Opening door #3 today to find....
Broth !!
(for those flare days)
Check back each day until Dec 24 !
Monday, December 3, 2018
Sunday, December 2, 2018
Crohnie Advent Calendar : Day 2
Opening door #2 today to find....
Baby wipes !!
(only IBD'ers will understand)
Check back each day until Dec 24 !
Baby wipes !!
(only IBD'ers will understand)
Check back each day until Dec 24 !
Saturday, December 1, 2018
Crohnie Advent Calendar : Day 1
December 1st marks the first day of the Crohnie calendar, so let's see what's behind the first door this year....
Costco size bag of toilet paper !!
Check back each day until Dec 24 !
Costco size bag of toilet paper !!
Check back each day until Dec 24 !
Wednesday, November 28, 2018
"But, You Don't Look Sick"
Having a chronic illness is hard.
Not only because of the health issues that are associated with your illness, but trying to "prove" to others that you are actually sick. Crohn's disease is an invisible illness, meaning you cannot visibly see that there is anything wrong. I relate it to a duck on a pond. On the surface you see a duck, calm as can be, but beneath the water his webbed feet are moving around at a frantic pace.
In my case, I look "normal" on the outside, but some days I am in pain, or fatigued, or dehydrated, etc. all the while putting on a brave face so others don't constantly ask, "are you okay?".
I think those that suffer from IBD (inflammatory bowel disease) are the BEST actors in the world, we spend all day long pretending we look WELL.
When we're home, out of the site of friends, co workers and even family, that's when we LOOK our disease, the acting is over.
So, this is me feeling pretty good...
And this is me in the middle of having a flare...
There can be any number of things going on when you have an invisible illness, you never know just by looking at someone. The old saying, don't judge a book by it's cover, absolutely applies to IBD people or anyone suffering with an invisible illness. Only they know how they're doing, so think twice before saying...
"...but...you don't LOOK sick"
Not only because of the health issues that are associated with your illness, but trying to "prove" to others that you are actually sick. Crohn's disease is an invisible illness, meaning you cannot visibly see that there is anything wrong. I relate it to a duck on a pond. On the surface you see a duck, calm as can be, but beneath the water his webbed feet are moving around at a frantic pace.
In my case, I look "normal" on the outside, but some days I am in pain, or fatigued, or dehydrated, etc. all the while putting on a brave face so others don't constantly ask, "are you okay?".
I think those that suffer from IBD (inflammatory bowel disease) are the BEST actors in the world, we spend all day long pretending we look WELL.
When we're home, out of the site of friends, co workers and even family, that's when we LOOK our disease, the acting is over.
So, this is me feeling pretty good...
And this is me in the middle of having a flare...
There can be any number of things going on when you have an invisible illness, you never know just by looking at someone. The old saying, don't judge a book by it's cover, absolutely applies to IBD people or anyone suffering with an invisible illness. Only they know how they're doing, so think twice before saying...
"...but...you don't LOOK sick"
Monday, November 12, 2018
You Might Be A Crohnie
If your son's nickname for you is "the ass of death"
... you might be a Crohnie
... you might be a Crohnie
Friday, November 9, 2018
Remicade : Day 2299
I have had the same IV nurse for almost all of my 2299 days, but sadly she has since retired and my first infusion with a new nurse.... she misses the vein 😒
I said I wanted to heat up my hand, but she insisted she could get the vein....needless to say, she let me heat it up a good 10-15 minutes before trying again.
After I unwrapped my hand, she said, "Oh, that's better!"
Really.......
I said I wanted to heat up my hand, but she insisted she could get the vein....needless to say, she let me heat it up a good 10-15 minutes before trying again.
After I unwrapped my hand, she said, "Oh, that's better!"
Really.......
Thursday, October 25, 2018
My Sit Down With Pamela Jessen
For the month of October, Pamela Jessen, a chronic illness blogger featured HERE is featuring interviews with a wide variety of people with chronic illnesses. It was a pleasure to be interviewed by here and to be included with such great people, including fellow Crohn's blogger Jenni from Jenni's Guts I am always honored and humbled to be included with the many people bringing awareness to their predicament
Thanks to Pamela for keeping awareness alive for all kinds of chronic illness sufferers.
Thanks to Pamela for keeping awareness alive for all kinds of chronic illness sufferers.
Tuesday, October 23, 2018
Monday, October 15, 2018
You Might Be A Crohnie...
*Repost*
If you can actually spell G-A-S-T-R-O-E-N-T-E-R-O-L-O-G-I-S-T.....
you might be a Crohnie
.
If you can actually spell G-A-S-T-R-O-E-N-T-E-R-O-L-O-G-I-S-T.....
you might be a Crohnie
.
Friday, October 5, 2018
Remicade : Day 2263
Bitter sweet infusion a week ago Wednesday. The infusion nurse that I've had since Day 1 told me that she is retiring and I'll have someone new at my next infusion.
My infusion nurse, Margaret, you have to understand, would call me hours before my scheduled appointment to see if I wanted to come in early so I can get home in time for my kids. My infusions are only an hour, but with weighing in, paperwork, prepping the "juice", etc. it was more like an hour and a half, so she would call when she got there and ask if I wanted to come early. I was always waiting at home doing nothing anyway, so I took her up on her offer every time.
She only worked the one day a week, my day, but she had been a nurse all her life and was time to do other things. Good for her.
She would use the same vein on my left hand, affectionately called "Margaret's vein". I'm thinking I'm not going to get the same kind of treatment, but you never know, I might get someone just as nice.
My infusion nurse, Margaret, you have to understand, would call me hours before my scheduled appointment to see if I wanted to come in early so I can get home in time for my kids. My infusions are only an hour, but with weighing in, paperwork, prepping the "juice", etc. it was more like an hour and a half, so she would call when she got there and ask if I wanted to come early. I was always waiting at home doing nothing anyway, so I took her up on her offer every time.
She only worked the one day a week, my day, but she had been a nurse all her life and was time to do other things. Good for her.
She would use the same vein on my left hand, affectionately called "Margaret's vein". I'm thinking I'm not going to get the same kind of treatment, but you never know, I might get someone just as nice.
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