Saturday, August 23, 2014

Crohn-fucius Say...

"Life is too short to worry....
                 "Life is too long to wait."


Friday, August 15, 2014

You Might Be A Crohnie...

If you call your bloated abdomen your "Crohn's baby"...
you might be a Crohnie


Friday, August 8, 2014

Fatigue Anyone...??

Talk with anyone that suffers from Crohn's and it'll be THE most common symptom amongst us.
But what, if anything, can we do about it?
The most common, is anemia, so boosting your red blood cells and iron are key.  Here's what you can do as far as food goes:

Iron. Food rich in iron can help your body rebuild what it has lost. Lentils and legumes are a great way to get the iron you need and they are healthy for you in many other ways, too.
Copper. This vital mineral can be found in many foods, including shellfish, poultry, liver, whole grains, beans, cherries, chocolate and nuts.
Folic Acid. Long known as a great help for pregnant and nursing mothers, foods that contain folic acid include lentils, dark green leafy vegetables, blackeyed peas and cereals fortified with folic acid.
Vitamin A. This very important vitamin can be found in a multitude of fruits, including grapefruit, mango, watermelon, plums, cantaloupe and apricots.
Vitamin B12. Meat, eggs and fortified cereals are a great way to get plenty of B12 in your diet.
Vitamin B6.  This vitamin is found in a wide variety of foods, including meats, whole grains and bran, nuts and seeds, fish, vegetables and legumes.
There are also supplements, if you can tolerate them.
Iron, Vitamin B12, Vitamin B6 & Vitamin E, can also help in boosting your red blood cells.

Believe it or not, and even though you don't want to do it most days, but exercise can also reduce your fatigue levels.
Also, the simple act of sleeping helps.  But the effects of the disease itself, like pain, anxiety and depression are also factors in contributing to feeling tired.
Many times though, its the very medication that helps us, that tires us.

Be sure that every time you go to your specialist, or regular doctor, mention it.  Don't think that it can't be treated.....maybe they have suggestions that will help.  Not ever thing is going to work for everyone.
Can't hurt to try.

Saturday, August 2, 2014

Let One Go

The best version of Let It Go out there.....from a Crohnie perspective.........ENJOY!  (I did)

Thanks to UK comedian Nick L'Mao


Monday, July 21, 2014

"What's It Like?" .........Living With Crohn's

This, believe it or not, is a question I get now and then.  I feel like saying....

"I don't know....what's it like NOT living with Crohn's Disease?" 

....and then look at their face with that puzzled look, like I've just asked them what the meaning of life is.  But it's the same thing.  I can't answer that question.  I don't think there IS an answer.

So, I was trying to think of a way to describe it and this is the best I can do...

Living with Crohn's Disease is like waiting for an earthquake.
You have no idea where you'll be or when a flare will happen, but the best you can do is to be as prepared as possible.


Sunday, July 13, 2014

You Might Be A Crohnie...

If according to the 2014 Guinness Book of World Records, under "Toilet Sitting", you see your picture...
you might be a Crohnie


Thursday, July 10, 2014

The Love of a Son

My two boys know that I have Crohn's.  To be exact, they know that I have an "illness" that makes me NOT be able to eat what they eat or do things that they do and they know that there are times that daddy just needs to rest for awhile.  They also know that sometimes I have to go to hospital, but they don't understand "why"........which, when I think about it, neither do I.
Having said all that, one son actually "hurt" me by giving me a hug.  Yes a hug.  They are normally very careful around me, but he just squeezed too hard.  I doubled over in pain as it was quick and the sudden pain made me bend right over.
What hurt the most?  The look on my 7 year olds face.  I think he thought he killed me and looked scared. 
I felt awful.
Things like this can happen, and its not his fault, he just wanted to give  me a hug.

The point is, something as simple as a hug can put a Crohnie down for the count.

What a sucky disease!!


Thursday, July 3, 2014

Remicade: Day 709

Closing in fast on my 2 year "anniversary" for my infusions and after this last one, I once again am humbled by others that suffer with this disease.  There are so many of "us" now.
Talking with others at the infusion site, we all learn we suffer from the same thing, but each of us have "side effects" that differ, whether that be with meds, food, emotions, etc.
And after the discussions, I sit there staring at my IV tube flowing with my "go-go mouse juice", watching it go through the needle that luckily only took one poke to get in and wonder...... with all these different symptoms, how can researchers possibly ever find "the cure".  I mean, one that helps us all.
I can only say, I hope its soon


Wednesday, June 25, 2014

You Might Be A Crohnie...

If you can physically SEE your abdomen "deflate" as you pass gas...
you might be a Crohnie


Sunday, June 22, 2014