Tuesday, May 30, 2017

Remicade : Day 1772

I forgot to post about my last Remicade infusion and again, not much excitement to it.
I go in, stuff my hand under a heating pad, crank it up to high to make the veins "pop", weigh myself, the nurse slides in the perfectly popped vein, get the infusion and done.
This time there was an older lady, she looked as if she was in her 80's, sitting across from me all curled up in a ball in the chair and all I could think about is....I don't have it so bad.
She looked like a little child sitting there curled up, skinny, frail, sleeping. I remember a time when I use to look like that.
I've been through a lot over the 30 years with Crohn's and after seeing her, I have to keep reminding myself that I don't have it as bad as some and in a way, I guess, I'm "lucky".

Friday, May 12, 2017

Special Thanks

I'm not one to "brag" or even give that impression, but I feel I need to give thanks to Healthline.com and Mytherapyapp.com for recognizing this blog.

Healthline.com as one of the Best Crohn's Blogs for 2017 and
Mytherapyapp.com for one of the top 19 IBD & IBS Blogs for 2017 (Top Gutsy Writers)

Just to be recognized amongst some of the best blogs out there is truly an honor for me.
The thought that this blog might be helping someone going through what I have spent almost 30 years doing, is truly humbling and I truly appreciate it.

Thank you from the bottom of my heart.


Tuesday, May 9, 2017

Monday, May 8, 2017

Tuesday, May 2, 2017

Crohn's Obituary *repost*

I posted this about 4 years ago and I thought I would repost it because today at work I got to thinking, "would I ever feel 'good' again?", "would there ever be a day that I can go out somewhere and not have to worry if I can even make it?" 
Would there ever be a day that Crohn's Disease....dies?

Here's what I would write as an obituary for the disease....

Crohn’s Disease, prominent bowel disease, died last night from complications of losing his soul mates Ileitis and Colitis. No one is really sure of his age, but according to written records, he was over 85 years old.

Asked about the loss of his dear friend, IBS, the soon to be obsolete and forgotten disease, described Crohn’s as complicated and was looked up to by other diseases of the body for his wide range of symptoms.

In the final days of his life, he revealed an unknown side of his psyche.  This hidden quasi-Freudian persona surfaced in the super-ego-like pursuit of his desire to be the number one disease.   

Sadly, the protracted search ended early Monday morning in complete and utter failure.  Yet even in certain defeat, the courageous Crohn’s secretly clung to the belief he was to live forever.

He is survived by IBS but has also come to the realization that soon another obituary will be written about him and will only survive in the pages of old medical journals.