You Might Be A Crohnie

If you start NAMING your peri anal abscess's...
you might be a Crohnie

Crohnie Quote of the Day

As I enter my 29th year since diagnosis I reflect back on what my surgeon told me after my first resection and he wanted me up and walking around. It's today's quote of the day...

The sooner you're up, the sooner you're out

Remicade : Day 1772

I forgot to post about my last Remicade infusion and again, not much excitement to it.
I go in, stuff my hand under a heating pad, crank it up to high to make the veins "pop", weigh myself, the nurse slides in the perfectly popped vein, get the infusion and done.
This time there was an older lady, she looked as if she was in her 80's, sitting across from me all curled up in a ball in the chair and all I could think about is....I don't have it so bad.
She looked like a little child sitting there curled up, skinny, frail, sleeping. I remember a time when I use to look like that.
I've been through a lot over the 30 years with Crohn's and after seeing her, I have to keep reminding myself that I don't have it as bad as some and in a way, I guess, I'm "lucky".

Special Thanks

I'm not one to "brag" or even give that impression, but I feel I need to give thanks to Healthline.com and Mytherapyapp.com for recognizing this blog.


Healthline.com as one of the Best Crohn's Blogs for 2017 and
Mytherapyapp.com for one of the top 19 IBD & IBS Blogs for 2017 (Top Gutsy Writers)


Just to be recognized amongst some of the best blogs out there is truly an honor for me.
The thought that this blog might be helping someone going through what I have spent almost 30 years doing, is truly humbling and I truly appreciate it.


Thank you from the bottom of my heart.


~Vern

You Might Be A Crohnie

If you pull a muscle while going to the toilet...
you might be a Crohnie

Crohnie Quote Of The Day

My life has changed, and I'm changing with it

-Sophie Kinsella

Crohn's Obituary *repost*

I posted this about 4 years ago and I thought I would repost it because today at work I got to thinking, "would I ever feel 'good' again?", "would there ever be a day that I can go out somewhere and not have to worry if I can even make it?" 

Would there ever be a day that Crohn's Disease....dies?

Here's what I would write as an obituary for the disease....

Crohn’s Disease, prominent bowel disease, died last night from complications of losing his soul mates Ileitis and Colitis. No one is really sure of his age, but according to written records, he was over 85 years old.

Asked about the loss of his dear friend, IBS, the soon to be obsolete and forgotten disease, described Crohn’s as complicated and was looked up to by other diseases of the body for his wide range of symptoms.

In the final days of his life, he revealed an unknown side of his psyche.  This hidden quasi-Freudian persona surfaced in the super-ego-like pursuit of his desire to be the number one disease.   

Sadly, the protracted search ended early Monday morning in complete and utter failure.  Yet even in certain defeat, the courageous Crohn’s secretly clung to the belief he was to live forever.

He is survived by IBS but has also come to the realization that soon another obituary will be written about him and will only survive in the pages of old medical journals.

Go Figure

***WARNING: POOP TALK***

Having Crohn's for almost 30 years, I'm still learning things.  The past few days for example.
I've been having bloating and pain, rushing to the toilet only NOT be able to go.  I have the feeling to go, but.....nothing.  Two days of anxiety, pain, bloating, worry and WTF!; today, I might have figured it out.
I didn't eat today except for some toast and tea in the morning trying to get my gut to relax.  Still running to the toilet...and nothing...again and again and again, sometimes 4-5 times in an hour.
Then the "ahhhhhhh" moment tonight.  Not only because I finally went, but probably the reason why.
Ninety-nine percent of the time, it's water, but this time it was semi formed!!  I haven't had that in decades!  Which is why I was hurting I think.  What's left of my large intestine couldn't handle the non watery stool.
The lack of pressure now is such a relief, to the point where I can actually sit down!!
Welllllllll, except for the peri anal abscess, but that's another story.
 

You Might Be A Crohnie

If you have the energy of a sloth but can still get to the toilet in under 3 seconds...
you might be a Crohnie

You Might Be A Crohnie

If you constantly adjust your belt notches throughout the day
...you might be a Crohnie