Did you know...
Crohn’s disease (CD) is named after the doctor who first described it in 1932. (Since he did not have the disease itself, it is sometimes more accurately called Crohn disease).
The inflammation from CD can strike anywhere in the gastrointestinal (GI) tract, from mouth to anus, but is usually located in the lower part of the small bowel and the upper end of the colon (like me!!)Patches of inflammation are interspersed between healthy portions of the gut, and can penetrate the intestinal layers from inner to outer lining.
CD can also affect the mesentery, which is the network of tissue that holds the small bowel to the abdomen and contains the main intestinal blood vessels and lymph glands.
-CCFC
Wednesday, February 13, 2013
Tuesday, February 12, 2013
Saturday, February 9, 2013
A Crohnie Bike...??
LOL !!!!
I think it's funny that it's actually locked up....
I mean, who would steal it?!
You Might Be A Crohnie If....
If you can still fit in your jeans from Highschool....
you might be a Crohnie
.
Wednesday, February 6, 2013
Remicade : Day 197
Well lets hope changing my Remicade treatment will help my abscesses. I just had my infusion after 7 weeks instead of 8 and my next infusion will be at the 6 week mark. One abscess is tollerable, two is bothersome, but when there are three....it's just a pain in the ass!
One has gone (?) and one is on the way out (after getting it lanced), but the third is intramuscular, sooooo fingers crossed.
Going to relax now....sure takes alot out of you
One has gone (?) and one is on the way out (after getting it lanced), but the third is intramuscular, sooooo fingers crossed.
Going to relax now....sure takes alot out of you
Tuesday, February 5, 2013
Crohnie Quote Of The Day
I can't count how many times I've felt like this, especially when there is a flareup
“Sometimes you climb out of bed in the morning and you think, I'm not going to make it, but you laugh inside — remembering all the times you've felt that way.”
.
“Sometimes you climb out of bed in the morning and you think, I'm not going to make it, but you laugh inside — remembering all the times you've felt that way.”
.
Thursday, January 31, 2013
Starting a Support Group
A fellow Crohnie I met on Twitter and I want to start up a support group for fellow Crohnie's here in BC, specifically the Lower Mainland.
We were thinking about getting together and talk, support each other, exchange experiences, laugh, have some fun, maybe wipe some tears....who knows!
Interested...??
send me an email and we'll get acquainted....
crohnieisland@yahoo.ca
or leave a comment here
Let's Connect!
We were thinking about getting together and talk, support each other, exchange experiences, laugh, have some fun, maybe wipe some tears....who knows!
Interested...??
send me an email and we'll get acquainted....
crohnieisland@yahoo.ca
or leave a comment here
Let's Connect!
Tuesday, January 29, 2013
You Might Be A Crohnie If....
If you know exactly how much intestine you have........left....
you might be a Crohnie
If hearing the phrase "you're so skinny, you should eat something" makes you want to scream....
you might be a Crohnie
If you could bottle your disease and sell it as the new celebrity diet and make millions....
you might be a Crohnie
you might be a Crohnie
If hearing the phrase "you're so skinny, you should eat something" makes you want to scream....
you might be a Crohnie
If you could bottle your disease and sell it as the new celebrity diet and make millions....
you might be a Crohnie
Sunday, January 27, 2013
You Might Be A Crohnie If....
If you can produce enough gas to power a small rocket....
you might be a Crohnie
If hanging out at the hospital on a Friday night is your idea of fun....
you might be a Crohnie
If there are more holes in you than a dead gangster....
you might be a Crohnie
you might be a Crohnie
If hanging out at the hospital on a Friday night is your idea of fun....
you might be a Crohnie
If there are more holes in you than a dead gangster....
you might be a Crohnie
Saturday, January 26, 2013
Death of an Abscess....?
I've been "dealing with" a nice little abscess in a not so wonderful place on my body, since around Christmas. And being the procrastinator that I so very much am, I was hoping (and praying), that with meds and changing my diet, it would just "go away". And no matter how many times I do this method, it never happens.
So, I sucked it up and decided to go in to hospital.
Pulling up the Emerg, I can see inside and...ohhh goodie...it's busy. Every chair was occupied, so I knew there would be a wait. I checked in at the registry desk and then stood and waited for the triage nurse to call my name for assessment. I've learned over the many years that after you check in and before triage, don't sit down, especially if it's busy. Why?? Because when the triage nurse calls you for assessment, you'll lose your seat. So I stand and wait. My name is finally called and I go through all the questions, blood pressure, temperature, etc. She was impressed that I actually took my jacket off BEFORE sitting down in front of her. She said I was the first today she didn't have to ask. I also had my spreadsheet with me for the questions about when I was in last and for what. She liked that as well.
