One of the biggest things I had to go through when I got Crohn's was the drastic weight loss. When I say drastic, it came hard and fast. It was scary at the time and there was nothing I could do about it. Some of it was the disease itself I think, but also I just stopped eating. It hurt way too much after I ate. I had dropped so much weight, at one point a stranger on the street asked if I had AIDS. Keep in mind, this was the late 80's and AIDS was a big "thing" then. That comment hit hard for me and I didn't want to go outside anymore. I didn't want anyone to see me.
So to give you an idea about how I WAS...before I was diagnosed I was a competitive figure skater and I played soccer as well. I was fit and strong, thick thighs and such a tight ass (just sayin) I weighed 165 pounds (11.7 stone or 74.8 kilos) at 5' 10", I looked great and "healthy".
By the time I had my first surgery I weighed a mere 115 pounds (8 stone or 52 kg). I was skinny enough that the surgeons were a little concerned about doing the surgery, but it was an emergency at the time. I had a grapefruit sized matting of the intestines. That was 1989....
It has taken me to 2016 to get my weight back up, I am now 160lbs, almost to my original weight. Gone are all the muscle I had, Crohn's had them for a snack after it ate all my fat, but thanks to Remicade, it has slowly gone up and has stayed there for a few months now.
I hope to keep it as I have started working out. With the help of my trainer I'll get there.
I want my muscle back, not to mention my ass!!
8 comments:
Hi Vern! I've been following/lurking you for a few years, and given the freakish timing of this post (I wrote something earlier today about my difficulty obtaining diagnosis because "people with Crohn's don't lose THAT much weight"), I felt the need to comment. I'm so happy to hear that the Remicade seems to be working, and that you're able to add in a little training. I bet it feels pretty good (when the DOMS go away)!
Hi Kara, thanks! What's your blog? Fingers crossed the Remicade keeps working, it's been 4 years, and the working out keeps on track
Oh, and thanks for coming out of the shadows to say Hi !!!
THANK YOU! for this 'view' of the course of Your life.
You are such a credit to my living; I feel so much wiser for being in Your world.
May many more come into the light as a result of You efforts.
Thank you for the info you have on your blog! I healed crohns and colitis with diet change, biofeedback, and homeopathy. I avoided prescription drugs and surgery. Check out my website to learn more. I feel for you please read through my blog it will help you so much. My muscles wasted, skin organs and tissue shut down but I found help and am almost back to normal. Love, peace & hope ~Andrea https://onegutsylady.com/
I need to remember this blog....Andrea you never had crohns or colitis if you cured it with diet, that's called irritable bowel syndrome which can be controlled by diet. Inflammatory bowel disease is nothing but hell on wheels, not a syndrome at all. How dare you make that comment. If there was such a diet why did I drop down 78lbs before having emergency surgery??? I lost my right ovary to crohns and 2 feet of bowel....that's like saying you can cure cancer w diet. I'll be blunt! Do you think those of us who had the surgery and are taking drugs like remicade do it for what? Attention? I don't understand your logic here but I do like this blog so I'm being blunt bc I'd like to hear back from such a fool to remind me of an awesome blog. Take care
I've been away and haven't had a chance to respond, but Andrea, I have to agree with Annabel. Even on your site you state that you are still in the healing process which to me means you are not "healed". As every one with Crohn's suffers differently, what might work for you won't work for others. For me, the Paleo diet with not work due to some of the foods. As there is no direct cause for Crohn's and Colitis, there is no way of having a cure....yet. So again, I have to agree with Annabel and I hope it doesn't stop people from coming to my blog. I welcome peoples comments, but I don't agree with comments claiming a cure. Thanks. ~Vern
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