Struggling With Crohns ??

I get asked about how I handle having Crohn's.  The day to day, the not knowing, the pain, the frequent bathroom visits, the this, the that.
Honestly....sometimes I just want to sit and do nothing, but I know I have to get up and get going and not let the Crohn's take over.
In the beginning of my "journey" I just wanted to give up, but learned over time, that it's just one step at a time.  They are small steps, but steps all the same.
Or as this video shows.....one foot in front of the other.

http://youtu.be/OORsz2d1H7s

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Remicade : Day 497

I arrived for my infusion early, as I always do, but this time there was no one in front of me, so I got hooked up early.....awesome.
It's cold here so before I left, I heated up my hand and put gloves on.  Then when I arrived, I put my hand under a heating blanket....made my veins pop right out...awesome again.
Then I found out this infusion was lucky #13, so instead of bad or weird things happening, it was one of the best infusions.  No problem with the IV needle, quick infusion, no worries.


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Crohnie Quote Of The Day

You know your medication is expensive when even the pharmacist looks at the price and goes, "Whaaaaaaat??!!!"



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Crohn's and Star Trek

You might be asking yourself what has Crohn's got to do with Star Trek?
Well, I was watching Star Trek Next Generation and started to laugh at the end of the opening monologue where they say..."to boldly go where no one has gone before"...
I laughed because "to boldly GO..", so of course, being who I am, I automatically thought of going to the bathroom.
So, I came up with my own monologue for me and my Crohn's.....in the context of Star Trek,,

Crohn's, The Inflammatory Bowel Disease
These are the experiences of the Crohnie, Vern
His ongoing mission
To explore strange new bathrooms
To seek out new toilets and new bidets
To boldly GO where no one has gone before....

(insert music here)

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Crohn's Survey

Hey there fellow Crohnies.  A fellow Crohnie in the UK is  creating a program for women living with chronic bowel disorders and would like you (women) to fill out a survey to help.

"I am a life coach and am creating a 6 month program designed for women living with chronic bowel disorders who have lost their mojo along the way! (Loss of femininity, sexuality, body confidence, ability/desire to be physically intimate for example)

I have had Crohn's for 25 years, pretty bad for the most part. I have battled with depression, low self esteem, poor body image, low sex drive, problems with intimacy in relationships etc etc for many years due to the effects of the disease.  A lot of it boiled down to a lack of information and support.   Luckily, past 2 years on Humira, finally well. "

Here's her link...

https://www.surveymonkey.com/s/Getyoursexyback

Thanks Sasha...good luck!

 

You Might Be A Crohnie If...

If you have 101 different positions to sit on a toilet...
you might be a Crohnie.


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Crohnie Quote Of The Day

 

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Funny Crohn's Song

Saw this on YouTube, love it!
Thanks Sara!

http://www.youtube.com/watch?v=LLbVren6w34

You Might Be A Crohnie If...

If you say the phrase "ahhhhhh, shit!" and mean it, literally...
you might be a Crohnie


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You Might Be A Crohnie If...

If the only thing about your colonoscopy you worry about is whether the video will go viral...
you might be a Crohnie



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