Sunday, October 16, 2016
Remicade : Day 1546
This month was really non eventful as far as my infusion goes. It was the lead up that had all the "excitement". To start, my infusion was changed from my usual "home base" to one further away, which is fine I guess, but it screws with my routine the day of. I forgot to pre order my meds so I was freaking out the pharmacy wouldn't be able to get it in in time. I usually call it in about 4-5 days before just in case they have to get it in...but I forgot and ordered it the day before! Luckily they got it in about 3 hours before I had to leave, whew! I can't believe how much these meds cost and how it keeps rising in price! Then, when I got to the infusion place, it was soooo busy I had to get my IV started in the waiting room. The company that schedules everything, clearly overbooked or didn't take into consideration the time everyone's infusions take. The nurses were great, but clearly were being run off their feet. They kept apologizing but I told them not to worry about it, it obviously was not their fault. Then after my dose of the juice, I left and forgot my cold bag and had to go back but needed to get some blood work done anyway to check my Remicade levels...but it was a very eventful Remicade 1546 day. Hopefully my next wont be.