Not having any success with anti-TNF's? Wish there was something else? There's a new study about new drugs for those of us on anti-TNF's that aren't working like they should, or we would hope. I personally have had great success with Remicade, so I cannot participate....
Check them out here:
http://www.celeststudy.com/verncrohns
If you can help, great and I thank you in advance.
Monday, August 3, 2015
Thursday, July 30, 2015
You Might Be A Crohnie
If you lose count how many times you go to the bathroom in the middle of the night
...you might be a Crohnie
...you might be a Crohnie
Saturday, July 18, 2015
You Might Be A Crohnie
If you start naming your kidney stones like they do with hurricanes...
you might be a Crohnie
you might be a Crohnie
Saturday, July 11, 2015
Crohn's Disease-Inspired Tattoos
Healthline.com has spent the past few months gathering tattoos inspired from Crohn's disease and now have posted them to their website.
Check them out here......
http://www.healthline.com/health-slideshow/crohns-tattoos
Nice job Healthline !! and Thanks!!
- Vern
Check them out here......
http://www.healthline.com/health-slideshow/crohns-tattoos
Nice job Healthline !! and Thanks!!
- Vern
Wednesday, July 8, 2015
Remicade: Day 1078
It's been a rough couple of weeks between me and my Crohn's so it was a welcome relief when infusion day comes along.
Last night I awoke to pain on my right flank and anyone that's had it knows, it was a kidney stone. I had my wife take me to ER and for the second time in as many weeks, there was no one waiting and I got in right away. They hooked me up with an IV and was putting in pain meds before the nurse came by to take my blood. And right after that, they started pumping in water. I went through 2 bags in an hour and was out of the ER in about 3 hours. The pain was lingering but it was more of an ache than a pain, so that made me happy! A little while later and it was all gone. Not sure if I passed it or not, but for now...no pain makes me a happy boy.
Last night I awoke to pain on my right flank and anyone that's had it knows, it was a kidney stone. I had my wife take me to ER and for the second time in as many weeks, there was no one waiting and I got in right away. They hooked me up with an IV and was putting in pain meds before the nurse came by to take my blood. And right after that, they started pumping in water. I went through 2 bags in an hour and was out of the ER in about 3 hours. The pain was lingering but it was more of an ache than a pain, so that made me happy! A little while later and it was all gone. Not sure if I passed it or not, but for now...no pain makes me a happy boy.
Sunday, July 5, 2015
You Might Be A Crohnie
If you can drink all day long and still be dehydrated...
...you might be a Crohnie
...you might be a Crohnie
Sunday, June 28, 2015
Awakened Sleep
It's been a while since my last post but as all us Crohnies know, flares happen.
After a week of suffering and "putting it off" because, you know, it'll just go away....I checked myself in to the ER with yet another perianal abscess.....fun.
To my shock and surprise, the ER was empty! No really! It was 8 in the morning and not a patient in site. After all the back and forth with the triage nurse and check in nurse, she said to have a seat and they'll call my name. I always find this humorous because I just told them I can't sit. I tried to make myself comfortable while I wait, but I ended up standing while I waited.
It didn't take too long to give me the call and then the slow walk through the maze of corridors to the awaiting bed. Now normally I wouldn't say these ER beds are comfy, but in my condition, it was like laying on a bed of soft kittens. The relief of just laying down taking the pressure off the abscess was all it took.
The nurse was there right way ready to put in an IV line and hooked me up with some sugar water to keep me hydrated and to give me pain meds. The morphine and gravol couldn't come soon enough and boy it works fast, but the pain still was more than I like. The pressure alone from the abscess produces so much pain, it would drop even the strongest man.
The doctor finally came and told me what I already knew, let's cut the damn thing open!
About three hours after coming in to the ER, I was surrounded by 2 doctors and 4 nurses ready to do the procedure in an "awakened sleep". One doctor to administer the drugs, one to do the cutting, one nurse acting as the RT (to watch my breathing), one to take notes as the doctor talks and two student nurses...to just watch and learn. As much as I love being "put out", the awakened sleep is freaky as it happens! They use propofol (and another drug I can't remember). When it starts I feel very disoriented as it starts to take effect, BUT, what's going on in my head is hard to describe. It's like when a train approaches and gets louder and louder. It's so "noisy" in my head I want to scream because I can still hear everyone talking but it's like all 6 of them are screaming in my ears right before I'm out.
And just like that, I start to awaken. It's done. The pressure pain is done, but now I have to deal with packing and incision pain....but the worst of all that is trying to "come to".
I can hear the nurse calling my name and telling me to take deep breathes, but the disorientation is disconcerting. I don't know how people do these kind of drugs for "fun" and on purpose... really?!
Hopefully it heals up nice......
After a week of suffering and "putting it off" because, you know, it'll just go away....I checked myself in to the ER with yet another perianal abscess.....fun.
