Wednesday, March 16, 2016

Remicade Day : 1332

I've been sick with a "simple cold" for the past few weeks coughing, headache, stuffed up, etc. so I thought going in to the clinic that my weight would be down....hmmmm, wrong!
I stepped on the scale only to find that I had actually gained 4kg's !!  (that's 8 lbs)  I was shocked.
This Remicade is working great for my Crohn's so far.....except for that nagging, annoying, irritating peri anal abscess thingy.  Once you get past that, then all good. 
I still miss my old body, the one that use to figure skate 5 days a week and soccer twice a week.  I'm resigned in the fact I will probably never get that again, but who knows, I should start working out.  I would have to start off slow and easy, like I had a sports injury or something, but we'll see.

Monday, March 14, 2016

You Might Be A Crohnie

If you have all the ingredients memorized on the bottles in your bathroom
...you might be a Crohnie

Thursday, March 10, 2016

Wearable Art

I have added my artwork to clothing and have started with women's silk scarves

http://shopvida.com/collections/voices/vern-laine

Hopefully I can add more clothing as well as artwork.

Tuesday, March 1, 2016

You Might Be A Crohnie

If the question, "how are you feeling?", is THE most difficult question in the world to answer
...you might be a Crohnie

Thursday, February 18, 2016

It's Just A Cold...

When I use to hear this from people that didn't understand my "predicament", I would go in to a long spiel about how I have Crohn's and there never is "just a cold" anymore.
Today when people say it to me, I just roll my eyes, shake my head and smile...sort of.
I wish I could "just have a cold" like I use to 30 years ago, gone are the days of catching a cold and take some medicine.  The cold medicines that use to help me now cause me problems, either with pain, discomfort or major diarrhea.
I caught a cold the other day and I had a sore throat that felt as though something was stuck in there;  my voice sounded like Barry White.....only deeper; a headache, but the sharp ones behind your eyes; runny nose, like a tap; cough that I feel in my chest, back and causes pain in my abdomen each and every time; muscle and joint pain that makes me feel like I'm 97 instead of 47; and dehydration that takes the wind out of me each and every time walking up stairs and, well.....just walking.
So, no, it's not just a cold.  Maybe for all the "healthy" people it's just a cold, but maybe think twice before telling someone else, it's just a cold, you have no idea what a cold is.

Sunday, February 7, 2016

Tuesday, February 2, 2016

You Might Be A Crohnie

If getting out of bed is one of the highlights of your day...
you might be a Crohnie

Wednesday, January 27, 2016

Remicade : Day 1282

It's funny, when you see 1282 days, it doesn't look like a lot.....but when you convert it to years, it's 3 1/2 years!  Certainly doesn't feel like it that's for sure.
But after all this time getting treatment sitting in those chairs, getting poked and juiced up and reading my iPad, I came across yet another Crohn's patient passing away from complications to this god forsaken disease.
It doesn't necessarily mean that I'm going to die from it, but there is always the possibility I guess.  I know I will be at a higher risk for colon cancer or lung disease and as I age, there's the risk of malnutrition.  Then again....anything can happen at any time no matter if you have a disease or not. 
I thought of my wife and kids and how they would be when I'm gone.  Then I thought about how many days, outings and trips I've missed because of my Crohn's.  So maybe I should make each day count we spend together, whether that be having dinner together, watching a movie or reading a book together. #makeeachdaycount
Then after all that "thinking", my infusion was over and I thought, you do an awful lot of thinking while sitting in a leather Lazy Boy.







Tuesday, January 26, 2016

Protein Bars


Finally found a protein bar that doesn't cause me any discomfort or pain. I found them at WalMart and Costco here in Canada.