Tuesday, October 29, 2013

Crohn-fucius Say...

Crohn-fucius say... when the goin' gets tough, have a liquid diet and lay on the couch


Thursday, October 24, 2013

Crohn's-Inspired Tattoos

Check out these inspiring Crohn's tattoos at healthline.com





I have found since my infusions started over a year ago, that I get very tired afterwards.  It lasts for a few days, has anyone else found this??
I like the fact the infusions are working and am no longer taking meds everyday (except for 3 pills at night), but don't like that I'm bagged afterwards.

You know you're tired when.......you're too tired to even play Candy Crush.


Wednesday, October 23, 2013

Remicade : Day 456

Lady Remicade still going strong throughout my body.  After my last colonoscopy 6 weeks ago, my abscesses "disappeared" and started to reappear just the past few days, which is nice.  I mean, not have to worry about it and not worry about the pain.  6 weeks til the next infusion.  Maybe I'll take me camera this time so you can see just how small of a room it is.....

Tuesday, October 22, 2013


New artwork from 'the studio'

I went a little different than my usual and combined acrylic, oil and spray paint and came up with



Sunday, October 20, 2013

Blood Test For Crohn's???

They have discovered a simple blood test for determining whether you have IBS or IBD.  Could it be soon they will have a test for Crohn's? 

Too late for me.......but maybe for my children.

One step closer....



Friday, October 18, 2013

Crohnie's VS Non-Crohnie's

Please, please, pleeeease.....if you DON'T have Crohn's Disease or IBD, then don't say...

"I know what you're going through"

Because I am here to tell you, you have no friggin' idea !!
Just because you have an upset stomach or you have some diarrhea ??  really!?
Uhhhh...it's NOT the same, sorry.
Throw some pain in there, like the kind of pain that makes you curl up in to the fetal position, AND having diarrhea, 10-15 times.....in an hour.....AND never knowing when you will end up in hospital at any moment...
....then, maybe, you're about a tenth closer to  "knowing what I'm going through"

So, no offense, but think before you speak!



Monday, October 14, 2013

Crohn-fucius Say...

Crohn-fucius say... how does a Crohnie avoid eating turkey at Thanksgiving?

......he eats ham.


Saturday, October 12, 2013

The Gut Microbiome

A few days ago I received an email from Kei Fujimura asking about doing a video conference regarding my Crohn's.  She's a PhD at the University of California San Francisco in the Division of Gastroenterology.
If she contacts you, please help her out and answer just a few questions on your Crohn's or IBD.  She's trying to understand "customers needs" when it comes to IBD patients.  It was a pleasant conversation and only 15 - 20 minutes long.
Any help with IBD will go a long way!!

Thanks Kei!

Wednesday, October 9, 2013

Crohnie Quote Of The Day

I have Crohn's, but I figure that it's just using my body, hitchin' a ride for a while....until something better comes along.


Tuesday, October 8, 2013

Wednesday, October 2, 2013

Filtered Water

You know, Brita should hire me as a "brita barometer".

Simply by drinking water, I can tell when it's time to change the filter.  After 20 years of drinking only filtered water, my Crohn's will start acting up when the Brita filter has stopped working and I'm basically drinking straight tap water.  Generally, the filter says it should be changed every 2 months.  Well, not in this house.  We use the water so much, that it needs to be changed at least once a month.  No need to mark it on the calendar or adjust the dial showing which month it needs to be changed.....just ask me and my Crohn's. 

It knows....it always knows.