You Might Be a Crohnie

If you think the noise from an MRI machine could be used at a Rave...
you might be a Crohnie

Crohn-aversary Month

Back when I was finally diagnosed in 1988, I started going through some major mental health issues that of course I kept inside. Nowadays, I tell people who are newly diagnosed, to seek out help and with the large IBD online community, it's alot easier to find it. I think with COVID 19, seeking out the help is more prevalent than ever. It's easy to say, "just get some help", it's another to actually getting enough guts to get it. I know.
I am not 100% free, but I handle it when I need it, seeking out help from family and online IBD friends who know exactly what I'm going through and I thanks everyone. We've all been through it and we all need help.
I started getting symptoms at the beginning of 1988, which means it been almost 32 and a half years with Crohn's symptoms and disease.
That's 11,844 days.

11,844.

You Might Be a Crohnie

One of my favorites...

If you can actually spell G-A-S-T-R-O-E-N-T-E-R-O-L-O-G-I-S-T.....
you might be a Crohnie

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Crohn's and Colitis Virtual Walk 2020

The Crohn's and Colitis Canada Gutsy Walk was suppose to be today, but COVID19 has changed when and where we will be.

It will now be virtually on August 23, 2020. I'm going to be walking around my neighborhood with my Fitbit.

I have my shirt ready...

I have my mask ready...

I hope everyone will help me raise money for more research and programs for Crohn's and Colitis Canada.

You can donate here...

https://crohnsandcolitiscanada.akaraisin.com/GutsyWalk2020/vernonlaine

I thank everyone in advance!!

Let's find that cure shall we!!

Crohn's Humor

After months or research and years of experience, I have FINALLY figured out what I can eat and drink without any them causing flares, pain or bloating.....

water and ice cubes

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Crohnie Quote of the Day

I am NOT defined by my illness. 

I am WHO I am because of my illness. 

I am WHERE I am because of it..

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Step Up For IBD

World IBD Day

Bringing awareness to Crohn's and Colitis around the world

*picture from Crohn's and Colitis Canada

You Might Be a Crohnie

If you're up all night with your mind racing with strange things like, "why do we park in driveways and drive on parkways"....
you might be a Crohnie

Humira: Day 136

Humira has been an interesting adventure to say the least.
Oh, don't get me wrong, it's still doing the job, but I've had some weird "reactions" these past few injections and other IBD'ers I've talked with say it's strange as well.
So, let's back up...

I started Humira January 2 of this year without any fan fare, all good, pretty boring. Everything was pretty easy and no problems. Since then, I've had what I would call "reactions" after injecting.
Now, I don't know IF it's related to the Humira, but it's too much of a coincidence.
I do my injections every two weeks and I alternate between my left and right side of my abdomen.
Back in April, on back to back injections, I had Rigor attacks. A sudden, and I mean sudden, feeling of cold and chills, uncontrollable shaking and fever. The difference for me though, is I'll keep up with the shaking until I throw up and it slowly eases. It takes several throwing up episodes and hours later, it's gone.
What I'm left with though, is massive joint pain in my knees, hips, neck and jaw from the shaking.
It takes several days to fully recover.
My last two injections I have put in my thigh and no reaction, so I'm wondering if injecting into my abdomen is causing a reaction with my Crohn's. The throwing up makes me believe its causing a "blockage" type scenario.
I usually get Rigor attacks one a year or more before these last episodes. Now I've had two in as many months...weird to say the least. The only common factor is the Humira.
I have an appointment with my gastro soon, I'll talk with her more about it and hopefully I'm not the only one. Wouldn't be the first time.

But hey... it's always nice to be first at something....right?!