Wednesday, April 13, 2016

Crohn's Vaccine...?

I was made aware of an article from the Edinburgh News from February of this year,

God knows we need a cure and it looks as though things are going in the right direction, hopefully.  I'm not totally convinced about cow's milk being a "cause" as I was brought up on goat's milk as a baby, but I'm definitely intrigued at the possibility of a vaccine......for my kids sake not mine.

Also check out

Fingers crossed.....

Sunday, April 10, 2016

Friday, March 25, 2016

Make Your Illness Your Friend

I know that having Crohn's sucks, I mean really sucks!, but in order to live, you basically have to make the disease your "friend" and live together.  Like any relationship, you're going to have your ups and downs, but there are days that everything is calm. And there will be days that you will hate each other.

Give up the "but."  You know, the "I want to go out, BUT I can't cuz I have Crohn's".  Don't get me wrong, there will be days that you just "can't" because of your illness.  There's a difference. You have to just do it sometimes.  Even if you're feeling a little bit "fine", take that opportunity.

Accept reality.  You have an incurable, chronic disease.  Until there is a cure, you need to live with it and do what you can do make it livable.  It took me years before I accepted the reality that there wasn't much I could do about it.  I could watch what I ate and could "control", sometimes, the symptoms, but not all the time.  When the flare comes, it comes and when it does, deal with it the best you can.  If curling up in a ball is it, then do it.  When the symptoms pass, you get up, brush yourself off and continue on.  If not, it will smother you, take control and consume you.

Like the song by Chumbawamba - Tubthumping

I get knocked down
But I get up again
You're never gonna keep me down

Wednesday, March 16, 2016

Remicade Day : 1332

I've been sick with a "simple cold" for the past few weeks coughing, headache, stuffed up, etc. so I thought going in to the clinic that my weight would be down....hmmmm, wrong!
I stepped on the scale only to find that I had actually gained 4kg's !!  (that's 8 lbs)  I was shocked.
This Remicade is working great for my Crohn's so far.....except for that nagging, annoying, irritating peri anal abscess thingy.  Once you get past that, then all good. 
I still miss my old body, the one that use to figure skate 5 days a week and soccer twice a week.  I'm resigned in the fact I will probably never get that again, but who knows, I should start working out.  I would have to start off slow and easy, like I had a sports injury or something, but we'll see.

Monday, March 14, 2016

You Might Be A Crohnie

If you have all the ingredients memorized on the bottles in your bathroom might be a Crohnie

Thursday, March 10, 2016

Wearable Art

I have added my artwork to clothing and have started with women's silk scarves

Hopefully I can add more clothing as well as artwork.

Tuesday, March 1, 2016

You Might Be A Crohnie

If the question, "how are you feeling?", is THE most difficult question in the world to answer might be a Crohnie

Thursday, February 18, 2016

It's Just A Cold...

When I use to hear this from people that didn't understand my "predicament", I would go in to a long spiel about how I have Crohn's and there never is "just a cold" anymore.
Today when people say it to me, I just roll my eyes, shake my head and smile...sort of.
I wish I could "just have a cold" like I use to 30 years ago, gone are the days of catching a cold and take some medicine.  The cold medicines that use to help me now cause me problems, either with pain, discomfort or major diarrhea.
I caught a cold the other day and I had a sore throat that felt as though something was stuck in there;  my voice sounded like Barry White.....only deeper; a headache, but the sharp ones behind your eyes; runny nose, like a tap; cough that I feel in my chest, back and causes pain in my abdomen each and every time; muscle and joint pain that makes me feel like I'm 97 instead of 47; and dehydration that takes the wind out of me each and every time walking up stairs and, well.....just walking.
So, no, it's not just a cold.  Maybe for all the "healthy" people it's just a cold, but maybe think twice before telling someone else, it's just a cold, you have no idea what a cold is.

Sunday, February 7, 2016

You Might Be A Crohnie

If your trigger food
you might be a Crohnie