I saw this and thought for a minute......yes, it's exactly true.
"Health is not valued until sickness comes." ~Thomas Fuller
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Monday, April 8, 2013
Thursday, April 4, 2013
Wednesday, April 3, 2013
Crohnie Humor
"Having a perianal abscess is like having a nosey
neighbor…
...you know its there, but don’t want to look, and there's no real good way of getting rid of it."
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...you know its there, but don’t want to look, and there's no real good way of getting rid of it."
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Monday, April 1, 2013
Remission For Crohn's Disease
Since starting Remicade (Inflixilab) almost a year ago, I've had many people ask me if I'm in remission. The answer I give? "Don't know"
The definition of 'remission' is :
A remission is a temporary end to the medical signs and symptoms of an incurable disease. A disease is said to be incurable if there is always a chance of the patient relapsing, no matter how long the patient has been in remission.
So, to me, the key here is the word 'temporary' and the definition of that. Some days, I would definitely say "yes, I would say I'm in remission" but other days....no.
If you define remission as, do I have anymore 'Crohn's pain' (abdominal, cramps, etc), then I would say 'yes, I'm in remission' as I haven't had any of that pain for awhile (knock on wood), but I still have joint and muscle pain (actually worse since infusion started) and I still get the pesky abscesses. My infusions, though, have been changed to every 6 weeks in hope that it will help.
So, as you can see, it's a hard question to answer, except to say... "don't know"
The definition of 'remission' is :
A remission is a temporary end to the medical signs and symptoms of an incurable disease. A disease is said to be incurable if there is always a chance of the patient relapsing, no matter how long the patient has been in remission.
So, to me, the key here is the word 'temporary' and the definition of that. Some days, I would definitely say "yes, I would say I'm in remission" but other days....no.
If you define remission as, do I have anymore 'Crohn's pain' (abdominal, cramps, etc), then I would say 'yes, I'm in remission' as I haven't had any of that pain for awhile (knock on wood), but I still have joint and muscle pain (actually worse since infusion started) and I still get the pesky abscesses. My infusions, though, have been changed to every 6 weeks in hope that it will help.
So, as you can see, it's a hard question to answer, except to say... "don't know"
Saturday, March 30, 2013
Crohnie Quote Of The Day
I heard this one on the radio today and my kids were singing along....I can totally relate and should be the Crohnie Theme Song
So, for all you Crohnie's out there that have had surgery and have had things removed, moved, added, etc., and could sing a song to your intestines.... this Crohnie quote is for you.....from Taylor Swift
"We're never, ever, ever getting back together..."
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So, for all you Crohnie's out there that have had surgery and have had things removed, moved, added, etc., and could sing a song to your intestines.... this Crohnie quote is for you.....from Taylor Swift
"We're never, ever, ever getting back together..."
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THE Best Pork Chops....EVER !!
As a Crohnie, I find it harsh on my Crohn's to eat meat. Unless it's VERY tender or I wash it down with wine, to help with digestion.
But my wife found an awesome recipe that covers both....they're called Western Pork Chops, or 'Crohnie Chops'
It tastes soooooo good, they're tender and I add rice to it for an awesome dinner.
4 pork chops
341 ml (1 bottle) Beer
3 tbsp brown sugar
3/4 cup ketchup
Brown the pork chops and add pepper/salt (or your fave seasoning) and add to baking dish.
Mix the beer, brown sugar and ketchup together and pour over pork chops.
Bake for 1 1/2 hours, covered, at 375F, remove cover for the last 15 minutes.
Serve with rice.
The sauce can be poured over the rice
Believe me....after it starts cooking, the smell alone will make your mouth water!
Enjoy!!!!
But my wife found an awesome recipe that covers both....they're called Western Pork Chops, or 'Crohnie Chops'
It tastes soooooo good, they're tender and I add rice to it for an awesome dinner.
4 pork chops
341 ml (1 bottle) Beer
3 tbsp brown sugar
3/4 cup ketchup
Brown the pork chops and add pepper/salt (or your fave seasoning) and add to baking dish.
Mix the beer, brown sugar and ketchup together and pour over pork chops.
Bake for 1 1/2 hours, covered, at 375F, remove cover for the last 15 minutes.
Serve with rice.
The sauce can be poured over the rice
Believe me....after it starts cooking, the smell alone will make your mouth water!
Enjoy!!!!
Wednesday, March 27, 2013
Cinnamon and Honey Drink
I've been searching for a good recipe for a cinnamon and honey drink and after some trial and error, I think I've found one that tastes not too too bad.
It's always been touted that honey and cinnamon having natural 'healing' so it can't hurt to try. I already substitute honey for sugar in my tea and coffee. It takes a little to get use to, but worth it in the end.
My recipe....
4 teaspoons honey
1/2 teaspoon cinnamon powder
3 cups water
Boil ingredients together in a small saucepan and drink 1 cup, 3 times a day, boiling it each time so its hot.
All this is to my taste, yours might be different, so feel free to tweak it any which way. I find the cinnamon strong.
Anything to keep table sugar out of the body.
Enjoy!
It's always been touted that honey and cinnamon having natural 'healing' so it can't hurt to try. I already substitute honey for sugar in my tea and coffee. It takes a little to get use to, but worth it in the end.
My recipe....
4 teaspoons honey
1/2 teaspoon cinnamon powder
3 cups water
Boil ingredients together in a small saucepan and drink 1 cup, 3 times a day, boiling it each time so its hot.
All this is to my taste, yours might be different, so feel free to tweak it any which way. I find the cinnamon strong.
Anything to keep table sugar out of the body.
Enjoy!
Sunday, March 24, 2013
Crohnie Quote Of The Day
"If life gives you lemons, throw them back at life...see if life will make the same mistake again"
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Wednesday, March 20, 2013
Remicade : Day 239
Because of those nasty, pesky, annoying and painful abscesses, my Remicade was switched to every 6 weeks from the 8 weeks I was originally on.
I wore my new T shirt, which is now my "infusion shirt", which states.. "F*#K Crohn's...it's the shits"
Not enjoying the painful muscles and joints, but hey! at least the Crohn's is at bey for now.......
I wore my new T shirt, which is now my "infusion shirt", which states.. "F*#K Crohn's...it's the shits"
Not enjoying the painful muscles and joints, but hey! at least the Crohn's is at bey for now.......
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