Tuesday, May 28, 2013

Crohn-fucius Say......

I'm channeling my inner wisdom and introducing you to Crohn-fucius

Crohn-fucius say, pain in ass is literal, not figurative
Crohn-fucius say, may your toilet roll always be full

Saturday, May 18, 2013

New Drug, A Crohn's and Colitis Breakthrough...????

Looking over the Internet, I came across an article about a new drug that's in Phase III of research and could be available within the next couple of years.  The drug is called Vedolizumab and I found out about it through a newspaper article in The London Free Press in London, Ontario, Canada.

As a Crohnie, I get "excited" about news of a new drug, or drugs, to help treat this awful disease.  BUT at the same time, I am very wary and don't get my hopes up until I see results.

Fingers crossed...

Friday, May 17, 2013

Funny Thing Happened At The GI Office.......

I had my 6 month check up with my Gastro this week and basically....I still have Crohn's.

During my 15 minute chat, I discovered that I was actually contributing to my dehydration.  Yea, go figure.  Here all this time, I've been drinking tons of water, but I was forgetting one important thing.....I also need salt.  Yep, salt.  And when you think about it, it's true.  When you go in to hospital and they re-hydrate you, they give you basically salt water.  And all these years I've been avoiding salt.  Well you learn something everyday and after over 20 years of Crohn's, apparently I'm still learning.  So, now I snack on saltine's (with peanut butter) and a shake (or two) of salt on my dinner.  I still have to drink though as well.   I'll let you know if it works.

She can see from the tests that the Remicade seems to be working for the most part.  It has eliminated the pain but I still haven't gained weight.  Then she proceeded to tell me that I may have "topped out" at my current weight.  I may never get bigger than I am.  She recommended Carnation Instant Breakfast, but also made suggestions on different ways of using it, like in yogurt, soups etc.  Even watering down Boost and drinking it throughout the day instead of all at once.  I find that if I drink one of those little bottles, I'm heading to the bathroom and "urinate out my ass"!  So it looks as though I'm going to be stuck at 145 - 150lbs.

Other than that, I'm going to get my colon scan in Sept to get a closer look to see if the Remicade is working......let's hope.  Last time, which was almost 2 years ago, she couldn't even get the tube inside a few inches from all the inflammation and scarring. 

Let's hope there's light at the end of the tunnel.

Thursday, May 9, 2013

Crohnie Quote Of The Day

The best thing about the warm weather?  The warm toilet seat in the morning.


Saturday, May 4, 2013

Crohnie Quote Of The Day

Sometimes good things fall apart, so better things can fall together.


Wednesday, May 1, 2013

Remicade : Day 281

Closing in on a year of Remicade and I do feel better, but I still have 'minor' problems like abscesses and I ache all over.  Especially in the muscles and joints, to the point where it makes it difficult to walk sometimes.  I see my GI in a couple of weeks so maybe she has an idea what's going on or maybe my infusions get switched to every 4 or 5 weeks.  The problems always seem to get worse as the infusion nears....

well now I'm all filled up with the 'liquid gold' and now let's feel good for another 6 weeks, til the next fill up.