Crohn's, Sweat and Tears

Last week I saw a dietician to get started (or restarted) on an eating plan.  High protein, low fibre, little and often.  So, I have my regular breakfast, lunch and dinner, but also snacks at 9am and 3pm and another around 8pm.  I already feel I have a little more energy throughout the day.  I usually ate around 6am before work and not again until lunchtime, mainly because I didn't want to have to go to the bathroom at work (I come home for lunch).
With the help of a fellow Crohn's patient I met on Twitter, I have a 3 circuit workout program which I started on Wednesday.  DAMN!  am I out of shape!  I only did 4 exercises, 6 reps of each and I was so out of breath I had to lay down.  I'm sensing this is going to be a long process.  I certainly don't have the body of when I was a competitive skater.....no where near.
But....I have the ball rolling and have to keep it rolling, wish me luck!

New Crohn's Drug !!

A promising new drug treatment for us...from the New England Journal of Medicine....specifically a new oral drug, Mongersen.  It's just in the clinical stage, but results are promising.


http://www.nejm.org/doi/full/10.1056/NEJMoa1407250


I love when they come up with new treatments !!!!

Crohnie Quote Of The Day

"Having Crohn's is like having an extremely bad case of the flu......except you throw up out your ass"




*please note that by no means am I saying Crohn's is like the flu

Crohn's Inspired Tattoo's

Do you have a Crohn's inspired tattoo..??  Want to inspire others with your tattoo..??
All you have to do is send in a clear photo of your tattoo +  a short description, with the subject “My Crohn’s tattoo,” to nlascurain@healthline.com
They'll feature the tattoos on the Healthline website and help inspire others with Crohn's Disease by those who aren’t afraid to let the world know that they’re survivors.


Click the link to get more information
http://www.healthline.com/health-slideshow/crohns-tattoos#2


Share 'em if you got 'em !!
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Crohns Tips

Did you know that the emulsifier, polysorbate 80, is in the flu vaccine you get every year...??

Emulsifiers

Found this interesting article about a study that was recently published out of the US about emulsifiers and IBD.
Specifically the additives CMC and polysorbate 80.....time to REALLY change my diet!


http://news.sciencemag.org/biology/2015/02/common-ingredient-packaged-food-may-trigger-inflammatory-disease

Crohnie Quote Of The Day

1 teaspoon (of ice cream) = 4 minutes (until I'll have to go to the toilet)

Remicade : Day 952

Once again I drive the 20 minutes to the clinic, wearing my one glove on my left hand, with my iPad, wordsearch, glasses, pen and hard candy laying in the passenger seat along with the blue bag of "juice".
This trip to the clinic there aren't that many "Crohn's problems" other than the usual aches and pains.  Though I am very uncomfortable as I pulled something in my back moving a plant pot believe it or not.  All this is minor compared to what others go through each and every day.  The more this disease takes from me, the more I see it all pointless to complain.  Yes, I have problems with eating, drinking and I go to the bathroom WAY more than the 'normal' person.  I'm fatigued all the time, pain some of the time, but I have a strong heart, lungs,......well that's about all I have strong.....
Then yesterday I watched the Ellen show and saw again Tayt.  He needs a new heart.  But watching this little guy, makes me want to shake my head for the times I feel "sorry" for myself in having this disease.  See for yourself...


http://youtu.be/r5XrOS2cz0Q


If you ever feel down, just watch this guy...

Crohnie Quote Of The Day

"Epsom Salts are your new best friend"

What's Crohn's Like....??

Over the time I've been "blessed" with Crohn's, I can't remember how many times I've been asked, "what's Crohn's?" or my personal favorite, "what's Crohn's like?".  Not sure even how to answer the last one.  But it got me thinking.....how does one answer the question, what is Crohn's like?


So.  Here is my answer from MY perspective (as everyone's Crohn's experience is different)
A crohn-alogy if you will.


Imagine if you will, being tired, exhausted and worn out all the time.  Like, if you were to run a marathon at least once...everyday.  Then throw in dehydration and the constant dry mouth and thirst.  Add to that the knowledge that at any minute, and I mean any minute, you can be in hospital from an intestinal block or a number of other reasons.  Mix in frequent bowel movements (with the occasional loss of a pint of blood or two), ten, twenty, thirty times a day.  Sometimes 10 times in an hour.  Stir in abdominal pain, abscesses, fissures, fistulas, dry skin, scars, hemorrhoids, kidney stones, Iron and B12 deficiencies and a bleeding rectum. The fetal position is one of your favorite ways to lay down.  Pillows are your new best friends.  Fold in daily doses of pill after pill after pill and monthly liquid doses of a biologic drug slowly dripped directly into your vein that costs more than your first car......
then, and only then, will you get a sense of what ONE persons life is with Crohn's.


....what Crohn's is like.....for him.


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