Crohn's Advent Calendar - Day 4

Lifting the toilet seat door to find...

shampoo samples !!! (for when you have to go in to hospital)

Crohn's Advent Calendar - Day 3

Lifting the toilet seat door to find...

underwear !!!

Crohn's Advent Calendar - Day 2

Lifting the toilet seat door to find...


prednisone !!!!

Crohn's Advent Calendar - Day 1

Morning all!  It's that time of year again, the month of opening my Crohn's advent calendar.
Hope everyone has a healthy month!


Opening the first door, which looks like a toilet seat, to find.....


toilet paper !!!!




Come back each day to see what's next....

Remicade : Day 1583

Nothing too exciting about this dose of juice.  Although, I'm finding more and more that I'm "needing" the infusion as it gets closer simply because I get run down and tired, not to mention the abscesses and fissures appearing more now. I'm starting to have problems with my scalp now, but need to go to dermatologist in a few weeks to find out whats going on there.  Is it the Remicade?  Is it my age? Is it "just because"?  Who knows anymore.  After 28 years with Crohns, I can never tell and just deal with whatever comes my way with a smile on my face.....sometimes.
I keep trying to tell myself that it could be worse and there are millions of people in the world who are having a way tougher time than me.

You Know You're Flaring When...

You know you're having a flare when....

...you break down and actually USE the public washroom !!

Remembrance Day

At the 11th hour, on the 11th day of the 11th month we all (or should) pause and remember and give thanks to the men and women that have served our countries and have not returned to their families.  In the 28 years of living with the pain, surgeries, discomfort, odd looks, emergency room visits, worked missed because of Crohn's, I haven't forgotten what those before me sacrificed.
And to say that, what I go through is nothing compared to what they did.



I have nothing to complain about.

You Might Be A Crohnie

If you find yourself hoarding the mini shampoo bottles from hotels to replenish your stock for when you go in to hospital
...you might be a Crohnie

Crohnie Quote Of The Day

"My life is a constant battle for my love of food and not wanting to be in pain"

Remicade : Day 1546

This month was really non eventful as far as my infusion goes.  It was the lead up that had all the "excitement".  To start, my infusion was changed from my usual "home base" to one further away, which is fine I guess, but it screws with my routine the day of.  I forgot to pre order my meds so I was freaking out the pharmacy wouldn't be able to get it in in time.  I usually call it in about 4-5 days before just in case they have to get it in...but I forgot and ordered it the day before! Luckily they got it in about 3 hours before I had to leave, whew! I can't believe how much these meds cost and how it keeps rising in price!  Then, when I got to the infusion place, it was soooo busy I had to get my IV started in the waiting room.  The company that schedules everything, clearly overbooked or didn't take into consideration the time everyone's infusions take.  The nurses were great, but clearly were being run off their feet.  They kept apologizing but I told them not to worry about it, it obviously was not their fault.  Then after my dose of the juice, I left and forgot my cold bag and had to go back but needed to get some blood work done anyway to check my Remicade levels...but it was a very eventful Remicade 1546 day.  Hopefully my next wont be.