Saturday, July 18, 2015

You Might Be A Crohnie

If you start naming your kidney stones like they do with hurricanes...
you might be a Crohnie

Saturday, July 11, 2015

Crohn's Disease-Inspired Tattoos

Healthline.com has spent the past few months gathering tattoos inspired from Crohn's disease and now have posted them to their website.
Check them out here......


http://www.healthline.com/health-slideshow/crohns-tattoos


Nice job Healthline !!  and Thanks!!


- Vern

Wednesday, July 8, 2015

Remicade: Day 1078

It's been a rough couple of weeks between me and my Crohn's so it was a welcome relief when infusion day comes along.
Last night I awoke to pain on my right flank and anyone that's had it knows, it was a kidney stone.  I had my wife take me to ER and for the second time in as many weeks, there was no one waiting and I got in right away.  They hooked me up with an IV and was putting in pain meds before the nurse came by to take my blood.  And right after that, they started pumping in water.  I went through 2 bags in an hour and was out of the ER in about 3 hours.  The pain was lingering but it was more of an ache than a pain, so that made me happy!  A little while later and it was all gone.  Not sure if I passed it or not, but for now...no pain makes me a happy boy.

Sunday, July 5, 2015

You Might Be A Crohnie

If you can drink all day long and still be dehydrated...
...you might be a Crohnie

Sunday, June 28, 2015

Awakened Sleep

It's been a while since my last post but as all us Crohnies know, flares happen.
After a week of suffering and "putting it off" because, you know, it'll just go away....I checked myself in to the ER with yet another perianal abscess.....fun.
To my shock and surprise, the ER was empty!  No really!  It was 8 in the morning and not a patient in site.  After all the back and forth with the triage nurse and check in nurse, she said to have a seat and they'll call my name.  I always find this humorous because I just told them I can't sit.  I tried to make myself comfortable while I wait, but I ended up standing while I waited.
It didn't take too long to give me the call and then the slow walk through the maze of corridors to the awaiting bed.  Now normally I wouldn't say these ER beds are comfy, but in my condition, it was like laying on a bed of soft kittens.  The relief of just laying down taking the pressure off the abscess was all it took.
The nurse was there right way ready to put in an IV line and hooked me up with some sugar water to keep me hydrated and to give me pain meds.  The morphine and gravol couldn't come soon enough and boy it works fast, but the pain still was more than I like.  The pressure alone from the abscess produces so much pain, it would drop even the strongest man.
The doctor finally came and told me what I already knew, let's cut the damn thing open!
About three hours after coming in to the ER, I was surrounded by 2 doctors and 4 nurses ready to do the procedure in an "awakened sleep".  One doctor to administer the drugs, one to do the cutting, one nurse acting as the RT (to watch my breathing), one to take notes as the doctor talks and two student nurses...to just watch and learn.  As much as I love being "put out", the awakened sleep is freaky as it happens!  They use propofol (and another drug I can't remember).  When it starts I feel very disoriented as it starts to take effect, BUT, what's going on in my head is hard to describe.  It's like when a train approaches and gets louder and louder.  It's so "noisy" in my head I want to scream because I can still hear everyone talking but it's like all 6 of them are screaming in my ears right before I'm out. 
And just like that, I start to awaken.  It's done.  The pressure pain is done, but now I have to deal with packing and incision pain....but the worst of all that is trying to "come to". 
I can hear the nurse calling my name and telling me to take deep breathes, but the disorientation is disconcerting. I don't know how people do these kind of drugs for "fun" and on purpose... really?!


Hopefully it heals up nice......



Wednesday, June 10, 2015

Crohnie Quote of the Day

The other morning, my kids were eating breakfast and my eldest asked me why I don't eat cereal.  I explained that because of my illness, I can't have milk.  He said, at all?  Well, I won't die from it, but it causes me to have a lot of pain and makes me go to the bathroom, a lot!
He thought for a second and then said something I wasn't expecting, and at the same time was brilliant and simple......use a fork.


