Funny

One of my friends posted this on Twitter and just had to repost it here.....says it all I think, thanks Shannon!!  Made my day!!

@yukondiva
Selling on Ebay. One pair of fucked up intestines. Really used up and completely shitty condition. Will trade for healthy intestines. Hahaha

Love it!

"Hun.....Watch This"

Laying in bed the other night, watching TV like I always do, I got that 'crohns feeling'.  You know the one, the feeling like you have to go to the bathroom preceded by the sudden, and sometimes painful, cramping feeling.
Well, at least now-a-days for me, the pain isn't there anymore (knock on wood), but the cramping sometimes rears its ugly head. 
As this was happening this time, I looked down to my ab area around my belly button and was a little surprised at what I saw.  So much so, I nudged my wife laying beside me and said, "Hun....watch" as I pointed to my belly button.
And there it was.....like a rolling wave on an ocean.  You could actually watch as food passed through my intestine, obviously because of a little inflammation or something.  I could actually time it.  I would get the cramping feeling followed by "the wave".  First from right to left, then left to right.  Lasted about 10 minutes or so, then, done.
Almost something like the birthing scene from the 1979 movie "Alien" (minus the blood)

It's amazing, as I get older, the small things that entertain me.

10,000 Pageviews !!!

Wow.....!!

Thanks to everyone who has come on by my little blog page to have a read.
It's funny, because when I started to write, it was for me, but on the off chance that others "might" read it as well.  I never thought it would ever...ever...get to 10,000.

So, thanks to those you have come in to my little world via whichever social media outlet, or just Googled "Crohn's", not to mention the other Crohn's sites and blogs that have my site on theirs.

Thanks to my friends and family and to those who leave comments and emails on their own experiences.

Next stop... 100,000!!!!!

Vern

Crohnie Quote of the Day

Don't ask me "what can you eat?"
Tell me what you are planning to have for dinner and I will tell you if I can eat it or not.

It's just easier that way

Remicade : Day 42

3rd infusion of Remicade today, all went well once again.  Had to go to a different infusion site though, and that was a little annoying.  There was no doctor at my usual site so what normally takes me 15 minutes to get to the site....took almost an hour and a half today.  Had to be done though.  I don't see alot of difference but the weight is still going up it appears, slowly.  Weighed in at 70 kilos (154 lbs).  Only about 3-4 kilos in the 42 days....but up is better than down I suppose.  I'll get excited when its about 10 kilos more!

Next dose in 8 weeks!

Yesterday....All My Troubles Seem So Far Away

Since my diagnoses back in 1988, I have been living with, and dealing with, Crohn's for

24 years, 2 months and 27 days

that's.....

8,855 days
212,496 hours
12,749,760 minutes
and
764,985,600 seconds....601.....602....603....604....


Of course, I had Crohn's for months before the "official" diagnoses, but,

well, you get the idea.

Crohnie Quote of the Day

"Crohn's Disease is a pain in the ass......literally"

A Day at the Fair

Went down over the line to the US yesterday and took the family to the Northwest Washington Fair (after stopping at Target to do some shopping of course).
We go down every year for a few reasons, mainly because the kids like all the animals and the wide variety of rides and it's fairly reasonably priced....$60 for parking, 2 adults and 2 kids to get in and 2 ride passes....awesome value.
I am usually wary of going, though I do cuz its fun, because of the fact....well....I have Crohn's and the thought of using the washroom there just give me the willy's!  So, to combat that, I don't eat.  I have breakfast in the morning and go to the washroom several times BEFORE we leave (long drive) and then don't eat again until either we are just leaving to come home, or wait until we get home.  Strangely enough, I don't feel hungry.

BUT, this time was different.  Was it the Remicade?  The Immuran?  Both?  Who knows, but I ate a sandwich which we brought with us, part of my son's, some potato chips, little bit of Coke, some crackers and some cucumber.  How was it you ask?  Fine.  Didn't have to go to the washroom and more importantly, didn't have the feeling of needing to go.  AND I didn't go to the washroom until we got home...8 hours after we left.

I know, I know, to those of you without Crohn's who are saying, "wow....8 hours without going to the bathroom, big deal".....well to those of us WITH it....

.....it's a HUGE deal.

Crohn's and the Olympics Don't Mix

For those of us who enjoy watching the Olympics and have Crohn's.....install a TV in the bathroom.
Especially the opening and closing ceremonies!  Thank God for PVR's !!

Great job London and GB, thoroughly enjoyed it, thanks.
And thanks to our Canadian athletes!!

Remicade : Cost

So, I thought I would take a pic and show it to all those who do not believe that this medication can bankrupt you, eventhough we need it and it helps.....thank god for coverage!

Yes.....that says $3,811.45