Wednesday, January 28, 2015

You Might Be A Crohnie...

If you scan a building while you're out, not for the exits, but for the bathrooms
...you might be a Crohnie



Tuesday, January 20, 2015

Remicade : Day 910

Closing in on "1000 days", but until then, everything is status quo.
A little scare with the infection, but Cypro to the rescue and gone after a few days.  And yes, I DID keep the Cypro going for the full 7 days =) even though it cleared up after a few days.
I hope the body keeps liking the "juice" for a long time cuz it's working.  There was a guy today with me getting infused, who's been on it for over 5 years.


Keep on keepin on

Sunday, January 18, 2015

Awareness Video

Saw this on Twitter today and had to post it.
Great awareness video.  I always thought Christina Perri's "Human" song was a great "awareness" song.
Take a look...


http://youtu.be/r-4h0x1wlf8



Thursday, January 15, 2015

Crohnie Quote of the Day

Nearly 200 genes have been linked to Crohn's Disease, but not everybody who inherits these genes will get the disease.


.

Saturday, January 10, 2015

For King and Country

One of this bands members, Luke, suffers with UC and wrote this song whilst battling an attack.
I wanted to share, it hits home.


http://youtu.be/4_zcjxDdZ1s


For King and Country - "Without You"

Sunday, January 4, 2015

Welcome 2015.......??

Decided to go to Emergency last night with discolored urine.
Now, normally, I wouldn't do such a thing, for something as simple as discolored urine because usually it's just that I'm not drinking enough water, BUT it was dark amber color and because I'm on Remicade, I immediately thought there was something wrong with my liver. 
It's been like this since Friday morning, but I wasn't worried.
So, last night at 9, I told my wife that I was heading in, just in case.  Luckily I had just had my bloodwork done that morning, so I didn't need to get any done at hospital.
It wasn't THAT long of a wait in Emergency, about 3 and a half hours, sitting in chairs before getting called in back, but after another hour wait, I got the news I wanted to hear.....not my liver.
Turns out, it's just a urinary tract infection.  Testing showed blood in the urine, but I have no pain at all....zero.....so it's really weird.  I have no idea how I got it, but there it is.


On a side note, I always have to shake my head whilst waiting in chairs by the idiots that come in to Emergency.  I feel like standing up and make an announcement....


"Attention everyone!!  This is Hospital Emergency, NOT a walk in clinic.  If you don't want to wait like everyone else, go home!!  It's NOT first come, first serve!!  Stop asking the triage nurse "how much longer"...THEY DON'T KNOW!!  Now, just sit down and shut up until your name is called!"



Thursday, January 1, 2015

Happy New Year !!

Happy New Year to everyone !!  All the best for a happy and healthy 2015 !!
I can honestly say, I haven't gone to hospital all year!!  LOL

Tuesday, December 30, 2014

BathroomMap App

I received an email from the founder of BathroomMap.


I thought you may be interested in sharing with your readers a new bathroom locator application that is now available on the Apple App Store (Android version is due out in Feb.). It's a free app and there's no advertising, and I believe it is the best bathroom locator app available and I designed it with the needs of those with IBD in mind. I'm looking to get the word out to the IBD community. The name of the app is BathroomMap and you can find it by visiting the link below on an iPhone.


https://itunes.apple.com/PL/app/id893820545


His mum has Crohn's and he has IBS.  I'm downloading it as soon as I publish this post.
I know that we all can use this, cuz "you never know when you got to go"



Friday, December 26, 2014

12 Days of a Crohnie Christmas

The twelve days of Christmas traditionally are the 12 days after Christmas, but instead of doing one for each day, I'm posting all twelve today, but in a "different" way.
Now remember, to get the full effect, you must sing it =)


On the twelfth day of Christmas, my Crohns Disease gave to me.........
...12 rolls of toilet paper,

11 packs of underwear,
10 visits to the ER,
9 blood tests,
8 B12 shots,
7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses

and a painful colonoscopyyyyyyyyyyyyyyyyyyyyyyyyyyyyy!



Thursday, December 25, 2014

Crohns Advent Calendar - Day 25

Opening the bathroom stall door this morning to find...


..... hope


Hope....they will find the cause
Hope....they will find the cure
Hope....that we all spend as little time in hospital as possible
Hope....that all Crohnie's around the world, have the most healthy of years for 2015

And that closes the Advent calendar for another year.  Looking forward to next year
Thanks for stopping by!!



Have a very Merry Christmas and all the best for a happy and healthy 2015!!!!

~Vern