IBD Global Network

I had my first Zoom meeting with the IBD Global Patient and HCP Network today.  The first of many meetings over the next year with other patient advocates and health care professionals to discuss the relevance and need for clinical trials when it comes to IBD. More importantly, how to improve the clinical trial process from how to get patients to sign up to helping the healthcare professionals doing the trials with better resources, research, etc.

I have always been an advocate for the clinical trial process because without them, we may not have the amazing IBD drugs we have now.

I had the chance to be part of the Remicade trials in Canada more than 20 years ago but turned it down. I only wish I had agreed to take part back then. Remicade was amazing for me when I finally decided to go on it in 2012 until my body developed antibodies to it just 8 years later. I still think about those who were part of the clinical trials that ended up helping me with my Crohn's and I thank them for it.

There are many places to look for IBD clinical trials, here are a few:

Crohns and Colitis Canada

CISCRP

Crohns and Colitis Foundation (USA)

Crohns and Colitis UK

Clinical Trials (worldwide)

Sure, you might be in the placebo group but I think that IF there is a chance for a better life with a new medication, it's worth a try. I have tried to get into several clinical trials over the years but my main problem with not being accepted is that I have had bowel resections, too many for that matter, and do not qualify.

...but you might.

 

Experiencing a Bowel Obstruction With Crohn's

I have had another article published on inflammatoryboweldisease.net about experiencing a bowel obstruction.  

Who knew carrots could have been the death of me.

Come read it here:

Experiencing a Bowel Obstruction With Crohn's

Visit inflammatoryboweldisease.net for more articles regarding IBD. 

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The Perspective of a Crohn's "Veteran"

I have had another article published on inflammatoryboweldisease.net about being a Crohn's veteran with 34 years "experience".

Come read it here:

The Perspective of a Crohn's "Veteran"

Visit inflammatoryboweldisease.net for more articles regarding IBD.

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Perianal Disease: A Literal Pain in the Butt

I have had another article published on inflammatoryboweldisease.net about my Crohn's related perianal disease.

Come read it here:

Perianal Disease: A Literal Pain in the Butt

Visit inflammatoryboweldisease.net for more articles regarding IBD.

Deciding To Get Ostomy Surgery

I have had another article published on inflammatoryboweldisease.net about how my IBD journey continues.

Come read it here:

Deciding To Get Ostomy Surgery

Visit inflammatoryboweldisease.net for more articles regarding IBD.

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Gutsy Walk This Sunday

There are just 2 days left to help raise funds for Crohn's and Colitis Canada's programs and research.

I am living proof that these programs and much-needed research work!  

I am also excited to be this year's Fraser Valley West's honorary chair so, join me Sunday, June 5 virtually or in-person in your community.

You can help me here on my Gutsy Walk page

Together as one, we walk to stop Crohn's and colitis.

Gutsy Walk 2022

There are just 43 days left to help raise funds for Crohn's and Colitis Canada's programs and research.

I am living proof that these programs and much-needed research work!  

I am also excited to be this year's Fraser Valley West's honorary chair so, join me Sunday, June 5 virtually or in person in your community.

You can help me here on my Gutsy Walk page

Together as one we walk to stop Crohn's and colitis

My 34-Year Crohn's Journey Continues

I have had another article published on inflammatoryboweldisease.net about how my IBD journey continues.

Come read it here:

My 34-Year Crohn's Journey Continues

Visit inflammatoryboweldisease.net for more articles regarding IBD.

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Gutsy Walk June 5, 2022

Once again I will be participating in Crohn's and Colitis Canada's Gutsy Walk on June 5th, 2022 with the Fraser Valley West Chapter.

This year, I have been named the Fraser Valley West's Honorary Chair!  It truly is a great honor to represent the Fraser Valley West Chapter this year and hope to not only money for Crohn's and Colitis Canada research, but also more awareness of inflammatory bowel disease.  Hopefully also bring more awareness to the stigma of bowel disease and now as an ostomate.

If you would like to donate to my walk, please donate here:

My donation page

The cure for IBD is around the corner. We're so close.

Thank you for your donations.

~Vern

Over 3 Decades of Crohn's Pain

I have had another article published on inflammatoryboweldisease.net about IBD and secondary pain.

Come read it here:

Over 3 Decades of Chronic Crohn's Pain...and Finally Pain-Free

Visit inflammatoryboweldisease.net for more articles regarding IBD.