Crohn's Survey

Hey there fellow Crohnies.  A fellow Crohnie in the UK is  creating a program for women living with chronic bowel disorders and would like you (women) to fill out a survey to help.

"I am a life coach and am creating a 6 month program designed for women living with chronic bowel disorders who have lost their mojo along the way! (Loss of femininity, sexuality, body confidence, ability/desire to be physically intimate for example)

I have had Crohn's for 25 years, pretty bad for the most part. I have battled with depression, low self esteem, poor body image, low sex drive, problems with intimacy in relationships etc etc for many years due to the effects of the disease.  A lot of it boiled down to a lack of information and support.   Luckily, past 2 years on Humira, finally well. "

Here's her link...

https://www.surveymonkey.com/s/Getyoursexyback

Thanks Sasha...good luck!

 

You Might Be A Crohnie If...

If you have 101 different positions to sit on a toilet...
you might be a Crohnie.


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Crohnie Quote Of The Day

 

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Funny Crohn's Song

Saw this on YouTube, love it!
Thanks Sara!

http://www.youtube.com/watch?v=LLbVren6w34

You Might Be A Crohnie If...

If you say the phrase "ahhhhhh, shit!" and mean it, literally...
you might be a Crohnie


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You Might Be A Crohnie If...

If the only thing about your colonoscopy you worry about is whether the video will go viral...
you might be a Crohnie



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Colonoscopy Results...Something To Think About

Had my Gastro appointment today and we discussed the results from my colonoscopy back in September.
The usual chit chat about how I am, have I been taking my B12 shots, etc.  I didn't know that if my toes and fingers get a tingling sensation, and I'm low in B12, it's possible to have that feeling permanently.  Then the results...apparently they had to double dose me on the meds to put me in a deeper sleep.  When she tried to go in with the amount of inflammation I have, I was uncomfortable and she gave me more.  That explains why I have absolutely no recollection of coming home from the hospital that day.  I was put out and I awoke at home. 
So, she got past the inflammation and hit more inflammation at about 10cm, got past that and it was clear until about the 20cm mark where she had a bit of trouble but got past that, then all clear.
It's the two points of inflammation she's concerned about and maybe she thinks it would be best to remove it all and have "the bag".
"The bag", the two words many of us crohnies dread to hear.  She believes that it would be the best thing, even though it's not "needed" right now.  I will need to go for the sigmoid-oscopies every year to double check the inflammation, but "the bag" is on the table.
At my age, it might be time to seriously think about it....


........something to think about.


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Crohn-fucius Say...

Crohn-fucius say... when the goin' gets tough, have a liquid diet and lay on the couch



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Crohn's-Inspired Tattoos

Check out these inspiring Crohn's tattoos at healthline.com

http://www.healthline.com/health-slideshow/crohns-tattoos#1

cool!


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Infusions

I have found since my infusions started over a year ago, that I get very tired afterwards.  It lasts for a few days, has anyone else found this??
I like the fact the infusions are working and am no longer taking meds everyday (except for 3 pills at night), but don't like that I'm bagged afterwards.

You know you're tired when.......you're too tired to even play Candy Crush.


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