Tuesday, March 13, 2018

You Might Be A Crohnie...

If having 20 bowel movements a day.....is a slow day
...you might be a Crohnie

Wednesday, March 7, 2018

You Might Be A Crohnie...

If you consider yourself a guinea pig when it comes to figuring out what you can eat day to day
...you might be a Crohnie

Friday, March 2, 2018

Remicade : 50th Anniversary

Day 2047 of Remicade (5 years, 7 months and 6 days) and my 50th infusion of this "miracle drug".

For me, anyway.

It's done wonders for my Crohn's symptoms as far as pain, inflammation and weight are concerned, but I still have some peri anal issues to deal with as well as side effects from the medication. Psoriasis on my scalp has been something I have been trying to deal with for almost 2 years now. 
It started as a small patch right at the crown but has spread to the front.  Not so much of the plaque kind anymore, just very dry, itchy and sometimes bumpy.  Along with it comes the loss of hair of course which has been something to get used to.  I have always had thick hair and I still do except it's thinning out on top.  I wouldn't mind it so much if it wasn't so dry and flaky, I could just shave my head....but I can't do that right now.
I am currently trying a mixture of tea tree and coconut oils every couple of days which helps, but not 100% effective.  I think I might need to go back to some kind of steroid, but whatever works, eh?!

Either way....happy Remicade anniversary to me!!

Saturday, February 17, 2018


I can't even begin to tell you how many multi vitamin brands I've tried over the years.  Too many to count on two hands, let alone one.
They would usually either cause me pain or discomfort, or pain AND discomfort.  So generally I wouldn't take them.  I would take Vitamins B, C, D, E, and the rest of the alphabet....separately and not even all at once.  Some I would take one day, others another day and so on and so on... I almost needed a chart to help me keep track of what I was taking and when.
That was until just about a month ago when my wife asked me to try a multi vitamin she got from our Chinese medicine Dr friend that we now both see.  I try lots of things, so why not.  Not only did I not have any pain or discomfort, I found that it strengthened my hair, nails and even raised my energy....a little...
They are derived from fruit and vegetables....that's it. I'm guessing all the "fillers" that are in the main stream multi vitamins were causing all my problems.
Other than the fatigue all the time and the usual Crohn's related "issues", things seem to be turning in the right direction finally.

Thursday, February 8, 2018

Colonoscopy Superstar

Next time I get either a colonoscopy or sigmoidoscopy, I'm going to have my wife film the aftermath.
Why..?? Because I don't remember anything that either I said or did, or anything anyone said to me.
I always get sedation for any scopes and my gastro makes sure I don't feel a thing.  So much so, what I do or say could make me a YouTube star!
This morning my wife told me all about what happened and I had no idea. Starting with when I came to, she said she had to help me get dressed and cleaned up and when she went to clean off my leg, I put my hands on the wall, spread my legs and said "book em Danno!". Things like that I need to see!! I also was telling her how they didn't want to give me sedation....don't remember.  Also something about if she could avoid speed bumps....yep, don't remember.
The only thing I DO remember, was going into the room, talking with my Dr, they were discussing what meds to give me for sedation, I said "all of them", she gave me the meds, I said "goodnight, make sure I wake up"....... then I was home in bed.  I don't remember anything in between.
Groggy today, but I would LOVE to see video.  I get scopes once a year, so next year I'm going to make sure she gets it so I can become a Crohn's "superstar!!"  LOL

Wednesday, January 31, 2018

You Might Be A Crohnie...

If you can teach your children the alphabet by the different vitamins you take...
...you might be a Crohnie

Monday, January 22, 2018

You Might Be A Crohnie...

If you own just one belt AND have added extra notches not only for weight gain / loss, but also for bloating just throughout the day
...you might be a Crohnie

Thursday, January 18, 2018

Remicade : Day 2003

Quick and easy infusion this time.  The nurse called me at home asking if I wanted to come in early as there was a cancellation, so naturally I took it.  I was the first one in so it was nice and quiet.
Weight up again, to 79.8 kg, which is awesome.  Not only because I look "healthier" but also, if I ever end up in hospital, there's some fat stores the disease can take! LOL

Thursday, January 11, 2018

You Might Be A Crohnie...

If you can look like a slim supermodel in the morning and look pregnant in the evening...
... you might be a Crohnie

Wednesday, January 3, 2018