So, my Crohnie Quote of the Day...from my 9 year old...


"If you want to eat cereal and are lactose intolerant......use a fork"

.

Wednesday, May 27, 2015

Remicade : Day 1037 Fast-Tracking

Infusion day today and I lucked out...there was a cancellation and I got in early !! 
Also, today was the first day of "fast-tracking", so instead of a 2 hour infusion, it was an hour and a half.  And yes, that half hour makes a big difference =)  Fast-tracking is basically where they start the drip a little faster than normal.

We're starting out at an hour and a half to see how I tolerate it and we'll go from there.  If everything goes well after a few more infusions, the next time I see my specialist maybe I can get her to take it down to an hour.  So far, so good.


I figure after almost 3 years on the juice with no problems, it was time to start.
Today, I don't think I looked at the clock once, but I did get really tired real fast.  More than usual. 
I could have easily taken a nap right there....but I'm saving it for tonight that I might sleep.......bbbbwwwwaaaahahahahahahahahaha!!!   I'm so funny

Tuesday, May 19, 2015

World IBD Day

Yes....we have "a day"!  A day to bring awareness to all Inflammatory Bowel Diseases, a day to bring awareness that millions of us suffer in silence, a day to bring awareness that millions of us are in intense pain and others don't even know it and a day to bring awareness that the cost of medicine for us is so expensive, many of us go without.
IBD is an invisible illness and its real, it's not a "stomach ache" or "in my head" and believe me, if we could "just eat something" to gain weight, we would.  And yes, I really do have to go to the bathroom that many times !!


Wear some purple today !!



Monday, May 11, 2015

A Crohn's Reflection - Mother's Day

I remember the day like it was yesterday and I don't think I will ever forget it, for a number of reasons.  November 25, 2002 was the day that breast cancer took my mum's last breath away.  There have been 12 mother's day's since then and each one that comes and goes I always think how even though she was struggling for a few years in her own battle with cancer, she would always make sure I was taking care of myself. Parents are like that I suppose. 
She had stage 4 breast cancer when she was diagnosed.  I took her to the doctor that infamous day and when she came out crying, I knew.  I talked to the doctor myself afterwards telling me that there was nothing he could do for her other than extend her life a little longer.  I never told her that of course but gave her the same positive advise she always gave me, "you'll get through this, one day at a time".  She tried to remain positive through the whole experience, even with the hair loss and chemo treatments, calling her chemo the "red army" (the chemo juice was red), and hoping her hair would grow back curly, or at least "wavy", like mine.  She even had a double mastectomy and still she remained up beat and was cancer free for a year, until that fateful day in June 2002 when the doctor informed her that it had returned and returned with a vengeance. It had spread to her hips, liver, stomach, lungs and brain.  She had found out the day of my brothers wedding and she tried to have a good day, but you could see it in her face and some of the pictures from that day.  My fiancĂ© and I pushed our wedding ahead from June 2003 to September of 2002 so she could be there, lying to her that it was for another reason and not that we didn't think she would be around.
It came fast and hard this time and by October she was admitted to hospital because she wouldn't, or couldn't, eat.  At this point she new it wouldn't be long, but still asked how I was doing and making sure I was taking care of myself.
She went down hill fast after that and we all got called in to hospital one night by the nurse fearing she wouldn't last the night....but she did.  We insisted that we take her home for her last days as she never wanted to pass away in a hospital.  She lasted another week at home before finally on a Monday morning while we were all getting ready to go back to work after having time off, she stopped breathing and she was gone.

I wanted to write this to show how my mum, as I'm sure other mother's are, was still concerned that I took care of myself with my disease whilst fighting hers.  My only regret was that she never met any of my children. 

Mum's are a special breed and I see some of my mum in my children and I see it now in my wife in how she takes care of me and our children.

Thanks to all the mothers out there and Happy Mother's Day.

Sunday, May 10, 2015