You Might Be A Crohnie

If you pull a muscle while going to the toilet...
you might be a Crohnie

Crohnie Quote Of The Day

My life has changed, and I'm changing with it

-Sophie Kinsella

Crohn's Obituary *repost*

I posted this about 4 years ago and I thought I would repost it because today at work I got to thinking, "would I ever feel 'good' again?", "would there ever be a day that I can go out somewhere and not have to worry if I can even make it?" 

Would there ever be a day that Crohn's Disease....dies?

Here's what I would write as an obituary for the disease....

Crohn’s Disease, prominent bowel disease, died last night from complications of losing his soul mates Ileitis and Colitis. No one is really sure of his age, but according to written records, he was over 85 years old.

Asked about the loss of his dear friend, IBS, the soon to be obsolete and forgotten disease, described Crohn’s as complicated and was looked up to by other diseases of the body for his wide range of symptoms.

In the final days of his life, he revealed an unknown side of his psyche.  This hidden quasi-Freudian persona surfaced in the super-ego-like pursuit of his desire to be the number one disease.   

Sadly, the protracted search ended early Monday morning in complete and utter failure.  Yet even in certain defeat, the courageous Crohn’s secretly clung to the belief he was to live forever.

He is survived by IBS but has also come to the realization that soon another obituary will be written about him and will only survive in the pages of old medical journals.

Go Figure

***WARNING: POOP TALK***

Having Crohn's for almost 30 years, I'm still learning things.  The past few days for example.
I've been having bloating and pain, rushing to the toilet only NOT be able to go.  I have the feeling to go, but.....nothing.  Two days of anxiety, pain, bloating, worry and WTF!; today, I might have figured it out.
I didn't eat today except for some toast and tea in the morning trying to get my gut to relax.  Still running to the toilet...and nothing...again and again and again, sometimes 4-5 times in an hour.
Then the "ahhhhhhh" moment tonight.  Not only because I finally went, but probably the reason why.
Ninety-nine percent of the time, it's water, but this time it was semi formed!!  I haven't had that in decades!  Which is why I was hurting I think.  What's left of my large intestine couldn't handle the non watery stool.
The lack of pressure now is such a relief, to the point where I can actually sit down!!
Welllllllll, except for the peri anal abscess, but that's another story.
 

You Might Be A Crohnie

If you have the energy of a sloth but can still get to the toilet in under 3 seconds...
you might be a Crohnie

You Might Be A Crohnie

If you constantly adjust your belt notches throughout the day
...you might be a Crohnie

Chronic Illness "Jeopardy"

So, last night I couldn't get to sleep and finally just got up, went downstairs and laid on the couch to watch some TV.  Flipping through the channels, I briefly saw a Jeopardy category called "4 Letter Words" so I stopped, thinking maybe some brain work would make me tired.

One of the contestants picked the category and the first one was, "high quality".  No one got it, but the word was "fine".  I immediately talked back to the TV (cuz that's what I do) and said, "that's so not the right clue for the word. The clue should have been, 'people with chronic illnesses describe themselves as this when asked', answer, 'what is 'fine' "

I guess it was too long of an "answer", but I would have nailed it!

Remicade : Day 1709

Coming closer to 5 year anniversary with Remicade.  Now it's just "routine" for me every six weeks.  Go in the the infusion clinic, weigh in, temperature taken, blood pressure taken, wrap my hand in a warming blanket set to high, to make the veins in my hand "pop", get hooked up to the juice and an hour later, I'm done.

Though....

Since January my blood pressure has been high.  Not normal for me.  I've never had a blood pressure problem.....ever.  But it fluctuates throughout the infusion.  Today was 152/103 to start, then down to 148/99, then up to 153/100 and at the end 163/109!!  What the hell!  The nurse sent notes with my past 6 months vitals to the Gastro to see if she has an opinion.
Not looking forward to the answer.  I have enough problems, thanks.

Crohnie Quote Of The Day

You Might Be A Crohnie

If you can do a complete wardrobe change while sitting on the toilet...
you might be a Crohnie
.