On the ninth day of Christmas, my Crohns Disease gave to me.........
...9 blood tests,
8 B12 shots,
7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.
Friday, December 21, 2018
Crohnie Advent Calendar : Day 21
Opening door #21 today to find....
$1000 iTunes gift card !!!
(for those long hospital nights.....and days)
Check back each day until Dec 24 !
$1000 iTunes gift card !!!
(for those long hospital nights.....and days)
Check back each day until Dec 24 !
Thursday, December 20, 2018
12 Days a Crohnie Christmas : Day 8
On the eighth day of Christmas, my Crohns Disease gave to me.........
...8 B12 shots,
7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.
...8 B12 shots,
7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.
Crohnie Advent Calendar : Day 20
Opening door #20 today to find....
Funky looking socks !!!
(for those long hospital nights)
Check back each day until Dec 24 !
Funky looking socks !!!
(for those long hospital nights)
Check back each day until Dec 24 !
Wednesday, December 19, 2018
Remicade : Day 2339
When I went to my Gastro in November, she recommended we up the dose on my Remicade (Infliximab) infusions, from 400mg to 600 mg.
She stated that new research has shown that for those on the biologic, where the Remicade levels are remaining normal but the Crohn's is not 100% in remission, raising the mg can help with the process.
For me, I still have the nagging peri anal abscess and she said that they would like to raise it to 1000 mg to maybe get rid of the fistulas and abscess.
So today was the first infusion in this process. We started at 600 mg and will do 600 mg for a while to see how my body reacts to the higher dosage. I'm still on the fast track so the actual infusion is only just over an hour and its been about 5 hours and I feel fine, just a little more tired than usual.
Fingers crossed this works.
She stated that new research has shown that for those on the biologic, where the Remicade levels are remaining normal but the Crohn's is not 100% in remission, raising the mg can help with the process.
For me, I still have the nagging peri anal abscess and she said that they would like to raise it to 1000 mg to maybe get rid of the fistulas and abscess.
So today was the first infusion in this process. We started at 600 mg and will do 600 mg for a while to see how my body reacts to the higher dosage. I'm still on the fast track so the actual infusion is only just over an hour and its been about 5 hours and I feel fine, just a little more tired than usual.
Fingers crossed this works.
12 Days a Crohnie Christmas : Day 7
On the seventh day of Christmas, my Crohns Disease gave to me.........
...7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.
...7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.
Crohnie Advent Calendar : Day 19
Opening door #19 today to find....
Underwear!!!
(enough said)
Check back each day until Dec 24 !
Underwear!!!
(enough said)
Check back each day until Dec 24 !
Tuesday, December 18, 2018
12 Days a Crohnie Christmas : Day 6
On the sixth day of Christmas, my Crohns Disease gave to me.........
...6 Remicade infusions,
5 fistulaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.
...6 Remicade infusions,
5 fistulaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.
Crohnie Advent Calendar : Day 18
Opening door #18 today to find....
Germoline !! (antiseptic cream)
(to keep those burning areas calm)
Check back each day until Dec 24 !
Germoline !! (antiseptic cream)
(to keep those burning areas calm)
Check back each day until Dec 24 !
Monday, December 17, 2018
Crohnie Advent Calendar : Day 17
Opening door #17 today to find....
Heating pad !!
(to make those veins pop....or just to keep warm)
Check back each day until Dec 24 !
Heating pad !!
(to make those veins pop....or just to keep warm)
Check back each day until Dec 24 !
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