To my shock and surprise, the ER was empty! No really! It was 8 in the morning and not a patient in site. After all the back and forth with the triage nurse and check in nurse, she said to have a seat and they'll call my name. I always find this humorous because I just told them I can't sit. I tried to make myself comfortable while I wait, but I ended up standing while I waited.
It didn't take too long to give me the call and then the slow walk through the maze of corridors to the awaiting bed. Now normally I wouldn't say these ER beds are comfy, but in my condition, it was like laying on a bed of soft kittens. The relief of just laying down taking the pressure off the abscess was all it took.
The nurse was there right way ready to put in an IV line and hooked me up with some sugar water to keep me hydrated and to give me pain meds. The morphine and gravol couldn't come soon enough and boy it works fast, but the pain still was more than I like. The pressure alone from the abscess produces so much pain, it would drop even the strongest man.
The doctor finally came and told me what I already knew, let's cut the damn thing open!
About three hours after coming in to the ER, I was surrounded by 2 doctors and 4 nurses ready to do the procedure in an "awakened sleep". One doctor to administer the drugs, one to do the cutting, one nurse acting as the RT (to watch my breathing), one to take notes as the doctor talks and two student nurses...to just watch and learn. As much as I love being "put out", the awakened sleep is freaky as it happens! They use propofol (and another drug I can't remember). When it starts I feel very disoriented as it starts to take effect, BUT, what's going on in my head is hard to describe. It's like when a train approaches and gets louder and louder. It's so "noisy" in my head I want to scream because I can still hear everyone talking but it's like all 6 of them are screaming in my ears right before I'm out.
And just like that, I start to awaken. It's done. The pressure pain is done, but now I have to deal with packing and incision pain....but the worst of all that is trying to "come to".
I can hear the nurse calling my name and telling me to take deep breathes, but the disorientation is disconcerting. I don't know how people do these kind of drugs for "fun" and on purpose... really?!
Hopefully it heals up nice......
Wednesday, June 10, 2015
Crohnie Quote of the Day
The other morning, my kids were eating breakfast and my eldest asked me why I don't eat cereal. I explained that because of my illness, I can't have milk. He said, at all? Well, I won't die from it, but it causes me to have a lot of pain and makes me go to the bathroom, a lot!
He thought for a second and then said something I wasn't expecting, and at the same time was brilliant and simple......use a fork.
So, my Crohnie Quote of the Day...from my 9 year old...
"If you want to eat cereal and are lactose intolerant......use a fork"
.
He thought for a second and then said something I wasn't expecting, and at the same time was brilliant and simple......use a fork.
So, my Crohnie Quote of the Day...from my 9 year old...
"If you want to eat cereal and are lactose intolerant......use a fork"
.
Wednesday, May 27, 2015
Remicade : Day 1037 Fast-Tracking
Infusion day today and I lucked out...there was a cancellation and I got in early !!
Also, today was the first day of "fast-tracking", so instead of a 2 hour infusion, it was an hour and a half. And yes, that half hour makes a big difference =) Fast-tracking is basically where they start the drip a little faster than normal.
We're starting out at an hour and a half to see how I tolerate it and we'll go from there. If everything goes well after a few more infusions, the next time I see my specialist maybe I can get her to take it down to an hour. So far, so good.
I figure after almost 3 years on the juice with no problems, it was time to start.
Today, I don't think I looked at the clock once, but I did get really tired real fast. More than usual.
I could have easily taken a nap right there....but I'm saving it for tonight that I might sleep.......bbbbwwwwaaaahahahahahahahahaha!!! I'm so funny
Also, today was the first day of "fast-tracking", so instead of a 2 hour infusion, it was an hour and a half. And yes, that half hour makes a big difference =) Fast-tracking is basically where they start the drip a little faster than normal.
We're starting out at an hour and a half to see how I tolerate it and we'll go from there. If everything goes well after a few more infusions, the next time I see my specialist maybe I can get her to take it down to an hour. So far, so good.
I figure after almost 3 years on the juice with no problems, it was time to start.
Today, I don't think I looked at the clock once, but I did get really tired real fast. More than usual.
I could have easily taken a nap right there....but I'm saving it for tonight that I might sleep.......bbbbwwwwaaaahahahahahahahahaha!!! I'm so funny
Tuesday, May 19, 2015
World IBD Day
Yes....we have "a day"! A day to bring awareness to all Inflammatory Bowel Diseases, a day to bring awareness that millions of us suffer in silence, a day to bring awareness that millions of us are in intense pain and others don't even know it and a day to bring awareness that the cost of medicine for us is so expensive, many of us go without.
IBD is an invisible illness and its real, it's not a "stomach ache" or "in my head" and believe me, if we could "just eat something" to gain weight, we would. And yes, I really do have to go to the bathroom that many times !!
Wear some purple today !!
IBD is an invisible illness and its real, it's not a "stomach ache" or "in my head" and believe me, if we could "just eat something" to gain weight, we would. And yes, I really do have to go to the bathroom that many times !!
Wear some purple today !!
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