Sunday, June 30, 2013

Crohn-fucius Say...

Crohn-fucius say...eating 'ice cream' on a hot day, will make your 'ass scream'


Wednesday, June 26, 2013

Wednesday, June 19, 2013


This is the Probiotics I use and have found, through trial and error, that these work "for me".
They may not work for you.  I have also found that I cannot take what they say on the packaging, which is one to three caplets a day.  I take one caplet every three days.  If I take more than that, it causes discomfort from bloating and gas, BUT, they work.  Doctors say, for 'normal' people, to take the probiotics that are 25 - 50 billion active cultures or CFU's....these are only 1 billion per capsule.
Again though, you need to find what works for you, these are what work for me.

Crohnie Quote Of The Day

 “If you do the little things well, you’ll do the big ones better.”


Saturday, June 15, 2013

Wednesday, June 12, 2013

Remicade : Day 323

Closing in on my 1 year anniversary.
Had to have my infusion at a different site today as my usual site didn't have a doctor on site.  Though I had my regular nurse today.  But, not my usual infusion.  She wasn't able to get a vein.  Now, for those of us that have had numerous upon numerous IV's, hearing and seeing that the nurse isn't able to get a vein, is....well.....uncomfortable to say the least.  She tried twice in one hand.  It's not so much the needle going in, it's the 'digging around' (as I call it) that gets painful.  I ended up suggesting I put my other hand under the hot water tap to bring out the veins.  The heating blanket wasn't working, but the hot water certainly did and she had no problem getting it in on my other hand.
Two hours later and I'm outta there and resting at home.  Even as I write this, I can't stop yawning and trying to keep my eyes open.  Early night, gotta get up for work in the morning....

Monday, June 10, 2013

Hitting The Wall

"In endurance sports such as cycling and running, hitting the wall describes a condition caused by the depletion of glycogen stores in the liver and muscles, which manifests itself by sudden fatigue and loss of energy."

Now, I have never run a marathon or competed in the Tour de France, but it sure feels like it today for instance.  You know that feeling...where your mind says keep going and your body says yeeeeah, right, I don't THINK so.
I work as a general maintenance technician....that's the fancy description for jack of all trades.....and I pretty much "do" anything I can to help the complex I work in (250+ townhouses), well...basically....function.  You name it, I've pretty much done it, or tried it.  I'm a garbage man, IT tech, painter, electrician, mason, brick layer, carpenter, landscaper, politician, etc., etc.  I have a great boss, that has an understanding of my disease and tries to accommodate me the best she can.  I've worked there for 10 years now, but recently I've been slowing down a bit and have changed my duties a little, to less of the heavy work to more lighter duties. 
I have less than 2 days til my Remicade infusion and I have been getting tired lately.   Everything was going pretty well today until about 230 - 3pm, when I basically "hit the wall".  I had to sit down, I was tired, out of breath, had to have something to essence - exhausted.
She sent me home a little early - I needed to lay down and rest - to recharge.
It was the weirdest feeling, and yes, I've felt it before, but I've noticed that as I get closer to infusion day, I get tired.  BUT even after infusion, the infusion itself is exhausting, and I'm still tired.
I've started on these new protein bars for Crohn's sufferers, the SimplyBar, but I've only had a few and I'm hoping the high protein will help, the more I eat.

So, when you get sooooo tired you have to take a break, do it.  Get a drink, eat something and rest.  It's your body saying, "HEY! I'm getting tired here, can we stop now, please?!"

Thursday, June 6, 2013

Wednesday, June 5, 2013

Wellness Coupon

Wellness Foods let me know, to let everyone else know, that you can get 20% off your first order is you use the coupon code - SimplyShop

Thanks Wellness Foods!!
Had the Peanut Butter and Chocolate SimplyBar today....yumm and NO tummy troubles!!

Monday, June 3, 2013

Wellness Foods

Have any of you Crohnies heard of "TheSimplyBar"?
It's amazing!  A protein bar invented by someone with Crohn's for people with Crohn's...AND tastes great!!!

In Canada, go to to learn more and here to find out where you can buy them.

All I can say is, yum!!  and thanks! to them

Sunday, June 2, 2013