All done, I now can sit and wait my turn.....just over 5 hours later, they finally called me in and took my to the minor surgery room. I got in to my fancy blue hospital "gown" and then laid on the table and waited for the doctor. He finally came in after about half and hour, but I never get all worked up waiting, as others do, cuz I know they're busy. I thanked him for finally getting me out of chairs and not for the wait, but so I didn't have to listen to everyone bitching about how long of a wait there was. People just don't get it and how it works. Someone would be called in and the people still waiting would comment, "but I was here first". C'mon people! It's not a restaurant. I mean, what do you think the triage nurse is for!?
So, he put the topical cream on to start the freezing process (yeeeeah, never works) and left to let it "take effect"...bbbwwwwaaahaaahaahaa.....
The nurse came in and gave me two shots of Morphine and an anesthetic and she left to let it "take effect"...bwwaaaahaaaa... (injected morphine doesn't work as well as IV morphine)
The doctor came back to start lancing, but first had to inject the abscess with freezing.....yes, I said INJECT the ABSCESS. But of course, the topical freezing he applied earlier would make it so I wouldn't feel the needle going in......BWAAAAHHAAAAAAAAA!!!!
Let's just say....I felt it....and felt it....and felt it.....he told me he was going to fill up the abscess until I couldn't feel it. I said just give me the whole thing! LOL
Luckily he said there was a small hole there already so he just made the hole bigger....I won't go in to details....but even with the freezing I could feel it drain....ahhhhhhhhhhhh. The thing about abscesses is, it's the pressure from the abscess that hurts, not the abscess itself. The fun part was when he was pushing on it to squeeze all the crap out. He kept apologizing and I said, I'd rather go through all this once and not have to return...so do what you have to do, squeeze and push away!!!
He put some gauze on it, antibiotic prescription, cleaned up, dressed and on my way home....8 hours later, but oh my god!!!! what a difference. Thank god for doctors and nurses
RIP.... one abscess, amongst many.
So, I sucked it up and decided to go in to hospital.
Pulling up the Emerg, I can see inside and...ohhh goodie...it's busy. Every chair was occupied, so I knew there would be a wait. I checked in at the registry desk and then stood and waited for the triage nurse to call my name for assessment. I've learned over the many years that after you check in and before triage, don't sit down, especially if it's busy. Why?? Because when the triage nurse calls you for assessment, you'll lose your seat. So I stand and wait. My name is finally called and I go through all the questions, blood pressure, temperature, etc. She was impressed that I actually took my jacket off BEFORE sitting down in front of her. She said I was the first today she didn't have to ask. I also had my spreadsheet with me for the questions about when I was in last and for what. She liked that as well.
All done, I now can sit and wait my turn.....just over 5 hours later, they finally called me in and took my to the minor surgery room. I got in to my fancy blue hospital "gown" and then laid on the table and waited for the doctor. He finally came in after about half and hour, but I never get all worked up waiting, as others do, cuz I know they're busy. I thanked him for finally getting me out of chairs and not for the wait, but so I didn't have to listen to everyone bitching about how long of a wait there was. People just don't get it and how it works. Someone would be called in and the people still waiting would comment, "but I was here first". C'mon people! It's not a restaurant. I mean, what do you think the triage nurse is for!?
So, he put the topical cream on to start the freezing process (yeeeeah, never works) and left to let it "take effect"...bbbwwwwaaahaaahaahaa.....
The nurse came in and gave me two shots of Morphine and an anesthetic and she left to let it "take effect"...bwwaaaahaaaa... (injected morphine doesn't work as well as IV morphine)
The doctor came back to start lancing, but first had to inject the abscess with freezing.....yes, I said INJECT the ABSCESS. But of course, the topical freezing he applied earlier would make it so I wouldn't feel the needle going in......BWAAAAHHAAAAAAAAA!!!!
Let's just say....I felt it....and felt it....and felt it.....he told me he was going to fill up the abscess until I couldn't feel it. I said just give me the whole thing! LOL
Luckily he said there was a small hole there already so he just made the hole bigger....I won't go in to details....but even with the freezing I could feel it drain....ahhhhhhhhhhhh. The thing about abscesses is, it's the pressure from the abscess that hurts, not the abscess itself. The fun part was when he was pushing on it to squeeze all the crap out. He kept apologizing and I said, I'd rather go through all this once and not have to return...so do what you have to do, squeeze and push away!!!
He put some gauze on it, antibiotic prescription, cleaned up, dressed and on my way home....8 hours later, but oh my god!!!! what a difference. Thank god for doctors and nurses
RIP.... one abscess, amongst many.
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