For the past few days, I've been going to the hospital bright and early in the morning. I was given a ride to and fro by my Dad (Thanks Dad) in the beginning as I was just too tired and weak to do so myself. After the scary experience on Friday, I'm surprised I had any energy at all. I go up to the outpatient IV clinic and wait my turn to get "hooked-up" in the sheet covered Lazy Boy chairs. There are 5 others sitting in the room, all waiting, all with identical gauze wrapped wrists, arms, chests, etc., all there for different reasons. I push back on the arms of my chair to recline and await my "drug". The nurse calls my name, asks my birth date, and I took the gauze off in preparation and anticipation. She hooks up a saline needle to flush the lock in my arm, hooks up my line, turns on the machine, takes my temperature and says "There ya go".
While I wait my half an hour it's going to take, I scan the room. Looking. Listening. One nice older lady is there talking to the nurse about her breast cancer and all I can think is about my own mum and how she must have looked while she sat in the chair getting her meds. Two other men, who have been coming to this clinic for awhile obviously, as the nurses know them by first name and they are prepared with books to read. One has an infected foot, can barely walk, its swollen, red and painful. The other is the same, except it's his shin and calf, red, swollen, painful and peeling. Another lady, around my age, is sitting with her doctor whispering. She's finding out that the antibiotics aren't working on her infected leg (which is twice the size it should be) and she will have to have surgery and even then, no guarantee she can keep her leg.
Then the beeping starts, signalling the end of my session. The nurse comes and unhooks me, flushes the line, locks it and puts the gauze back on for tomorrow, where we'll do this all again.
As I'm driving home I started to think about the others in the room and my own situation.
And then I wonder.....
....do I really have it that bad?
Thursday, June 7, 2012
Sunday, June 3, 2012
You're Not Gonna Believe It......
...but literally minutes, and I do mean minutes, after writing my last post, I started to get the shakes. A little at first, but within a few seconds I was shaking like I was having a siezure! I've had them in the past, but usually goes away after having some juice or something. Not this time. It got so bad so fast that I had my wife call the ambulance. My jaw locked up, I couldnt speak properly and the pain from tensing was too much to handle. But as soon as the fire dept arrived (before the ambulance) and gave me some oxygen to relax, the convulsions slowed. The problem now was that I was burning up (40C) my heart rate was 122 and my blood pressure was 190/80. So needless to say the ambulance still took me to hospital and spent the night. I have to go back for the next few mornings for IV antibiotics, but the funniest thing is that all my blood work came back "normal" and nothing on xray. I havent been able to eat because I throw it up, so just water mainly for now.....
lots of fun....
lots of fun....
Friday, June 1, 2012
Prednisone, the Hussy
You know that saying,
"I have Crohn's, but it doesn't have me" ?
Well Crohn's sure is putting up a great fight today and tonight. Doesn't have me yet!
But oh boy! I'm looking at number 7 on the CPS (Crohns Pain Scale)
Trying to get through it without the Prednisone.......ohhhhh but she's looking pretty good now!
I can hear her calling from the cupboard....."here I am...I knowwwww you want me" (the slllllut!)
We'll see what the night brings, shall we......
"I have Crohn's, but it doesn't have me" ?
Well Crohn's sure is putting up a great fight today and tonight. Doesn't have me yet!
But oh boy! I'm looking at number 7 on the CPS (Crohns Pain Scale)
Trying to get through it without the Prednisone.......ohhhhh but she's looking pretty good now!
I can hear her calling from the cupboard....."here I am...I knowwwww you want me" (the slllllut!)
We'll see what the night brings, shall we......
Sunday, May 27, 2012
Check Out My Artwork
...on eBay!
http://www.ebay.ca/itm/April-Original-Acrylic-Abstract-Print-Canvas-/130702840755?pt=Art_Prints&hash=item1e6e7f13b3
http://www.ebay.ca/itm/Jellyfish-Original-Acrylic-Abstract-Print-Canvas-/130703502798?pt=Art_Prints&hash=item1e6e892dce
http://www.ebay.ca/itm/Heaven-and-Hell-Original-Acrylic-Abstract-Print-Canvas-/130702628023?pt=Art_Prints&hash=item1e6e7bd4b7
http://www.ebay.ca/itm/Checkers-Original-Acrylic-Abstract-Print-Canvas-/130703621605?pt=Art_Prints&hash=item1e6e8afde5
These are the first few I'm trying out on eBay. Sold one giclee print so far!!
Thanks for everyones support!!!!
http://www.ebay.ca/itm/April-Original-Acrylic-Abstract-Print-Canvas-/130702840755?pt=Art_Prints&hash=item1e6e7f13b3
http://www.ebay.ca/itm/Jellyfish-Original-Acrylic-Abstract-Print-Canvas-/130703502798?pt=Art_Prints&hash=item1e6e892dce
http://www.ebay.ca/itm/Heaven-and-Hell-Original-Acrylic-Abstract-Print-Canvas-/130702628023?pt=Art_Prints&hash=item1e6e7bd4b7
http://www.ebay.ca/itm/Checkers-Original-Acrylic-Abstract-Print-Canvas-/130703621605?pt=Art_Prints&hash=item1e6e8afde5
These are the first few I'm trying out on eBay. Sold one giclee print so far!!
Thanks for everyones support!!!!
Saturday, May 26, 2012
Wednesday, May 23, 2012
Invisabilities.org
All those in colleges and universities!
There is a great non profit group helping to bring awareness to those of us with chronic illnesses that no one can see. It takes "you don't look sick" to another level. It not only helps those of us WITH the illnesses, but helps those who are learning about them or are living or know someone with the illnesses (and there are many)
Thanks to Queens, McGill and Ottawa Universities for getting on board! Special thanks to Julie for starting it all!!! Maybe start a Chapter at your own college or university.
Check them out!!!!!!
There is a great non profit group helping to bring awareness to those of us with chronic illnesses that no one can see. It takes "you don't look sick" to another level. It not only helps those of us WITH the illnesses, but helps those who are learning about them or are living or know someone with the illnesses (and there are many)
Thanks to Queens, McGill and Ottawa Universities for getting on board! Special thanks to Julie for starting it all!!! Maybe start a Chapter at your own college or university.
Check them out!!!!!!
Crohnie Quote of the Day
Courage, isn't having the strength to go on......
It's going on, when you don't have the strength
It's going on, when you don't have the strength
Sunday, May 20, 2012
Great New Novel
New novel written by my old neighbour, check it out!!
Getting great reviews
http://www.amazon.com/My-Temporary-Life-ebook/dp/B006O2P13O
Getting great reviews
http://www.amazon.com/My-Temporary-Life-ebook/dp/B006O2P13O
Wednesday, May 16, 2012
The Rectum Bar
No.....I'm serious. In Vienna, there is a bar called the Rectum Bar and it's shaped like a rectum!!
Don't believe me?
http://walyou.com/rectum-bar-vienna/
Careful what you order.....
Too, too funny!! This would make a cool hang out for us Crohnies!
Don't believe me?
http://walyou.com/rectum-bar-vienna/
Careful what you order.....
Too, too funny!! This would make a cool hang out for us Crohnies!
Wednesday, May 9, 2012
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