Crohnie Quote of the Day

It's amazing how one small change to your diet, makes one large change in your life.


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Remicade : Day 1001

Well, there we have it.  More than 1000 days with my body full of Remicade.
One thing I have noticed since eating more often, is that I am not AS tired as I used to be.  I still am, just not as much.  I use to get tired, or fatigued, about a week prior to infusion day, but this time, I started to get tired about a day prior.  So...an improvement.  I'm still exhausted after the infusion, but still working on that.


1000 days down.....

You Might Be A Crohnie

If you can feel good one minute and be in hospital the next...literally
...you might be a Crohnie

Crohn's, Sweat and Tears

Last week I saw a dietician to get started (or restarted) on an eating plan.  High protein, low fibre, little and often.  So, I have my regular breakfast, lunch and dinner, but also snacks at 9am and 3pm and another around 8pm.  I already feel I have a little more energy throughout the day.  I usually ate around 6am before work and not again until lunchtime, mainly because I didn't want to have to go to the bathroom at work (I come home for lunch).
With the help of a fellow Crohn's patient I met on Twitter, I have a 3 circuit workout program which I started on Wednesday.  DAMN!  am I out of shape!  I only did 4 exercises, 6 reps of each and I was so out of breath I had to lay down.  I'm sensing this is going to be a long process.  I certainly don't have the body of when I was a competitive skater.....no where near.
But....I have the ball rolling and have to keep it rolling, wish me luck!

New Crohn's Drug !!

A promising new drug treatment for us...from the New England Journal of Medicine....specifically a new oral drug, Mongersen.  It's just in the clinical stage, but results are promising.


http://www.nejm.org/doi/full/10.1056/NEJMoa1407250


I love when they come up with new treatments !!!!

Crohnie Quote Of The Day

"Having Crohn's is like having an extremely bad case of the flu......except you throw up out your ass"




*please note that by no means am I saying Crohn's is like the flu

Crohn's Inspired Tattoo's

Do you have a Crohn's inspired tattoo..??  Want to inspire others with your tattoo..??
All you have to do is send in a clear photo of your tattoo +  a short description, with the subject “My Crohn’s tattoo,” to nlascurain@healthline.com
They'll feature the tattoos on the Healthline website and help inspire others with Crohn's Disease by those who aren’t afraid to let the world know that they’re survivors.


Click the link to get more information
http://www.healthline.com/health-slideshow/crohns-tattoos#2


Share 'em if you got 'em !!
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Crohns Tips

Did you know that the emulsifier, polysorbate 80, is in the flu vaccine you get every year...??

Emulsifiers

Found this interesting article about a study that was recently published out of the US about emulsifiers and IBD.
Specifically the additives CMC and polysorbate 80.....time to REALLY change my diet!


http://news.sciencemag.org/biology/2015/02/common-ingredient-packaged-food-may-trigger-inflammatory-disease

Crohnie Quote Of The Day

1 teaspoon (of ice cream) = 4 minutes (until I'll have to go to the toilet)