That time of year again. The weather starts to get colder, the thicker coats come out, Christmas trees and lights go up and the advent calendars start to be opened.
I bring out my special Crohn's calendar and open a door each day. This year calendar looks like a large shopping mall with 24 public bathroom stall doors.....
Let's get this party started shall we...
Opening the first bathroom stall door to find....
prednisone !!!
Tune in each day to see what's behind each door.
Email me at crohnsltsd@gmail.com with what you'd like to see
Sunday, December 3, 2017
Friday, November 24, 2017
You Might Be A Crohnie
If "going out" for a couple of hours, takes days to prepare
... you might be a Crohnie
... you might be a Crohnie
Monday, November 20, 2017
Remicade Levels
Saw my Gastro this morning, my 6 month check up, this time I came with a list.
My Remicade levels are smack dab in the middle, which is great. She seemed happy. Had my results from MRI and it shows that there is no "significant difference" than my last one in 2015, though shes worried about maybe a tumor "hiding" behind scar tissue. I need to go for a sigmoidoscopy every year now instead of every two years. The good news is there is no inflammation showing...yay....just scar tissue and significant perianal disease.
Today was the day I was suppose to have ostomy surgery but I had cancelled it. I didnt NEED the surgery, just the surgeon recommended it as there is no way to fix my perianal disease. It doesn't mean I wont have the surgery one day, just not today. Its taken me 30 years to be comfortable and accustomed to my way of life, I dont want to start again right now. Many reasons, but the main one is mentally, I'm not ready
So, other than the Crohn's disease, perianal disease, anal stricture, joint pain, scalp psoriasis, fatigue, etc.....I'm good.
My Remicade levels are smack dab in the middle, which is great. She seemed happy. Had my results from MRI and it shows that there is no "significant difference" than my last one in 2015, though shes worried about maybe a tumor "hiding" behind scar tissue. I need to go for a sigmoidoscopy every year now instead of every two years. The good news is there is no inflammation showing...yay....just scar tissue and significant perianal disease.
Today was the day I was suppose to have ostomy surgery but I had cancelled it. I didnt NEED the surgery, just the surgeon recommended it as there is no way to fix my perianal disease. It doesn't mean I wont have the surgery one day, just not today. Its taken me 30 years to be comfortable and accustomed to my way of life, I dont want to start again right now. Many reasons, but the main one is mentally, I'm not ready
So, other than the Crohn's disease, perianal disease, anal stricture, joint pain, scalp psoriasis, fatigue, etc.....I'm good.
Tuesday, November 14, 2017
You Might Be A Crohnie...
If you have read every magazine at the doctor's office and get excited when new ones arrive
...you might be a Crohnie
...you might be a Crohnie
Tuesday, November 7, 2017
Thank you!
Along with some other great IBD bloggers, this blog was noticed by Medical News Today as one of the top 10 Crohn's Disease blogs.
Its great to be noticed and am happy that others are getting something from what I have to say about a disease no one wants to talk about. Having said that, with my fellow bloggers, more and more IBD is coming to the fore front to get it out there, to eliminate the stigma.
It's not just a "pooping" disease, there is so much more.
Thanks to Medical New Today !!
Its great to be noticed and am happy that others are getting something from what I have to say about a disease no one wants to talk about. Having said that, with my fellow bloggers, more and more IBD is coming to the fore front to get it out there, to eliminate the stigma.
It's not just a "pooping" disease, there is so much more.
Thanks to Medical New Today !!
Friday, October 27, 2017
Remicade : Day 1919
Infusion #47, almost 5 and a half years now and still going strong.
Remicade has reduced my symptoms drastically, but hasn't eliminated them totally and I'm OK with that.
The days sometimes are tough and tiring, but at least I haven't ended up in hospital for them and I can deal with my Crohnie problems from the comfort of my own home instead of the hospital environment.
Don't get me wrong, it's good to know that the hospital is there if I need it, I'm just glad I don't need it. I still need to make a decision regarding an ostomy or not. It's a hard decision but I think I'm leaning to the "not right now" side of things. It's taken me almost 30 years to get use to doing things a certain way and dealing with my Crohn's, I don't know if I want to learn it all over again.
Right now, I don't "need" the surgery, but when I do, or if I do, I'll deal with it then.
Remicade has reduced my symptoms drastically, but hasn't eliminated them totally and I'm OK with that.
The days sometimes are tough and tiring, but at least I haven't ended up in hospital for them and I can deal with my Crohnie problems from the comfort of my own home instead of the hospital environment.
Don't get me wrong, it's good to know that the hospital is there if I need it, I'm just glad I don't need it. I still need to make a decision regarding an ostomy or not. It's a hard decision but I think I'm leaning to the "not right now" side of things. It's taken me almost 30 years to get use to doing things a certain way and dealing with my Crohn's, I don't know if I want to learn it all over again.
Right now, I don't "need" the surgery, but when I do, or if I do, I'll deal with it then.
Sunday, October 22, 2017
The Faces of Crohn's
So, have you ever wondered what Crohn's looks like? And I don't mean the graphic photos of intestines etc, I mean the people. I personally have become an expert on "looking well" instead of looking sick.
The face of Crohn's/IBD can be your mother, father, brother, sister, child, grandparent, friend, foe, teacher, co worker, boss, neighbor, celebrity, sports star, Olympic athlete, etc.
As an invisible illness, you just never know who's suffering and a daily basis.
You want to know what someone with IBD looks like?
It's me.
The face of Crohn's/IBD can be your mother, father, brother, sister, child, grandparent, friend, foe, teacher, co worker, boss, neighbor, celebrity, sports star, Olympic athlete, etc.
As an invisible illness, you just never know who's suffering and a daily basis.
You want to know what someone with IBD looks like?
It's me.
Sunday, October 15, 2017
Friday, October 13, 2017
Crohns Disease Essentials and Emergency Kits
Again, from IBD News Today, a fantastic column by Mary Horsley
I would encourage everyone to follow her blog It Could Be Worse
IBD News Today
I would encourage everyone to follow her blog It Could Be Worse
IBD News Today
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