Tuesday, January 28, 2014

Sunday, January 19, 2014

Friday, January 17, 2014

Remicade : Day 540

Closing in on a thousand days.  It's helped a lot as far as pain is concerned, but I still get abscesses/fistulas, in what I can only describe as the "oddest" places. 
So when people ask me if it's working, I have to say 'yes'.  Do I wish it did more..?  Of course.  But I wouldn't change a thing and only wish I had taken my specialists' advice and started the Remicade years earlier.


Tuesday, January 14, 2014

A Day In The Life?

5:50 am and the alarm bell rings.  Time to get up. 
The mind says, "get up", but the old weary body, says, "not yet, just a few minutes more."
But, it's time.
You push yourself up, muscles aching, bones cracking, into a sitting position on the edge of the bed catching your breath.  Force yourself up to the standing position and shuffle your feet along the carpet towards the bathroom, holding your lower back, to have a shower.
You prop yourself against the counter and gaze in to the mirror barely opening your eyes to see a tired weary face squinting back.  A couple of deep, deep breathes make you feel a little better but your shoulders, arms, neck, knees, back and the worst are your elbows, which ache like the tin man without oil.
Is this the morning ritual of a 75 year old man?


....it's the first 10 minutes of the day for a 45 year old Crohn's survivalist, the days before infusion.


Wednesday, January 8, 2014

Crohnie Quote Of The Day

"The only normal people you know are the ones you don’t know very well."