Wednesday, November 27, 2013

Crohn's and Star Trek

You might be asking yourself what has Crohn's got to do with Star Trek?
Well, I was watching Star Trek Next Generation and started to laugh at the end of the opening monologue where they say..."to boldly go where no one has gone before"...
I laughed because "to boldly GO..", so of course, being who I am, I automatically thought of going to the bathroom.
So, I came up with my own monologue for me and my Crohn' the context of Star Trek,,

Crohn's, The Inflammatory Bowel Disease
These are the experiences of the Crohnie, Vern
His ongoing mission
To explore strange new bathrooms
To seek out new toilets and new bidets
To boldly GO where no one has gone before....

(insert music here)


Sunday, November 24, 2013

Crohn's Survey

Hey there fellow Crohnies.  A fellow Crohnie in the UK is  creating a program for women living with chronic bowel disorders and would like you (women) to fill out a survey to help.

"I am a life coach and am creating a 6 month program designed for women living with chronic bowel disorders who have lost their mojo along the way! (Loss of femininity, sexuality, body confidence, ability/desire to be physically intimate for example)
I have had Crohn's for 25 years, pretty bad for the most part. I have battled with depression, low self esteem, poor body image, low sex drive, problems with intimacy in relationships etc etc for many years due to the effects of the disease.  A lot of it boiled down to a lack of information and support.   Luckily, past 2 years on Humira, finally well. "

Here's her link...

Thanks Sasha...good luck!


You Might Be A Crohnie If...

If you have 101 different positions to sit on a toilet...
you might be a Crohnie.


Saturday, November 9, 2013

You Might Be A Crohnie If...

If you say the phrase "ahhhhhh, shit!" and mean it, literally...
you might be a Crohnie


Thursday, November 7, 2013

You Might Be A Crohnie If...

If the only thing about your colonoscopy you worry about is whether the video will go viral...
you might be a Crohnie


Monday, November 4, 2013

Colonoscopy Results...Something To Think About

Had my Gastro appointment today and we discussed the results from my colonoscopy back in September.
The usual chit chat about how I am, have I been taking my B12 shots, etc.  I didn't know that if my toes and fingers get a tingling sensation, and I'm low in B12, it's possible to have that feeling permanently.  Then the results...apparently they had to double dose me on the meds to put me in a deeper sleep.  When she tried to go in with the amount of inflammation I have, I was uncomfortable and she gave me more.  That explains why I have absolutely no recollection of coming home from the hospital that day.  I was put out and I awoke at home. 
So, she got past the inflammation and hit more inflammation at about 10cm, got past that and it was clear until about the 20cm mark where she had a bit of trouble but got past that, then all clear.
It's the two points of inflammation she's concerned about and maybe she thinks it would be best to remove it all and have "the bag".
"The bag", the two words many of us crohnies dread to hear.  She believes that it would be the best thing, even though it's not "needed" right now.  I will need to go for the sigmoid-oscopies every year to double check the inflammation, but "the bag" is on the table.
At my age, it might be time to seriously think about it....

........something to think about.