Tuesday, October 28, 2014

Remicade: Day 826

When you think about all the time I sit in the big black faux leather Lay-Z Boy, soaking up the $4000 freezing cold "juice" for 2 hours at a time, every 6 weeks.....I've been sitting in that chair for 19,824 hours...to date...and still going strong.

This day I weighed in the heaviest I have in awhile, 72.7 kg. (160lbs)  Funny, I don't FEEL heavier, but my pants are tighter around the waste these days.  Is it the Remicade?  could be....
One thing IS for sure, I don't regret starting the drug even with the possible side effects.

Bring on the fat-pants!!!

Tuesday, October 21, 2014

Monday, October 13, 2014

Happy Thanksgiving !!

That time of year again, and the season of
"all the food I'm not suppose to eat, but I'm probably going to"
It's Canadian Thanksgiving today and we're having all the family over to enjoy the company and the food.  Turkey, potato's, stuffing, carrots, brussel sprouts, cranberries, gravy, etc.  So, having said that, realistically, I SHOULD eat, the potato's, stuffing and gravy.  Why?  Cranberries go right through me, carrots (unless they are cooked right down to almost mush) cause blockages sometimes for me, brussel sprouts and turkey are gaseous causing food.
So, of course, I will eat it all and pay for it later =)

Happy Thanksgiving to all my family and friends.  Even with this disease, I have a lot to be thankful for.


Saturday, October 4, 2014

Crohnie Quote Of The Day

I have had Crohn's Disease since I was 19 years old.....
which means I haven't been "regular" for more than half my life.


Friday, October 3, 2014

Crohn's and Vacation

I get questions about how to deal with Crohn's and travelling.
Well, I just had my first vacation in over 10 years.  My last vacation was to England and it was not a good experience.  It involved doctors, pills and a very large abscess.  Not to mention the 10 hour plane ride home....not a good time.
This time, I took my family to Disneyland.  We spent 8 days in Disneyland, SeaWorld, Legoland and California Park.  We had a great time, but......

Basically for breakfast I had white toast with peanut butter and a cup of coffee (brewed coffee, not instant), everyday
Skipped lunch, everyday, but had a protein bar.
Regular dinner.
Lots and lots of water.  I brought my Brita bottle with me so I could fill whenever I wanted.

It was very hot (for me) and after 2 days of walking around Disneyland I was done and I started to develop a perianal abscess.  I missed SeaWorld so my wife took my 2 boys without me.  I felt so bad for them as they wanted me to go, but thought it best that I rest.  They understand about my illness and I appreciate that, but doesn't make it any easier for me about disappointing them.  The next 2 days were Legoland and California park, both of which I have never been.
Thankfully I felt better after the rest and had no problems the following 2 days.  I was still tired by the end of each day, but I had also brought my B12 pills with me which I think helped a lot. 
We did Disney again the next day and my wife took them again to California park the day we were leaving whilst I stayed at the hotel to finish the packing she started.
I'm thankful for an understanding wife and family.  I felt awful inside that I couldn't do all the things my kids wanted me to do, but at the same time, they know that I just can't.

Ironically, I didn't lose any weight while gone for 8 days.  I thought for sure I would....but didn't.  Skipping lunch and only having toast with peanut butter, I didn't feel hungry.  Maybe the protein bars helped, who knows.

Would I do it again?  Hell yes....