What an up and down month it's been.
I haven't had the energy or desire to write for awhile and the main reason....very difficult to sit.
It started out with a peri anal abscess but it started to drain on its own, so no need for hospital visit (which I'm always thankful for). That lasted about 3 weeks before the dreaded discovery that it was now a fistula and leaking out the hole....god that hurts. I was so afraid to go to the bathroom that I did what most of us do and stopped eating. I know its not a great idea, but the alternative was pain and I have dropped 10 lbs. It was at this point that I took the trip to the ER and ended up having surgery but the surgeon couldn't find the fissure so did his best to relieve the pain. Three days later I was home still with a hole in my body, but no cavity for the fissure to fill so at least I can go to the bathroom with minimal pain. Needless to say I haven't been able to work either....no work, no money.
Now I have an appointment with a colorectal surgeon and an MRI. Always before Christmas. Monday is D-Day and see what the surgeon has to suggest.
Ironically, the Remicade IS working for the rest of the Crohn's, just not the abscesses.
4 comments:
Vernon.
You know I am here.
You know that you can ANYTIME.
If there is anything I can do, I will do my best.
Vernon,I wish I had a magic wand to wave over you to make this vile disease disappear.Aiways in my thoughts.xx
Sending vibes! I had the whole perianal abscess turned into a fistula thing too! It can take a while to heal- but once it's gone, it may be gone for a while. FINGERS CROSSED.
Thanks everyone! Healing slowly, MRI next month
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