Friday, March 20, 2015

New Crohn's Drug !!

A promising new drug treatment for us...from the New England Journal of Medicine....specifically a new oral drug, Mongersen.  It's just in the clinical stage, but results are promising.

I love when they come up with new treatments !!!!

Thursday, March 19, 2015

Crohnie Quote Of The Day

"Having Crohn's is like having an extremely bad case of the flu......except you throw up out your ass"

*please note that by no means am I saying Crohn's is like the flu

Wednesday, March 18, 2015

Crohn's Inspired Tattoo's

Do you have a Crohn's inspired tattoo..??  Want to inspire others with your tattoo..??
All you have to do is send in a clear photo of your tattoo +  a short description, with the subject “My Crohn’s tattoo,” to
They'll feature the tattoos on the Healthline website and help inspire others with Crohn's Disease by those who aren’t afraid to let the world know that they’re survivors.

Click the link to get more information

Share 'em if you got 'em !!

Wednesday, March 11, 2015

Crohns Tips

Did you know that the emulsifier, polysorbate 80, is in the flu vaccine you get every year...??


Found this interesting article about a study that was recently published out of the US about emulsifiers and IBD.
Specifically the additives CMC and polysorbate 80.....time to REALLY change my diet!

Friday, March 6, 2015

Crohnie Quote Of The Day

1 teaspoon (of ice cream) = 4 minutes (until I'll have to go to the toilet)

Tuesday, March 3, 2015

Remicade : Day 952

Once again I drive the 20 minutes to the clinic, wearing my one glove on my left hand, with my iPad, wordsearch, glasses, pen and hard candy laying in the passenger seat along with the blue bag of "juice".
This trip to the clinic there aren't that many "Crohn's problems" other than the usual aches and pains.  Though I am very uncomfortable as I pulled something in my back moving a plant pot believe it or not.  All this is minor compared to what others go through each and every day.  The more this disease takes from me, the more I see it all pointless to complain.  Yes, I have problems with eating, drinking and I go to the bathroom WAY more than the 'normal' person.  I'm fatigued all the time, pain some of the time, but I have a strong heart, lungs,......well that's about all I have strong.....
Then yesterday I watched the Ellen show and saw again Tayt.  He needs a new heart.  But watching this little guy, makes me want to shake my head for the times I feel "sorry" for myself in having this disease.  See for yourself...

If you ever feel down, just watch this guy...