Crohnie Humor

"Having a perianal abscess is like having a nosey neighbor…
...you know its there, but don’t want to look, and there's no real good way of getting rid of it."







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What Every Crohnie Needs......In The Bathroom

Remission For Crohn's Disease

Since starting Remicade (Inflixilab) almost a year ago, I've had many people ask me if I'm in remission.  The answer I give?  "Don't know"

The definition of 'remission' is :

A remission is a temporary end to the medical signs and symptoms of an incurable disease. A disease is said to be incurable if there is always a chance of the patient relapsing, no matter how long the patient has been in remission.

So, to me, the key here is the word 'temporary' and the definition of that.  Some days, I would definitely say "yes, I would say I'm in remission"  but other days....no.
If you define remission as, do I have anymore 'Crohn's pain' (abdominal, cramps, etc), then I would say 'yes, I'm in remission' as I haven't had any of that pain for awhile (knock on wood), but I still have joint and muscle pain (actually worse since infusion started) and I still get the pesky abscesses.  My infusions, though, have been changed to every 6 weeks in hope that it will help.

So, as you can see, it's a hard question to answer, except to say...  "don't know"

Crohnie Quote Of The Day

I heard this one on the radio today and my kids were singing along....I can totally relate and should be the Crohnie Theme Song

So, for all you Crohnie's out there that have had surgery and have had things removed, moved, added, etc., and could sing a song to your intestines.... this Crohnie quote is for you.....from Taylor Swift

"We're never, ever, ever getting back together..."







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THE Best Pork Chops....EVER !!

As a Crohnie, I find it harsh on my Crohn's to eat meat.  Unless it's VERY tender or I wash it down with wine, to help with digestion.
But my wife found an awesome recipe that covers both....they're called Western Pork Chops, or 'Crohnie Chops'
It tastes soooooo good, they're tender and I add rice to it for an awesome dinner.

4 pork chops
341 ml (1 bottle) Beer
3 tbsp brown sugar
3/4 cup ketchup

Brown the pork chops and add pepper/salt (or your fave seasoning) and add to baking dish.
Mix the beer, brown sugar and ketchup together and pour over pork chops.
Bake for 1 1/2 hours, covered, at 375F, remove cover for the last 15 minutes.
Serve with rice.
The sauce can be poured over the rice

Believe me....after it starts cooking, the smell alone will make your mouth water!

Enjoy!!!!

Cinnamon and Honey Drink

I've been searching for a good recipe for a cinnamon and honey drink and after some trial and error, I think I've found one that tastes not too too bad.

It's always been touted that honey and cinnamon having natural 'healing' so it can't hurt to try.  I already substitute honey for sugar in my tea and coffee.  It takes a little to get use to, but worth it in the end.

My recipe....

4 teaspoons honey
1/2 teaspoon cinnamon powder
3 cups water

Boil ingredients together in a small saucepan and drink 1 cup, 3 times a day, boiling it each time so its hot.

All this is to my taste, yours might be different, so feel free to tweak it any which way.  I find the cinnamon strong.
Anything to keep table sugar out of the body.

Enjoy!

Crohnie Quote Of The Day

"If life gives you lemons, throw them back at life...see if life will make the same mistake again"







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Remicade : Day 239

Because of those nasty, pesky, annoying and painful abscesses, my Remicade was switched to every 6 weeks from the 8 weeks I was originally on.

I wore my new T shirt, which is now my "infusion shirt", which states.. "F*#K Crohn's...it's the shits"

Not enjoying the painful muscles and joints, but hey!  at least the Crohn's is at bey for now.......

Crohn's and Food

I get asked alot about what can I eat?
It's a great question I wish I had an answer for.  The easy answer is.....I can eat anything I want.

But.........

Then you have to ask yourself, "how much do I want to pay for it afterwards?"
After over 20 years of trial and error I can sum up what I need to avoid.  Some of these items cause me discomfort, while others can end me up in the hospital.

My top 10....

10.  Lettuce
9.    Milk (but I have no problem with yogurt so I can't put 'dairy')
8.    Fried foods
7.    Alcohol 
6.    Any fruit that has a skin (I peel almost everything)
5.    Raw vegetables
4.    Chocolate (I know, sad really)
3.    Coffee, Tea, Juices (but brewed coffee seems OK...weird)
2.    Popcorn
1.    Nuts and Seeds

1, 2 and 5 have ended me up in hospital with bowel obstructions.  Raw carrots are a definite no no!

What it boils down to....there is no cure, no cause....you live with it and deal with the situations, no matter how bad it can get, the best you can.

There is no easy answer to the question about what a Crohn's patient can eat, it's highly individual

In the beginning, I kept a journal and kept track of what I ate and the reactions I had.  BUT, even that is deceiving because it depends on whether or not you're having a flare at the time.  Sometimes you can eat something one day, and then can't handle it the next.

Trial and error my friends......trial and error.

Crohnie Quote Of The Day

"No one is listening.....until you fart."



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