laughed when I saw him, in spite of myself!
The moon face, mood swings and twitch of the head,
Soon gave me to know it was for sure the Pred.
He spoke not a word, but went straight to the bathroom,
And filled my toilet with a splat! and a KABOOM!
And laying his fingers, covering his nose,
Giving a nod, up the chimney he rose!

He sprang to his sleigh, he now weighed so much less,
He thanked me and apologized for the big mess.
But when I heard him exclaim, I realized he knew my plight,
“I have Crohn’s Disease too, it’s going to be one HELL of a night!!”

Merry Christmas everyone, hopefully it is disease-free. At least for one day

Crohnie Advent Calendar

Opening the last bathroom stall door this morning to find...

.... hope.

Merry Christmas and all the best for a happy and healthy 2018!

Saturday, December 23, 2017

12 Days A Crohnie Christmas

Every year I repost my 12 Days....make sure you sing it !!

On the twelfth day of Christmas my Crohn's Disease gave to me...

12 rolls of super luxuriously soft toilet paper
11 pairs of underwear,
10 Remicade infusions,
9 colonoscopies,
8 attentive and caring nurses,
7 types of medications,
6 different doctors and surgeons,
5 kidneyyyyyyy stonnnnnnnnes,
4 visits to the ER,
3 sleepless nights,
2 fistulating peri anal abscesses
and a flexible sigmoidoscopyyyyyyyyyyyyyy !! 

Merry Christmas everyone!

Make sure to come back tomorrow for my Twas the night before a Crohnie Christmas!!

Crohnie Advent Calendar

Opening the bathroom stall door this morning to find...

raspberry tea  !!!!!  (for those pesky kidneys)

Email me at with what you'd like to see

Friday, December 22, 2017

Crohnie Advent Calendar

Opening the bathroom stall door this morning to find...

 water !!!!!  (cuz you can never stay hydrated)

Email me at with what you'd like to see