Saturday, March 24, 2018

200,000 Thank You's !!

I noticed today that this blog has surpassed 200,000 page views !!
I can only say, thank you!! 
What started out as a simple page for me to vent a little has turned into something bigger than I could have imagined.
Thanks to all that have visited, contributed, emailed and commented over the years.  Its nice to see that people like what I have to say.  Its also nice to know that I may have helped a little in their journey with Crohn's, Colitis and IBD in general.
I enjoy sharing my thoughts, ideas, art and humor (sarcastic as it may be).  I am still working on a book and my venture into vlogging with my "You Might Be A Crohnie".  We'll see.

This is one of the times I am a loss for words.  I am grateful and humbled by all the people that have stopped by for a visit.

Thank you.

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Wednesday, March 21, 2018

Crohn's Can Be Cruel

I am finding lately that I am able to DO more than I have for a while.
This, of course, is great!  I put it down to Remicade, new vitamins and light workouts (mainly core).  So naturally I want to do things around the house, outside, etc.  Last weekend was great weather.  Sun was out, highs of 15 C, the family and I were outside cleaning out "crap" from our shed and garage and had some fascia boards to paint.  Sucking up all that Vitamin D from the sun felt good.
But, Crohn's can be very cruel.  I was doing so much, that for awhile I forgot about being "sick".  That was.....until a few hours later when, BAM! Crohn's shuts that feel good door right in my face.  I started to feel like I just ran a marathon.  My mouth was dry (dehydrated), aches and pains in arms, legs and back and I felt like I could sleep for a month.  I kept yawning and stretching over and over again, so my brain was tired too.  Then after a little while longer, nausea set in. 
The big mistake I did was to lay down because of the nausea.  I did not want to get up. When I tried, it was difficult.  In hind site, I probably should have had a bath with Epsom salts, but that's neither here nor there.
This is something new for me after all these years.  Crohn's feeds me that line with good health as the bait, I just need to be more cautious when I "bite"......

....but who wants to be cautious.

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Tuesday, March 13, 2018

You Might Be A Crohnie...

If having 20 bowel movements a day.....is a slow day
...you might be a Crohnie
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Wednesday, March 7, 2018

You Might Be A Crohnie...

If you consider yourself a guinea pig when it comes to figuring out what you can eat day to day
...you might be a Crohnie
.

Friday, March 2, 2018

Remicade : 50th Anniversary

Day 2047 of Remicade (5 years, 7 months and 6 days) and my 50th infusion of this "miracle drug".

For me, anyway.

It's done wonders for my Crohn's symptoms as far as pain, inflammation and weight are concerned, but I still have some peri anal issues to deal with as well as side effects from the medication. Psoriasis on my scalp has been something I have been trying to deal with for almost 2 years now. 
It started as a small patch right at the crown but has spread to the front.  Not so much of the plaque kind anymore, just very dry, itchy and sometimes bumpy.  Along with it comes the loss of hair of course which has been something to get used to.  I have always had thick hair and I still do except it's thinning out on top.  I wouldn't mind it so much if it wasn't so dry and flaky, I could just shave my head....but I can't do that right now.
I am currently trying a mixture of tea tree and coconut oils every couple of days which helps, but not 100% effective.  I think I might need to go back to some kind of steroid, but whatever works, eh?!

Either way....happy Remicade anniversary to me!!