Friday, March 20, 2015

New Crohn's Drug !!

A promising new drug treatment for us...from the New England Journal of Medicine....specifically a new oral drug, Mongersen.  It's just in the clinical stage, but results are promising.

I love when they come up with new treatments !!!!

Thursday, March 19, 2015

Crohnie Quote Of The Day

"Having Crohn's is like having an extremely bad case of the flu......except you throw up out your ass"

*please note that by no means am I saying Crohn's is like the flu

Wednesday, March 18, 2015

Crohn's Inspired Tattoo's

Do you have a Crohn's inspired tattoo..??  Want to inspire others with your tattoo..??
All you have to do is send in a clear photo of your tattoo +  a short description, with the subject “My Crohn’s tattoo,” to
They'll feature the tattoos on the Healthline website and help inspire others with Crohn's Disease by those who aren’t afraid to let the world know that they’re survivors.

Click the link to get more information

Share 'em if you got 'em !!

Wednesday, March 11, 2015

Crohns Tips

Did you know that the emulsifier, polysorbate 80, is in the flu vaccine you get every year...??


Found this interesting article about a study that was recently published out of the US about emulsifiers and IBD.
Specifically the additives CMC and polysorbate 80.....time to REALLY change my diet!

Friday, March 6, 2015

Crohnie Quote Of The Day

1 teaspoon (of ice cream) = 4 minutes (until I'll have to go to the toilet)

Tuesday, March 3, 2015

Remicade : Day 952

Once again I drive the 20 minutes to the clinic, wearing my one glove on my left hand, with my iPad, wordsearch, glasses, pen and hard candy laying in the passenger seat along with the blue bag of "juice".
This trip to the clinic there aren't that many "Crohn's problems" other than the usual aches and pains.  Though I am very uncomfortable as I pulled something in my back moving a plant pot believe it or not.  All this is minor compared to what others go through each and every day.  The more this disease takes from me, the more I see it all pointless to complain.  Yes, I have problems with eating, drinking and I go to the bathroom WAY more than the 'normal' person.  I'm fatigued all the time, pain some of the time, but I have a strong heart, lungs,......well that's about all I have strong.....
Then yesterday I watched the Ellen show and saw again Tayt.  He needs a new heart.  But watching this little guy, makes me want to shake my head for the times I feel "sorry" for myself in having this disease.  See for yourself...

If you ever feel down, just watch this guy...

Monday, March 2, 2015

Tuesday, February 17, 2015

What's Crohn's Like....??

Over the time I've been "blessed" with Crohn's, I can't remember how many times I've been asked, "what's Crohn's?" or my personal favorite, "what's Crohn's like?".  Not sure even how to answer the last one.  But it got me does one answer the question, what is Crohn's like?

So.  Here is my answer from MY perspective (as everyone's Crohn's experience is different)
A crohn-alogy if you will.

Imagine if you will, being tired, exhausted and worn out all the time.  Like, if you were to run a marathon at least once...everyday.  Then throw in dehydration and the constant dry mouth and thirst.  Add to that the knowledge that at any minute, and I mean any minute, you can be in hospital from an intestinal block or a number of other reasons.  Mix in frequent bowel movements (with the occasional loss of a pint of blood or two), ten, twenty, thirty times a day.  Sometimes 10 times in an hour.  Stir in abdominal pain, abscesses, fissures, fistulas, dry skin, scars, hemorrhoids, kidney stones, Iron and B12 deficiencies and a bleeding rectum. The fetal position is one of your favorite ways to lay down.  Pillows are your new best friends.  Fold in daily doses of pill after pill after pill and monthly liquid doses of a biologic drug slowly dripped directly into your vein that costs more than your first car......
then, and only then, will you get a sense of what ONE persons life is with Crohn's.

....what Crohn's is like.....for him.


Sunday, February 15, 2015

Crohns Awareness

Let's keep this campaign going.  Only 6 more reserves needed to start it back up!!  I have mine reserved, how about you...??
The more awareness the better