Friday, October 3, 2014

Crohn's and Vacation

I get questions about how to deal with Crohn's and travelling.
Well, I just had my first vacation in over 10 years.  My last vacation was to England and it was not a good experience.  It involved doctors, pills and a very large abscess.  Not to mention the 10 hour plane ride home....not a good time.
This time, I took my family to Disneyland.  We spent 8 days in Disneyland, SeaWorld, Legoland and California Park.  We had a great time, but......

Basically for breakfast I had white toast with peanut butter and a cup of coffee (brewed coffee, not instant), everyday
Skipped lunch, everyday, but had a protein bar.
Regular dinner.
Lots and lots of water.  I brought my Brita bottle with me so I could fill whenever I wanted.

It was very hot (for me) and after 2 days of walking around Disneyland I was done and I started to develop a perianal abscess.  I missed SeaWorld so my wife took my 2 boys without me.  I felt so bad for them as they wanted me to go, but thought it best that I rest.  They understand about my illness and I appreciate that, but doesn't make it any easier for me about disappointing them.  The next 2 days were Legoland and California park, both of which I have never been.
Thankfully I felt better after the rest and had no problems the following 2 days.  I was still tired by the end of each day, but I had also brought my B12 pills with me which I think helped a lot. 
We did Disney again the next day and my wife took them again to California park the day we were leaving whilst I stayed at the hotel to finish the packing she started.
I'm thankful for an understanding wife and family.  I felt awful inside that I couldn't do all the things my kids wanted me to do, but at the same time, they know that I just can't.

Ironically, I didn't lose any weight while gone for 8 days.  I thought for sure I would....but didn't.  Skipping lunch and only having toast with peanut butter, I didn't feel hungry.  Maybe the protein bars helped, who knows.

Would I do it again?  Hell yes....



Cj said...

" it again?" HEAVENS YES!

You go man!
Enjoy all that you can!

Jack Mercury said...

Be sure to check out my posts about vacationing with Crohn's!!!

Vern said...

I have in the past and I do/did many of the things you mention

Los Angeles Hospice Care said...

You got a positive attitude! Yes enjoy your life

Michele Lea Morin said...

I go on my solo trips if I have a break in my symptoms. I just take off to Yosemite and Taho and the Pacific coast whenever I am able. Photography is my passion. Instead of worrying or anxiety about return of symptoms, I just take everything in the moment, or I would never leave home. Some of my best times ever. You cannot give in, or give up.

Vern said...

Thanks Michele! and LA Hospice

ron said...

My heart goes to those who suffer with disease and yet still find ways to keep moving forward and pushing to strive on,I would like to see some more information like this, keep moving forward

Michele Lea Morin said...

45 years with Crohn's. I dislike unsolicited advice so all I will say is keep your humor, do it with grace, and it's okay to not do it so well some days. Just don't stay stuck there.