Saw my Gastro this morning, my 6 month check up, this time I came with a list.
My Remicade levels are smack dab in the middle, which is great. She seemed happy. Had my results from MRI and it shows that there is no "significant difference" than my last one in 2015, though shes worried about maybe a tumor "hiding" behind scar tissue. I need to go for a sigmoidoscopy every year now instead of every two years. The good news is there is no inflammation showing...yay....just scar tissue and significant perianal disease.
Today was the day I was suppose to have ostomy surgery but I had cancelled it. I didnt NEED the surgery, just the surgeon recommended it as there is no way to fix my perianal disease. It doesn't mean I wont have the surgery one day, just not today. Its taken me 30 years to be comfortable and accustomed to my way of life, I dont want to start again right now. Many reasons, but the main one is mentally, I'm not ready
So, other than the Crohn's disease, perianal disease, anal stricture, joint pain, scalp psoriasis, fatigue, etc.....I'm good.
1 comment:
You go Mate!
Keep as positive as you can ever be!
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