Wednesday, September 30, 2015

Remicade : Day 1163

Came in to the clinic a couple of hours ago and my nurse asks me, "did you know I need to take blood from you today?" That's not always good to hear.  Apparently my gastro wants to check my Remicade levels.....also not something I wanted to hear. After my colonoscopy there was a note stating she found "stricture and inflammation".
Maybe she can see something from the bloodwork and hopefully my Remicade can be adjusted.  I'm not feeling "bad" or anything, so not sure what she saw. The treatments have been very helpful towards having a somewhat normal life, I don't want to stop now. I've almost forgotten what life was like prior to Remicade....almost.

Wednesday, September 16, 2015

Crohn's and the Common Cold

It was so easy when I was "normal" whenever I got a cold and cough, I could just take some cough syrup, or decongestant.  That was so long ago.  I use to take some Nyquil at night, fall asleep and wake up the next morning and feel better.  Not completely well, but better.
Since Crohn's, I haven't been able to do anything like that.  Nyquil is now completely out of the question.  If I take it, it goes right through me and makes for one hell of a "messy" night, not to mention the frequent hourly runs to the toilet.  Sometimes even causing abdominal discomfort.  So, what does one do when you catch a cold and have Crohn's..??  For me, just about nothing. 
I did discover that the majority of cold medicines, and there are hundreds, contain the same medicine as a regular, or extra strength Tylenol.  The active ingredient is the same, so why spend the extra money on something you already have in the medicine cabinet. This is what I take now and it seems to work nicely.  Another thing I discovered since my Remicade treatments, Nyquil doesn't affect me like it use to.  I can now take it and not have discomfort, only have to go to the bathroom a few times in the night and have only minimal accidents.
Medicine, like food and drink, for Crohn's is trial and error.

Friday, September 11, 2015

Crohnie Quote of the Day

"How can I hide in the dark, curled up in the fetal position....when it's so damn light outside"