12 Days a Crohnie Christmas : Day 11

On the eleventh day of Christmas, my Crohns Disease gave to me.........
...11 packs of underwear,

10 visits to the ER,
9 blood tests,
8 B12 shots,
7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.

Crohnie Advent Calendar : Day 23

Opening door #23 today to find....

designer ostomy bags!!!
(I don't need them......yet, but they look cool)

Check back tomorrow for the last door

12 Days a Crohnie Christmas : Day 10

On the tenth day of Christmas, my Crohns Disease gave to me.........
...10 visits to the ER,

9 blood tests,
8 B12 shots,
7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.

Crohnie Advent Calendar : Day 22

Opening door #22 today to find....

12 pack of Boost !!!
(for those vitamins and minerals)

Check back each day until Dec 24 !

12 Days a Crohnie Christmas : Day 9

On the ninth day of Christmas, my Crohns Disease gave to me.........
...9 blood tests,

8 B12 shots,
7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.

Crohnie Advent Calendar : Day 21

Opening door #21 today to find....

$1000 iTunes gift card !!!
(for those long hospital nights.....and days)

Check back each day until Dec 24 !

12 Days a Crohnie Christmas : Day 8

On the eighth day of Christmas, my Crohns Disease gave to me.........
...8 B12 shots,

7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.

Crohnie Advent Calendar : Day 20

Opening door #20 today to find....

Funky looking socks !!!
(for those long hospital nights)

Check back each day until Dec 24 !

Remicade : Day 2339

When I went to my Gastro in November, she recommended we up the dose on my Remicade (Infliximab) infusions, from 400mg to 600 mg.
She stated that new research has shown that for those on the biologic, where the Remicade levels are remaining normal but the Crohn's is not 100% in remission, raising the mg can help with the process.
For me, I still have the nagging peri anal abscess and she said that they would like to raise it to 1000 mg to maybe get rid of the fistulas and abscess.
So today was the first infusion in this process. We started at 600 mg and will do 600 mg for a while to see how my body reacts to the higher dosage. I'm still on the fast track so the actual infusion is only just over an hour and its been about 5 hours and I feel fine, just a little more tired than usual.

Fingers crossed this works.

12 Days a Crohnie Christmas : Day 7

On the seventh day of Christmas, my Crohns Disease gave to me.........
...7 different doctors,

6 Remicade infusions,
5 fistulaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.