July 25, 2012... The first day of Remicade infusion, tired, fatigued, underweight (150 lbs), multiple fistulas and eager to get going.
Fast forward 6 years...53rd infusion, more energy, ideal weight (170 lbs), still one irritating fistula, but not nearly as bad, and still eager to keep it going.
My weight has finally stabilized and I weigh the same now that I did 30 years ago before I got sick. The only difference is the way its distributed throughout my body...LOL...
I used to have it well distributed being a figure skater (legs, arms, butt, etc) now its more around the waist, but I am working on that with a trainer getting my core back and adding muscle (maybe get my butt back) Crohn's tends to take all the muscle once it's done with the fat. I remember at my worst I weighed 120 lbs.
All in all, I am glad I decided to take the plunge and start Remicade, its worked wonders for me. It may not work for everyone and one day it might stop working for me, but in the meantime, I'm trying to take full advantage!
3 comments:
So glad to hear it's working for you. I'm curious if you've ever heard of Jini Patel Thompson / Listen To Your Gut.com - I'm just starting her protocol and hoping for the best.
No I havent....I'll have to look it up.
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