Monday, January 23, 2017

Crohnie Quote Of The Day

In order to stand on your own two feet again, you first have to get off your ass

Wednesday, January 18, 2017

You Might Be a Crohnie

If trying to eat healthy means NOT going for the salad...
you might be a Crohnie

Tuesday, January 17, 2017

Crohnie Quote Of The Day

That sudden awful guilty feeling when your child says to you, "my tummy hurts"

Thursday, January 12, 2017

Crohnie Quote Of The Day

Some days you want to go out with family or friends and that's great, but some days you just want to stay home and relax on your own.....and that's okay too.

Wednesday, January 4, 2017

Remicade : Day 1625

Well, Happy New Year everyone.  It's a new year, but the same old disease.


A little hard time getting the IV in this time and the only thing I can think of as to why, is the cold weather.  Even though I wear a glove on my left hand (yes even in the summer) and us the heating pad, she still had a hard time finding a good vein.  But that is the life of the Crohnie right?!
Today was my 40th infusion, almost 5 years now, and the only regret I have with Remicade is that I didn't start it the 2-3 years prior, when my Gastro suggested it.


Oh well, its working now and that's all that matters.

Saturday, December 24, 2016

'Twas The Night Before a Crohnie Christmas

Every year for the past 11 years, I read Twas the night before Christmas to my kids on Christmas eve before they go to bed....here's the Crohn's Disease version that I don't read to my kids...


‘Twas the night before a Crohnie Christmas, quiet as a mouse
Trying to get to the bathroom without disturbing the spouse.
The TP was hung by the toilet with care,
In hopes that I don’t run out whilst I sat there.

The children were nestled all snug in their beds,
I hope I’m not too loud lest I wake their sleepy heads.
And mamma in her ‘kerchief, and I in my cap,
But I had to get up, I needed to crap.

When out on the lawn there arose such a clatter,
I sprang from my throne to see what was the matter.
Away to the window I flew like a flash,
Still pulling up my underwear to cover my ass.

I live on the coast so there wasn’t any snow
Just dreary wet grass that I can see below.
When, what to my very tired eyes should appear,
But a miniature sleigh, and eight tiny reindeer.

A decrepit old driver, not lively or quick,
I knew in a moment it must be St Nick.
He didn’t look well, he must be inflamed,
But he whistled, and shouted, and called his reindeer by name!

"Now Crohns! Now, Colitis! Now, Pain and Grouch!
On, Abscess! On, Fistula! On, Ostomy and J-Pouch!
To the top of the porch! To the top of the wall!
Now dash away! Dash away! Dash away all!"


And then, in an instant, I heard on the roof,
The scratching and farting of that big, silly goof.

As I drew in my head, and was turning around,
Down the chimney St Nicholas came with a bound.

He was dressed all in fur, from his head to his toe,
He looked very fatigued, he moved really slow.

A bundle of toys he had flung on my chair,
He looked in pain, it must be a flare.

His eyes, how they squinted! His face quite scary!
He let out a fart, not pleasant or airey!
His droll little mouth was drawn up like a bow,
I was getting prepared, he was gonna let another one go.

The bags under his eyes, I saw his fatigue
That comes from living with this dam Crohn's Disease.

He had a broad face, (must be the Prednisone),
If he didn’t hurry, he would soon need the throne.


He was chubby and plump, a right smelly old elf,
And I laughed when I saw him, in spite of myself!
The moon face, mood swings and twitch of the head,
Soon gave me to know it was for sure the Pred.
He spoke not a word, but went straight to the bathroom,
And filled my toilet with a splat! and a KABOOM!

And laying his fingers, covering his nose,
Giving a nod, up the chimney he rose!

He sprang to his sleigh, he now weighed so much less,
He thanked me and apologized for the big mess.
But when I heard him exclaim, I realized he knew my plight,
“I have Crohn’s Disease too, it’s going to be one HELL of a night!!”
 
Merry Christmas everyone!!

Crohn's Advent Calendar - Day 24

Opening the final toilet seat door this morning to find...


it empty....because one day this door will be filled with a cure


Merry Christmas !!

Friday, December 23, 2016

Thursday, December 22, 2016