Friday, November 24, 2017

You Might Be A Crohnie

If "going out" for a couple of hours, takes days to prepare
... you might be a Crohnie

Monday, November 20, 2017

You Might Be A Crohnie

If you often feel like a pin cushion
... you might be a Crohnie

Remicade Levels

Saw my Gastro this morning, my 6 month check up, this time I came with a list.
My Remicade levels are smack dab in the middle, which is great. She seemed happy.  Had my results from MRI and it shows that there is no "significant difference" than my last one in 2015, though shes worried about maybe a tumor "hiding" behind scar tissue.  I need to go for a sigmoidoscopy every year now instead of every two years.  The good news is there is no inflammation showing...yay....just scar tissue and significant perianal disease.

Today was the day I was suppose to have ostomy surgery but I had cancelled it.  I didnt NEED the surgery, just the surgeon recommended it as there is no way to fix my perianal disease.  It doesn't mean I wont have the surgery one day, just not today.  Its taken me 30 years to be comfortable and accustomed to my way of life, I dont want to start again right now.  Many reasons, but the main one is mentally, I'm not ready

So, other than the Crohn's disease, perianal disease, anal stricture, joint pain, scalp psoriasis, fatigue, etc.....I'm good.

Tuesday, November 14, 2017

You Might Be A Crohnie...

If you have read every magazine at the doctor's office and get excited when new ones arrive might be a Crohnie

Tuesday, November 7, 2017

Thank you!

Along with some other great IBD bloggers, this blog was noticed by Medical News Today as one of the top 10 Crohn's Disease blogs.
Its great to be noticed and am happy that others are getting something from what I have to say about a disease no one wants to talk about.  Having said that, with my fellow bloggers, more and more IBD is coming to the fore front to get it out there, to eliminate the stigma. 
It's not just a "pooping" disease, there is so much more.

Thanks to Medical New Today !!