Friday, November 16, 2012

Crohnie Quote of the Day

"The only source of knowledge is experience" - Albert Einstein

in the case of Crohn's, and any illness, this, above all, is true....unfortunately.

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Wednesday, November 14, 2012

Kidney Stones and Raspberry Tea

Or the official name for Crohn's patients with kidney stones, "extraintestinal complication".

These are probably the most commonly encountered kidney complications of IBD—particularly oxalate stones. Kidney stones are more common in Crohn's patients with disease of the small intestine than in the general population because of fat malabsorption. Fat binds to calcium, leaving oxalate (a type of salt) free to be absorbed and deposited in the kidney, where it can form into stones. The risk for developing kidney stones of this type is higher in people who have had a number of small bowel resections and are therefore more prone to dehydration. Their urine is more concentrated, a condition that is more likely to lead to stone formation. Symptoms may include sharp pain, nausea, vomiting, and blood in the urine. Kidney stone treatment calls for an increased fluid intake together with a low-oxalate diet (one that's rich in juices and vegetables).

I've had kidney stones several times in my long Crohn's career, some of the time resulting in surgery.  My favorite was when they put a stent in.  Putting it in wasn't the hard part (I was out), it was taking the damn thing out that was painful.  Oh yea, did I mention I was awake for that and they use a local freezing gel?!  Let me tell you, there was NO freezing happening down there!!  I felt it all!!

Now a days, I'm pretty careful on drinking and eating too much dairy or calcium.  I found out early that I cannot take calcium pills or supplements as they caused me to start having flank pain (kidney pain) in my back where it all starts. 

After much research and trial and error, I discovered (for me anyway), that drinking raspberry tea as soon as I start feeling that "feeling" in my back made the pain go away.  Just drinking it plain.  No milk, no sugar, no nothing, just tea.  Now I drink raspberry tea at least once a week to help out my kidneys and I haven't had a problem in years now.  Ironically, raspberry tea contains calcium, obviously not enough to cause problems.


Tuesday, November 13, 2012

Crohn's Myths....

This is my personal favorite.............

if you eat this (insert whichever "fad" food(s) at the time) your Crohn's Disease will be cured.

This is a HUGE myth and totally untrue.  Your Crohn's might, might mind you, go in to remission, but it will never be "cured".

Until they find the cause, there isn't a cure.

As everyone who has Crohn's, has it in some sort of different form, not everyone will react the same way, speaking of food.  AND depending on how your Crohn's is on any particular day, or hour for that matter, will determine how you react.

So please, do not fall into any trap.  Only you know how your body is and only you know how your body reacts......

......listen to it.

Monday, November 12, 2012

What IS Crohn's Disease?

To me, what IS Crohn's Disease?, simply, it's very painful and it's a pain in the ass, figuratively and literally.......but having said that, here it is in clinical form:

Crohn's Disease is a chronic inflammation of the digestive track.

The digestive track covers the following:
  • Mouth
  • Esophagus
  • Stomach
  • Small Intestine
  • Large Intestine
  • Rectum
  • Anus
Crohn's can affect any of those areas, but most commonly attacks the ileum or the lower small intestine, as in my case.  The swelling of the affected area will cause pain and diarrhea.

Abdominal pain and diarrhea are the most common symptoms of crohn's disease. Other symptoms include rectal bleeding, weight loss, arthritis, skin problems, inflammation in the eyes, and fever. The range and severity of symptoms can vary. A diagnosis of Crohn's may involve blood tests, stool tests, upper GI, colonoscopy, sigmoidoscopy, or biopsy.

Crohn's may involve several factors including heredity, environment and the immune system. The main theory is that the body's immune system reacts to good bacteria and food as it would to a foreign body and tries to fight it off. Because of this, white blood cells will gather in the lining of the intestines and result in chronic inflammation.  So, basically, no one really knows for sure.....yet.

Treatment may include a combination of drugs, nutrition supplements, and surgery. The goals of treatment are to ease the symptoms, control inflammation and improve nutrition. Currently, there is no cure for Crohn's Disease. However, people can have a long period of remission where they are symptom free.
Drugs may include anti-inflammation, steroids, cortisone, immune system suppressors, Remicade, antibiotics, anti-diarrheal and fluid replacements.

http://www.justcrohns.com/

Sunday, November 11, 2012

Remembrance Day.....Would You Join??

I don't know what it is about this day, but I always am glued to the TV watching the national ceremony from the cenotaph in Ottawa.  It's amazing just how many veterans, now in there 90's some of them, come out and stand there in the rain sometimes.  The camera pans by them as they reflect and remember, as they are the only ones that can truely remember.  You can see it in their eyes, their faces, their tears.

These are the people we should be thanking.  These and the ones who didn't come home and the ones that are still out there 'fighting' in other countries.  These men and women who put life on line when their country called and calls.  They didn't have to think about it, they just did it.  Duty to "king and country"....teenagers, some of them.  Would that happen today?

If we were to have to go to war again (heaven forbid), would the youth of today put down their cell phones, laptops, iPADs, video games, iPODs, McDonalds, Tim Hortons, Starbucks, and pull up their pants, walk down to the recruiting office and sign up without having to think about it...?? 

I don't think so.  Not with the "what have you done for me lately" attitude of some young people these days.

Sad really...because today, when the 90+ year olds of yesterday are standing outside in the cold and rain to remember and reflect, the youth of today are enjoying their Starbucks, talking on their cellphones, whilst posting on their Facebook pages in the comfort of their nice warm homes.

....that these men and women fought and died so they could.

Something to think about.


Friday, November 9, 2012

Crohn's Myths.....

It's Only An Upset Stomach

Crohn's disease effects the entire digestive system. It is an inflammatory disease that cause abscesses in the intestine, uncontrollable diarrhea, vomiting, ulcers in the mouth, loss of balance and/or severe joint pain.

Read more: Myths About Crohn's Disease | eHow.com http://www.ehow.com/facts_5501228_myths-crohns-disease.html#ixzz2BnFOHxJT

Remembrance...........

With Remembrance Day on Sunday, take a few minutes to either remember someone, think of someone or just give thanks to the many who have fought for your Country, whichever that may be.
The fact that you can sit at your computers, read your tablets, go to the grocery store and simply walk down the street, is thanks to them.

The next time you go out and see a Veteran selling poppies, donate the change you have in your pocket (or more) and stop for a few minutes, shake his or her hand and say "thanks".

.........it's a pittance of time.


Thank you.

Thursday, November 8, 2012

Crohnie Quote of the Day

"If in your heart you are happy, you have the greatest blessing of all" 

@Ltd_to_two (Twitter)

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IBD Myths.....

....and how many of us have heard this one eh?!
FICTION: IBD is all in your head.

FACTS: IBD is not imaginary (diagnosis depends on the presence of inflammation in your gastrointestinal tract), nor is it caused by psychological problems. On the other hand, IBD can lead to anxiety or depression. These issues are often associated with any chronic illness and are not the nature of IBD itself.

Reference: http://www.salix.com/patient-resources/digestive-health-newsletter/archive/ibd-myths-facts-fiction.aspx

November is Crohn's and Colitis Awareness Month

From http://invisabilities.org

Canada has one of the highest rates of Irritable Bowel Disorders in the world.

November is Crohn’s and Colitis Awareness Month. Do your part to support those living with IBDs by getting educated! Check out this infographic and take the first step in fighting the stigma surrounding IBDs.