Crohnie Advent Calendar

Opening the bathroom stall door this morning to find...

 multi vitamins!!!!!



Email me at crohnsltsd@gmail.com with what you'd like to see

Crohnie Advent Calendar

Opening the bathroom stall door this morning to find...

pre-packed hospital bag !!!!!



Email me at crohnsltsd@gmail.com with what you'd like to see

Crohnie Advent Calendar

Opening the bathroom stall door this morning to find...

B12 !!!!!




Email me at crohnsltsd@gmail.com with what you'd like to see

Crohnie Advent Calendar

Opening the bathroom stall door this morning to find...

underwear !!!




Email me at crohnsltsd@gmail.com with what you'd like to see

Crohnie Advent Calendar

Opening the bathroom stall door this morning to find...

liquid iron !!!




Email me at crohnsltsd@gmail.com with what you'd like to see

Crohnie Advent Calendar

Opening the bathroom stall door this morning to find....

toilet paper !!!



Email me at crohnsltsd@gmail.com with what you'd like to see

Crohnie Advent Calendar

That time of year again.  The weather starts to get colder, the thicker coats come out, Christmas trees and lights go up and the advent calendars start to be opened.
I bring out my special Crohn's calendar and open a door each day.  This year calendar looks like a large shopping mall with 24 public bathroom stall doors.....

Let's get this party started shall we...

Opening the first bathroom stall door to find....

prednisone !!!

Tune in each day to see what's behind each door.

Email me at crohnsltsd@gmail.com with what you'd like to see

You Might Be A Crohnie

If "going out" for a couple of hours, takes days to prepare
... you might be a Crohnie

You Might Be A Crohnie

If you often feel like a pin cushion
... you might be a Crohnie

Remicade Levels

Saw my Gastro this morning, my 6 month check up, this time I came with a list.
My Remicade levels are smack dab in the middle, which is great. She seemed happy.  Had my results from MRI and it shows that there is no "significant difference" than my last one in 2015, though shes worried about maybe a tumor "hiding" behind scar tissue.  I need to go for a sigmoidoscopy every year now instead of every two years.  The good news is there is no inflammation showing...yay....just scar tissue and significant perianal disease.

Today was the day I was suppose to have ostomy surgery but I had cancelled it.  I didnt NEED the surgery, just the surgeon recommended it as there is no way to fix my perianal disease.  It doesn't mean I wont have the surgery one day, just not today.  Its taken me 30 years to be comfortable and accustomed to my way of life, I dont want to start again right now.  Many reasons, but the main one is mentally, I'm not ready

So, other than the Crohn's disease, perianal disease, anal stricture, joint pain, scalp psoriasis, fatigue, etc.....I'm good.