Saturday, September 29, 2012

New Piece

From the "studio", I went back to abstract basics.....

....working on another....

Thursday, September 27, 2012


I've had a few people ask me about any newer pieces of the artwork I'm doing....well...the answer is not since May, BUT, I am working on one currently.
I have also had a few people ask me if they can see them all.  In this case, you can go to

and they are all there.

Thanks everyone!!

Sunday, September 23, 2012

Bathroom Emergency.....Sort Of

So, I have been on Remicade for a couple of months now and a little longer with the Imuran and honestly, I don't "feel" allot different than I did before.  Other than the fact I'm not popping a ton of pills anymore (only 3 a day now).
But, if I had to pick one thing that I have noticed, it's not the amount of times I go to the bathroom, it's the urgency of having to go to the bathroom.  Which is nice.  I still can't eat ice cream....found that out, but I can handle frozen yogurt and thank god for Menchies!!
There's no more pain, the abscess / fistula is basically gone.  I'm drinking coffee and donuts (but only cake donuts and not yeast donuts).  And I'm still gaining weight....slowly.  I have more energy than I did before, which to a normal person, would still be less than them.
I have also noticed quite a bit of pain though in my hips, elbows, shoulders and wrists.  I have numbness in my fingers and right arm and I can't make a "tight" fist.  I'm thinking that it might be the Imuran, but I still have to check with my GI.  Maybe it's the dosage (150mg). 
All I know is that the numbness in my hand and fingers all the time is very very very irritating and a little unnerving.  Especially at night.  I wake up after only a couple of hours and my shoulder that I am lying on is painful and my hand and fingers are numb.  All I have to do is shake it out and it goes away....for a little while. 
Arthritis, probably.....oh goodie.  Just add it to my list of ailments
What's next...?

Tuesday, September 18, 2012

Crohnie Quote of the Day

A friend of mine posted this on FB.  Advice he gave his 7 year old daughter.
I think it is great advice in general, but also for Crohnie's and other chronic disease sufferers....

"Being brave doesn't mean not being scared, it means being scared and doing it anyway."


Saturday, September 15, 2012


One of my friends posted this on Twitter and just had to repost it here.....says it all I think, thanks Shannon!!  Made my day!!

Selling on Ebay. One pair of fucked up intestines. Really used up and completely shitty condition. Will trade for healthy intestines. Hahaha

Love it!

"Hun.....Watch This"

Laying in bed the other night, watching TV like I always do, I got that 'crohns feeling'.  You know the one, the feeling like you have to go to the bathroom preceded by the sudden, and sometimes painful, cramping feeling.
Well, at least now-a-days for me, the pain isn't there anymore (knock on wood), but the cramping sometimes rears its ugly head. 
As this was happening this time, I looked down to my ab area around my belly button and was a little surprised at what I saw.  So much so, I nudged my wife laying beside me and said, "" as I pointed to my belly button.
And there it a rolling wave on an ocean.  You could actually watch as food passed through my intestine, obviously because of a little inflammation or something.  I could actually time it.  I would get the cramping feeling followed by "the wave".  First from right to left, then left to right.  Lasted about 10 minutes or so, then, done.
Almost something like the birthing scene from the 1979 movie "Alien" (minus the blood)

It's amazing, as I get older, the small things that entertain me.

Saturday, September 8, 2012

10,000 Pageviews !!!


Thanks to everyone who has come on by my little blog page to have a read.
It's funny, because when I started to write, it was for me, but on the off chance that others "might" read it as well.  I never thought it would ever...ever...get to 10,000.

So, thanks to those you have come in to my little world via whichever social media outlet, or just Googled "Crohn's", not to mention the other Crohn's sites and blogs that have my site on theirs.

Thanks to my friends and family and to those who leave comments and emails on their own experiences.

Next stop... 100,000!!!!!


Crohnie Quote of the Day

Don't ask me "what can you eat?"
Tell me what you are planning to have for dinner and I will tell you if I can eat it or not.

It's just easier that way

Wednesday, September 5, 2012

Remicade : Day 42

3rd infusion of Remicade today, all went well once again.  Had to go to a different infusion site though, and that was a little annoying.  There was no doctor at my usual site so what normally takes me 15 minutes to get to the site....took almost an hour and a half today.  Had to be done though.  I don't see alot of difference but the weight is still going up it appears, slowly.  Weighed in at 70 kilos (154 lbs).  Only about 3-4 kilos in the 42 days....but up is better than down I suppose.  I'll get excited when its about 10 kilos more!

Next dose in 8 weeks!