Monday, April 1, 2013

Remission For Crohn's Disease

Since starting Remicade (Inflixilab) almost a year ago, I've had many people ask me if I'm in remission.  The answer I give?  "Don't know"

The definition of 'remission' is :

A remission is a temporary end to the medical signs and symptoms of an incurable disease. A disease is said to be incurable if there is always a chance of the patient relapsing, no matter how long the patient has been in remission.

So, to me, the key here is the word 'temporary' and the definition of that.  Some days, I would definitely say "yes, I would say I'm in remission"  but other days....no.
If you define remission as, do I have anymore 'Crohn's pain' (abdominal, cramps, etc), then I would say 'yes, I'm in remission' as I haven't had any of that pain for awhile (knock on wood), but I still have joint and muscle pain (actually worse since infusion started) and I still get the pesky abscesses.  My infusions, though, have been changed to every 6 weeks in hope that it will help.

So, as you can see, it's a hard question to answer, except to say...  "don't know"

No comments: