Sunday, February 10, 2019

You Might Be a Crohnie

If you can go through a whole roll of toilet paper in just one day
...you might be a Crohnie

Friday, February 1, 2019

Remicade : Day 2384

Second infusion at the higher dose. I don't notice any difference, other than it really knocks me down after. I was very tired the next day and now this is the second day and I feel drained. Could be something else maybe, but we'll see after the next one in March.
I don't know about anyone else, but when I go for my infusion, I like it a bit quiet. This last infusion, some 20 something came in near the end of mine and sat in the chair next to me, which is all fine and dandy, but then proceeded to Facetime his buddy, without headphones and without turning the volume down. Like it was it house, or standing outside, or something. His mum came in to ask if he wanted anything and he basically ignored her and kept talking to his friend. They were both swearing back and forth, etc.
The lack of consideration and the utter rudeness to his mum I think is the sign of the times for 20 somethings. Not all, but a good many. It's not the first time I've experienced this.
My kids won't and aren't brought up that way. Have some respect.

Saturday, January 19, 2019

Thursday, January 10, 2019

Vitamins and Minerals

One of the problems with having Crohn's Disease (one of many), is the fact that you have problems absorbing the necessary vitamins and minerals your body needs.  Over the years, and alot of trial and error, I was finally able to find a multi vitamin that does not cause me pain and discomfort. I think the Remicade (Infliximab) has alot to do with it. The over the counter multi's have too many "fillers" which I think was causing all the problems. Of course the one I find that works, I have to get from a doctor friend as they are only available through health practitioners. What I found interesting was that these multi's have zero fillers and are derived directly from fruits and vegetables.... that's it, which in a way, makes lots of sense.  They are hard to get and cost more, but they work....for me. On top of the multi's, I also take other supplements. I take B50 complex, D, B12, Magnesium, Iron and Omega 3.
As a Crohn's patient, we need these supplements, but everyone is different so it will take a while to find what works for you. It's taken many many years to find what combination works. I dont take all of them at once, I take some one day and some the next day. I found that it I take them all each day, I get some pain and discomfort.
Even if you think they arent working, still take them, you never know.

Monday, January 7, 2019

You Might Be A Crohnie

If you found out baby wipes are not just for babies
...you might be a Crohnie

Tuesday, January 1, 2019

Crohnie Quote of the Day : Strength

It's the first day of 2019 and even though I'm not a religious man, I do like the following quote from the serenity prayer that everyone should follow, chronic illness sufferers especially.

God grant me the serenity 
To accept the things I cannot change; 
Courage to change the things I can; 
And wisdom to know the difference. 

Living one day at a time; 
Enjoying one moment at a time; 
Accepting hardships as the pathway to peace; 



Happy new year to everyone and all the best to a happy, and healthy 2019 !