Hitting The Wall

"In endurance sports such as cycling and running, hitting the wall describes a condition caused by the depletion of glycogen stores in the liver and muscles, which manifests itself by sudden fatigue and loss of energy."

Now, I have never run a marathon or competed in the Tour de France, but it sure feels like it sometimes.....like today for instance.  You know that feeling...where your mind says keep going and your body says yeeeeah, right, I don't THINK so.
I work as a general maintenance technician....that's the fancy description for jack of all trades.....and I pretty much "do" anything I can to help the complex I work in (250+ townhouses), well...basically....function.  You name it, I've pretty much done it, or tried it.  I'm a garbage man, IT tech, painter, electrician, mason, brick layer, carpenter, landscaper, politician, etc., etc.  I have a great boss, that has an understanding of my disease and tries to accommodate me the best she can.  I've worked there for 10 years now, but recently I've been slowing down a bit and have changed my duties a little, to less of the heavy work to more lighter duties. 
I have less than 2 days til my Remicade infusion and I have been getting tired lately.   Everything was going pretty well today until about 230 - 3pm, when I basically "hit the wall".  I had to sit down, I was tired, out of breath, had to have something to drink....in essence - exhausted.
She sent me home a little early - I needed to lay down and rest - to recharge.
It was the weirdest feeling, and yes, I've felt it before, but I've noticed that as I get closer to infusion day, I get tired.  BUT even after infusion, the infusion itself is exhausting, and I'm still tired.
I've started on these new protein bars for Crohn's sufferers, the SimplyBar, but I've only had a few and I'm hoping the high protein will help, the more I eat.

So, when you get sooooo tired you have to take a break, do it.  Get a drink, eat something and rest.  It's your body saying, "HEY! I'm getting tired here, can we stop now, please?!"

Crohn-fucius Say....

Crohn-fucius say....may your bowels be silent tonight


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Wellness Coupon

Wellness Foods let me know, to let everyone else know, that you can get 20% off your first order is you use the coupon code - SimplyShop

Thanks Wellness Foods!!
Had the Peanut Butter and Chocolate SimplyBar today....yumm and NO tummy troubles!!

Wellness Foods

Have any of you Crohnies heard of "TheSimplyBar"?
It's amazing!  A protein bar invented by someone with Crohn's for people with Crohn's...AND tastes great!!!

In Canada, go to www.wellnessfoods.ca to learn more and here http://www.wellnessfoods.ca/additional-canada-stores.html to find out where you can buy them.

All I can say is, yum!!  and thanks! to them

Crohn-fucius Say...

Crohn-fucius say....yes, bowels can speak, you're not crazy

Crohn-fucius Say......

I'm channeling my inner wisdom and introducing you to Crohn-fucius

Crohn-fucius say, pain in ass is literal, not figurative
Crohn-fucius say, may your toilet roll always be full

New Drug, A Crohn's and Colitis Breakthrough...????

Looking over the Internet, I came across an article about a new drug that's in Phase III of research and could be available within the next couple of years.  The drug is called Vedolizumab and I found out about it through a newspaper article in The London Free Press in London, Ontario, Canada.

As a Crohnie, I get "excited" about news of a new drug, or drugs, to help treat this awful disease.  BUT at the same time, I am very wary and don't get my hopes up until I see results.

Fingers crossed...

Funny Thing Happened At The GI Office.......

I had my 6 month check up with my Gastro this week and basically....I still have Crohn's.

During my 15 minute chat, I discovered that I was actually contributing to my dehydration.  Yea, go figure.  Here all this time, I've been drinking tons of water, but I was forgetting one important thing.....I also need salt.  Yep, salt.  And when you think about it, it's true.  When you go in to hospital and they re-hydrate you, they give you basically salt water.  And all these years I've been avoiding salt.  Well you learn something everyday and after over 20 years of Crohn's, apparently I'm still learning.  So, now I snack on saltine's (with peanut butter) and a shake (or two) of salt on my dinner.  I still have to drink though as well.   I'll let you know if it works.

She can see from the tests that the Remicade seems to be working for the most part.  It has eliminated the pain but I still haven't gained weight.  Then she proceeded to tell me that I may have "topped out" at my current weight.  I may never get bigger than I am.  She recommended Carnation Instant Breakfast, but also made suggestions on different ways of using it, like in yogurt, soups etc.  Even watering down Boost and drinking it throughout the day instead of all at once.  I find that if I drink one of those little bottles, I'm heading to the bathroom and "urinate out my ass"!  So it looks as though I'm going to be stuck at 145 - 150lbs.

Other than that, I'm going to get my colon scan in Sept to get a closer look to see if the Remicade is working......let's hope.  Last time, which was almost 2 years ago, she couldn't even get the tube inside a few inches from all the inflammation and scarring. 

Let's hope there's light at the end of the tunnel.

Crohnie Quote Of The Day

The best thing about the warm weather?  The warm toilet seat in the morning.




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Crohnie Quote Of The Day

Sometimes good things fall apart, so better things can fall together.




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