Saturday, September 29, 2018

Rigors

This past week has been long and tough. I had been feeling not too bad prior but then last Monday night/Tuesday morning, things just went the opposite direction quickly.
I wanted to show how, with Crohn's, when I say one minute you may be fine and the next you could be in hospital.
Monday was the same as any other, nothing out of the ordinary, other than starting to feel worn down because my Remicade (mouse juice) was coming up on Wednesday. That was until the middle of Monday night. Around 2am I got up to go to the bathroom, again not unusual, and got back into bed and under the covers as I started to feel chilly. I wish I was just feeling cold.
I started to get the shakes and shivers, as one does when you get chilly, but after a good few minutes I knew it was the start of rigors. I don't get them that often but when I first got them, I had no idea what was happening and it scared the hell out of me. The first couple of times, I called the ambulance because it was so severe, my jaw was clenched to the point of becoming locked. The doctors at the hospital had no idea what was happening to me.
For those that don't know what rigors is, simply, its uncontrolled shaking and tensing of all your muscles. I try to calm them down by deep breathing, but it only helps for a few seconds. I even would cover myself with every single blanket in my house. Once I had my son take everything out of the dryer and dump it on me...no help.
It's the most helpless feeling. I want to stop, but can't.
This past attack lasted about 2 hours and, like always, after I threw up, the shaking started to slow and then eventually...just...stop. Then the aches, pains and headaches start. I also run a slight temperature and high heart rate. As you can imagine, after two hours of non stop shaking and clenching, one would ache all over. I feel it in my joints, especially my knees, and all my muscles. My head just pounds for hours and sometimes days. What lasts for hours, takes days to recover.
I was worried this time because my infusion was the next day and I was still running a slight temperature of 37.8C, but my IV nurse said it was still okay. She was more worried about my 115 heart rate. But by the time the infusion was done, it was down to 102, still high, but on its way down. Goes to show how long it takes to recover from a rigors attack.
For me, I no longer go to hospital and ride it out at home because I know that after a few hours, I'm going to throw up and it'll be over. Why it happens? Beats me. I know that Crohn's is a factor and I have an on going abscess, which also is a factor. I figure its another way my body of fighting off some sort of infection. This is my experience with rigors, yours might be different. I've had probably around 10 -20 attacks in 30 years. Always check with your doctor on what you should do.
Hey, if after all these years my body is still fighting... I'll take it.

4 comments:

SammiRyon said...

Wow i have never had anyone say they experienced this b4. It has happened to me maybe 10 times in the last year. I refuse all meds becuz i am sick of the side affects, so i know its not from them.
Its nice to know i am not alone.

Vern Laine said...

Funny, I've never met anyone that has experienced this either... nice to meet you!! LOL Took me a little while to figure out what it was, my Dr was even confused but once I knew, then I stopped going to hospital each time and just let it run its course. Now, the exact REASON why it comes on? No idea. But then again, with Crohn's....who knows.
Nope, not alone.

Unknown said...

I just had this 3 nights ago July 3 had a jacket and blanket on turned my heater up to 80 and I live in florida, needless to say this coincided with my latest flare up. I've had chrons since 2006 spent 5 months in hospital having procedure after procedure then one day the Dr came you need surgery or you won't be alive in 48 hrs were removing half your colon and 14 inches of your lower intestine but your gaining a ileostomy with colostomy bag.wow what a life changer I said no but I had forgotten I had given medical power of attorney to my loving sister, thank God several months later I had a full removal of my unfriendly bag a true nighttime exsplosive terror it was was in remission for many yrs until this flair up I know what caused it was not controlling my dietfew days "overeating"s great greasy food and stress. Thanks for your blg just you and can relate a lot . Thanks

Vern Laine said...

Thanks for sharing!!